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First Official Malaysian Interstitial Lung Disease (MY ILD) Awareness Account All members are encouraged to seek the advice of a healthcare professional.

The primary purpose for this page is to disseminate information about the so called ‘rare’ interstitial lung disease that is ever so often misdiagnosed or under diagnosed by healthcare providers. The mission is to provide support and education for ILD patients and their families, helping them to deal with the heartbreaking truth about living with this disease. The information provided here is not meant to take the place of a doctor’s professional advice.

30/09/2026

September may be ending, but awareness should never end. 💙🫁

Throughout September, we have come together to raise awareness of Pulmonary Fibrosis (PF) — a condition in which lung tissue becomes scarred, affecting the lungs’ ability to function and making breathing increasingly difficult.

But the end of Pulmonary Fibrosis Awareness Month does not mean our efforts should end.

For people living with pulmonary fibrosis, the journey continues every day — coping with breathlessness, fatigue, treatment, follow-up care, and the many challenges that come with living with the condition.

Let us continue to:
🫁 Learn about the signs and symptoms.
🔎 Seek early assessment when symptoms persist.
🤝 Support patients and families throughout their journey.
💙 Raise awareness so that more people understand interstitial lung disease and pulmonary fibrosis.

To every patient, family member, caregiver, and healthcare professional who is part of this journey — you are not alone.

September may be over, but our commitment to raising awareness, providing support, and inspiring hope continues throughout the year.

Healthier lungs today, hope for a brighter tomorrow.

30/09/2026

September berakhir, tetapi kesedaran jangan berakhir. 💙🫁

Sepanjang bulan September, kita bersama-sama meningkatkan kesedaran tentang Fibrosis Pulmonari (Pulmonary Fibrosis) — penyakit paru-paru yang menyebabkan tisu paru-paru menjadi berparut dan boleh menjejaskan keupayaan seseorang untuk bernafas.

Namun, berakhirnya Bulan Kesedaran Fibrosis Pulmonari bukan bermakna usaha kita turut berakhir.

Bagi mereka yang hidup dengan fibrosis pulmonari, perjalanan ini diteruskan setiap hari — menghadapi sesak nafas, keletihan, rawatan, pemeriksaan susulan dan pelbagai cabaran dalam kehidupan seharian.

Marilah kita terus:
🫁 Kenali tanda dan gejalanya.
🔎 Dapatkan penilaian awal jika mengalami gejala yang berterusan.
🤝 Sokong pesakit serta keluarga yang melalui perjalanan ini.
💙 Sebarkan kesedaran agar lebih ramai memahami penyakit paru-paru interstisial dan fibrosis pulmonari.

Kepada semua pesakit, keluarga, penjaga dan petugas kesihatan yang sentiasa bersama dalam perjalanan ini — anda tidak bersendirian.

September mungkin telah berakhir, tetapi usaha untuk meningkatkan kesedaran, memberi sokongan dan membawa harapan akan terus berjalan.

Paru-paru hari ini, harapan untuk esok.

25/09/2026

🫁 Small steps today, towards a more active tomorrow.

This September, in recognition of Pulmonary Fibrosis Awareness Month, MyILD is highlighting the role of pulmonary rehabilitation for people living with interstitial lung disease (ILD).

Pulmonary rehabilitation is more than exercise. It combines physical training, education and support from a healthcare team, tailored to each person’s needs and abilities.

💪 Helps improve muscle strength and stamina
🌬️ Helps reduce breathlessness during daily activities
💙 Supports emotional well-being and quality of life
🚶 Helps you stay active and independent

Start slowly, move at your own pace and seek guidance from your healthcare team. Ask your doctor about pulmonary rehabilitation and how it could support you.

Every step matters. Let’s move together with MyILD! 💙

25/09/2026

🫁 Langkah kecil hari ini, untuk kehidupan yang lebih aktif esok.

Sempena Bulan Kesedaran Fibrosis Pulmonari pada September ini, MyILD ingin mengetengahkan peranan rehabilitasi pulmonari bagi individu yang hidup dengan penyakit paru-paru interstisial (ILD).

