My Penelope

07/06/2026

14/05/2026

Meltdowns don't always come out of nowhere.

We used to think Penny's hardest days were unpredictable. Until we started tracking.

Poor sleep on Monday. A small seizure Tuesday night.
By Wednesday her mood was already fragile - and by Thursday the meltdown felt like it came from nowhere.

Except it didn't.

When you can see the pattern, you stop blaming yourself. You start understanding instead.

My Penelope tracks sleep, seizures, mood, meltdowns and mobility - all in one place. Free.

Built by parents who needed exactly this.

Link in first comment.

12/05/2026

What can families track in My Penelope today?

The live app currently helps families keep a clearer picture of:

seizures
sleep
meltdowns
mood
mobility

For many parents, the challenge is not one dramatic moment. It is trying to hold onto the full picture between appointments — what changed, what repeated, what recovery looked like, and what needs to be raised next.

That is what simple, structured tracking starts to support.

This is the live foundation we are now building on as we develop the premium and B2B platform layer.

11/05/2026

Mobility changes are not always dramatic.

Sometimes it is more stiffness. More fatigue. Slower movement. Less tolerance. A harder day than usual.

Small changes still matter.

And over time, those changes can help families build a clearer picture of what daily life really looks like.

My Penelope includes mobility tracking in the free version, alongside sleep, seizures, meltdowns and mood.

Track the essentials for free today.

 

06/05/2026

Meltdowns can feel sudden. But often there is more going on underneath.

Poor sleep. Stress. Sensory overload. A difficult school day. Changes in routine. Things building up over time.

Tracking meltdowns can help families start to notice patterns and possible triggers more clearly.

It does not make everything easy.
But it can make the bigger picture easier to understand.

Track meltdowns for free with My Penelope.

02/05/2026

This is the reality some people do not see.

A sunny day.

Siblings outside playing.

And Penny asleep at 1 in the afternoon because her body simply cannot keep up.

When you are raising a child with complex needs, the hard parts are not always the loud parts. Sometimes, it is this.

The exhaustion.

The missed moments.

The way one child’s needs can quietly change the rhythm of the whole day.

People talk a lot about the visible side of disability and complex conditions, but not enough about the fatigue, the recovery, the after-effects, and the things a child misses through no fault of their own.

This is real life, too.

30/04/2026

One of the hardest things is trying to explain a difficult pattern clearly when it has built slowly over time.

You know it is not just one moment.
You know there is a bigger picture.
But that bigger picture can be hard to put into words later.

That is why simple tracking can be so helpful.

Download My Penelope free today.

26/04/2026

Huge congratulations to the incredible team of runners at Shakespeare Martineau who took on the Stratford Half Marathon today! 🏃‍♀️🏃‍♂️

They’ve gone the extra mile (literally!) to raise money for in honour of Penny, supporting an amazing cause that makes a real difference to young people like her and families like us.

Epilepsy Action highlighted this marathon weekend that experiencing just one seizure can be like running a marathon. Penny faces around 15 seizures every single week — a powerful reminder of why this challenge matters so much.

We couldn’t be prouder of the team’s determination, resilience, and commitment. 👏

If you’d like to show your support, it’s not too late to donate and help make an impact 💜 Link is in our stories.

23/04/2026

Trying to explain seizures weeks later can be incredibly hard.

Not because they do not matter, but because so much else is happening around them, too.

What happened.
When it happened.
How long it lasted.
What recovery looked like.
What changed afterwards.

That is why clear, simple tracking can make such a difference.

Start tracking seizures with My Penelope free.