CF Prosper Study

01/03/2023

Delighted that our new paper highlighting the unmet informational needs and preference for shared decision-making for reproductive health in has just been published!

The full article can be accessed here:

There are complex medical, psychological, social and economic aspects to becoming a parent with Cystic Fibrosis (CF). A shared decision-making (SDM) a…

26/10/2022

Our MSc student, Caitlin, is still looking for women in the UK with CF to take part in her study. She is looking at how we support patient-centred care in the context of reproductive health. Please click here or scan the QR code for further information! Thank you 🙌 https://cardiffmet.eu.qualtrics.com/jfe/form/SV_1ObEGcd7cMK7uLA?fbclid=IwAR3RLGmEFz050Xt124g3_WoooX2pJLgU2tKjAv-bOnrka16fGVuQ86Yv3N0

27/07/2022

Our MSc student, Caitlin, would love to hear from women based in the UK who have . She is looking to get some feedback on a decision support tool to help people with CF make decisions about their reproductive goals. Please click here for more information: https://cardiffmet.eu.qualtrics.com/jfe/form/SV_1ObEGcd7cMK7uLA or email Dr Rhiannon Phillips (Project Supervisor) at [email protected] Thank you 🤩

07/07/2022

Exciting news! We now have some tools to support women with CF with decisions about starting a family. We’d love to get some feedback from people currently living in the UK. Please click here for more information about this next stage in our research: https://cardiffmet.eu.qualtrics.com/jfe/form/SV_1ObEGcd7cMK7uLA

22/03/2022

Our latest paper on pregnancy outcomes for women with CF is out now! View the full article here: https://obgyn.onlinelibrary.wiley.com/doi/10.1111/1471-0528.16957

27/09/2021

📢 Excited to announce that our latest paper has been accepted for publication in BJOG: 'Pregnancy and perinatal outcomes for women with Cystic Fibrosis: a UK population-based cross-sectional study, 2003-2017.' Pre-print of the article can be found here:

Objective To estimate the pregnancy rates and outcomes for women with cystic fibrosis (wwCF) in the UK compared to the general population and to explore the impact of the introduction of disease modifying treatments on pregnancy rates. Design A popula

23/04/2021

Thank you to everyone who has taken part in
CF Prosper Study so far, we are busy analysing the survey data behind the scenes and are still interviewing women about their experiences navigating pre-conception decision making and CF.😀

03/02/2021

Dr Jamie Duckers our study Cystic Fibrosis Consultant shares why it is important that we find better ways to support women and families with their decisions about starting having children.

Please share your experiences of making decisions about having when living with

We would like to find out how to better support women when making such decisions. Please take part or share our survey. Survey can be found here: https://cmett.onlinesurveys.ac.uk/cf-prosper-making-choices-about-having-children-when-livi-2

03/02/2021

Please share your experiences of making decisions about having when living with

We would like to find out how to better support women when making such decisions. Please take part or share our survey. Survey can be found here:

https://cmett.onlinesurveys.ac.uk/cf-prosper-making-choices-about-having-children-when-livi-2

03/12/2020

Survey has re-opened! Are you a woman with CF? Are you thinking about starting/expanding your family or have you decided not to have children? We are looking at how best to support women with these decisions.

Edit: this survey is now closed. A huge thank you to everyone who took part!

01/09/2020

Our survey is now closed. Thank you so much to those of you who have taken part/shared or RT! The team are now busy behind the scenes analysing the data. We will be in touch with those of you who have expressed an interest in taking part in interviews soon 😀

20/08/2020

Only 10 days to go! Our survey about how best to support decisions in women with CF about having children is closing soon. Please take part or share. We'd love to hear from you. https://cmett.onlinesurveys.ac.uk/cf-prosper-making-choices-about-having-children-when-livi-2


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