Rehabilitasi pulmonari bukan sekadar senaman. Ia merangkumi latihan fizikal, pendidikan dan sokongan pasukan kesihatan yang disesuaikan mengikut keperluan serta kemampuan setiap individu.

💪 Membantu meningkatkan kekuatan otot dan stamina
🌬️ Membantu mengurangkan sesak nafas ketika melakukan aktiviti harian
💙 Menyokong kesejahteraan emosi dan kualiti hidup
🚶 Membantu anda terus aktif dan berdikari

Mulakan perlahan-lahan, ikut kemampuan diri dan dapatkan panduan pasukan kesihatan. Berbincanglah dengan doktor anda tentang rehabilitasi pulmonari yang sesuai untuk anda.

Setiap langkah bermakna. Jom bergerak bersama MyILD! 💙

21/09/2026

🌫️🫁 JEREBU ANCAM PARU-PARU: LINDUNGI PARU-PARU, LINDUNGI KEHIDUPAN!

Tahukah anda bahawa jerebu bukan sekadar menyebabkan ketidakselesaan, malah boleh memberi kesan serius kepada kesihatan paru-paru, terutamanya bagi pesakit Interstitial Lung Disease (ILD) dan Fibrosis Paru-paru?

Zarah halus PM2.5 yang terdapat dalam udara tercemar boleh memasuki jauh ke dalam paru-paru, mencetuskan keradangan dan memburukkan lagi masalah pernafasan.

Bagi pesakit fibrosis paru-paru, pendedahan kepada PM2.5 dikaitkan dengan peningkatan risiko masalah pernafasan akut, kemasukan ke hospital dan kemerosotan kesihatan.

💚 LANGKAH MELINDUNGI PARU-PARU KETIKA JEREBU

🏠 Semak kualiti udara

Pantau Indeks Pencemaran Udara (IPU) dan kurangkan aktiviti luar apabila kualiti udara tidak sihat.

😷 Pakai pelitup muka yang sesuai

Gunakan pelitup muka N95 atau KN95 yang dipakai dengan betul apabila perlu berada di luar rumah.

🌿 Kekal di dalam rumah

Tutup pintu dan tingkap apabila kualiti udara di luar tidak sihat. Gunakan penapis udara HEPA jika tersedia.

🚶 Hadkan aktiviti fizikal di luar

Elakkan senaman atau aktiviti fizikal berat di luar rumah ketika jerebu.

🩺 Pantau kesihatan pernafasan anda

Dapatkan pemeriksaan perubatan sekiranya mengalami peningkatan sesak nafas, batuk atau keletihan yang luar biasa.

💚 Setiap nafas amat berharga.

Bagi pesakit ILD dan fibrosis paru-paru, langkah pencegahan yang kecil boleh membawa perubahan besar dalam melindungi kesihatan dan kualiti hidup.

🌱 Udara Bersih Pilihan Kita, Kesihatan Paru-paru Masa Depan Kita.

Bersama Untuk Udara Lebih Bersih!

21/09/2026

🌫️🫁 HAZE HURTS FRAGILE LUNGS: PROTECT YOUR LUNGS, PROTECT YOUR TOMORROW!

Did you know that haze is more than just an environmental concern? It can pose serious health risks, especially for individuals living with Interstitial Lung Disease (ILD) and Pulmonary Fibrosis.

Fine particulate matter (PM2.5) can pe*****te deep into the lungs, trigger inflammation, and worsen existing respiratory conditions.

For patients with pulmonary fibrosis, exposure to PM2.5 has been associated with an increased risk of acute respiratory events, hospitalisation, and poorer health outcomes.

💚 HOW CAN YOU PROTECT YOUR LUNGS DURING HAZE?

🏠 Monitor Air Quality

Check the Air Quality Index (AQI) regularly and limit outdoor activities when air pollution levels are high.

