24/08/2026
Some new research came out this month that we felt was worth sharing, because it looks at three issues that have and do come up again and again in our community, and one (PMDD) that we are diving into in an upcoming resource.
💛 Girls are still being diagnosed later: A Norwegian study looked at information from 2,483 Autistic children and young people. Girls were diagnosed later than boys, and more than half of those diagnosed at 15 or older were girls. The study could not explain all the reasons for that difference, but the finding is important because it reflects what Autistic women and families have been telling us for years: many girls are still not being recognised when they are younger.
https://doi.org/10.1177/13623613261474929
💛 Autistic and ADHD adults were more affected before their periods: Another study looked at 199 adults who menstruate. Compared with people without either diagnosis, the Autistic and ADHD participants reported more premenstrual symptoms, including low mood, irritability and feeling overwhelmed. They also said these changes had a greater effect on work, relationships, social activities and things they needed to do at home. The researchers used a screening questionnaire rather than a full PMDD assessment, so the very high PMDD figures should not be shared as actual diagnosis rates. However, the results support something many Autistic and ADHD people describe: changes before a period can be significant and deserve to be properly recognised, investigated and supported.
https://doi.org/10.1177/17455057261476912
💛 School environments can add to a young person’s distress: A much smaller UK study spoke with 11 Autistic and ADHD students and 12 school staff. Students talked about noise, crowds, sudden changes, rigid rules, feeling misunderstood and the pressure to keep achieving. They also described the difference it made when they had trusted adults, quiet places, sensory tools, more choice and staff who took the time to understand what was happening for them.
https://doi.org/10.1007/s10803-026-07470-6
Just a few limitations to note: all three studies were carried out overseas, two involved small groups, and none gave us a clear picture of gender-diverse or people of other marginalised genders experience the same, so we still need much more Australian research that includes and is shaped by Autistic girls, women and all marginalised genders.
What do you wish there was more research on? 💛