24/06/2026
💙 June is Tethered Cord Syndrome Awareness Month
Did you know tethered cord syndrome is an increasingly recognized comorbidity in individuals with CTNNB1 syndrome?
Because symptoms can develop as a child grows, early recognition is important. If diagnosed, surgical detethering may help relieve symptoms and reduce the risk of permanent nerve damage.
Awareness leads to earlier evaluation, informed conversations with your healthcare team, and better outcomes for our community. 💛💙
Have you or your child been diagnosed with tethered cord syndrome? Share your experience below to help other families.