😷 Wear a Well-Fitted Mask

Use a properly fitted N95 or KN95 mask when you need to go outdoors, especially during periods of poor air quality.

🌿 Stay Indoors

Keep windows and doors closed when outdoor air quality is poor. Use an air purifier with a HEPA filter if available.

🚶 Avoid Strenuous Outdoor Activities

Postpone outdoor exercise and other physically demanding activities when PM2.5 levels are high.

🩺 Stay Connected with Your Healthcare Team

Monitor your respiratory symptoms and seek medical advice if you experience worsening breathlessness, persistent coughing, or unusual fatigue.

💚 EVERY BREATH MATTERS.

For individuals living with ILD and pulmonary fibrosis, taking simple preventive measures can make a meaningful difference in protecting lung health and maintaining quality of life.

Together, we can raise awareness and work towards cleaner air for healthier lungs and brighter tomorrows.

🌱 Cleaner Air, Healthier Lungs, Brighter Days.

Breathe Safer, Live Better!

14/09/2026

🫁 **The Hope Breathes Through Research**

Clinical trials play an important role in advancing our understanding of Interstitial Lung Disease (ILD) and developing safer, more effective treatments.

By participating in clinical research, eligible individuals can help improve future care, not only for themselves, but also for the wider ILD community and generations to come.

Every study brings us one step closer to more knowledge, better treatments and brighter tomorrows.

**Research gives hope. Together, we can be part of the change.** 💙

14/09/2026

🫁 **Harapan Melalui Penyelidikan**

Ujian klinikal memainkan peranan penting dalam meningkatkan pemahaman tentang penyakit Paru Paru Fibrosis, di samping membantu menghasilkan rawatan yang lebih selamat dan berkesan.

Dengan menyertai penyelidikan klinikal, individu yang layak berpeluang menyumbang kepada penjagaan yang lebih baik bukan sahaja untuk diri sendiri, malah untuk komuniti ILD dan generasi akan datang.

Setiap kajian membawa kita selangkah lebih dekat kepada pengetahuan yang lebih luas, rawatan yang lebih baik dan masa depan yang lebih cerah.

**Penyelidikan memberi harapan. Bersama-sama, kita boleh menjadi sebahagian daripada perubahan.** 💙

10/09/2026

🫁 Bulan Kesedaran Fibrosis Pulmonari | September 2026

Bagaimanakah fibrosis pulmonari didiagnosis?

Tiada satu ujian sahaja yang dapat memberikan gambaran keseluruhan. Diagnosis fibrosis pulmonari lazimnya melibatkan gabungan beberapa pemeriksaan, termasuk HRCT toraks, ujian darah, ujian fungsi paru-paru, ujian berjalan 6 minit dan, dalam kes tertentu, biopsi paru-paru.

Bersama penilaian oleh pasukan multidisiplin, pemeriksaan ini membantu doktor mengenal pasti corak dan kemungkinan punca fibrosis paru-paru serta menentukan pengurusan yang sesuai.

💙 Diagnosis awal penting. Setiap nafas amat bermakna.

Sempena Bulan Kesedaran Fibrosis Pulmonari ini, marilah kita terus meningkatkan kesedaran dan memberikan sokongan kepada semua pejuang fibrosis pulmonari. 🫁💙

10/09/2026

🫁 Pulmonary Fibrosis Awareness Month | September 2026

How is pulmonary fibrosis diagnosed?

There is no single test that tells the whole story.

Diagnosing pulmonary fibrosis often involves a combination of investigations including HRCT, blood tests, lung function tests, a 6-minute walk test, and sometimes a lung biopsy.

Together with a multidisciplinary assessment, these investigations help doctors understand the pattern and possible cause of lung fibrosis and guide appropriate management.

Early diagnosis matters. Every breath matters. 💙

This Pulmonary Fibrosis Awareness Month, let’s continue to spread awareness and support our PF Warriors.

Address

Institut Perubatan Respiratori
Kuala Lumpur

Website

https://mypf.org/

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