13/05/2026
“I want to live one minute longer than my autistic child”
I used to feel sad reading quotes like this cz it painted a very bleak picture of what the future would look like for my child without me in the picture. And then at some point the sadness turned to anger- because I refuse to feel hopeless and helpless and I cannot for the sake of my child.
There has to be another way that ensures his survival and helps him thrive with or without me in the picture. This is not meant to be an exhaustive list but I hope it encourages parents to start thinking about the future in a more actionable manner.
Hope is our only choice in the face of uncertainty.