14/08/2026
Following the Select Committee process and thousands of submissions from the community, some important changes have been made to the Disability Support Services Bill.
One key change is to Clause 8. The Bill no longer says family and whānau should be the first point of support before Government funding is available. Instead, it says families are expected to “contribute to care”.
This is a positive step, but we think the clause should go further. Not all family members can provide support or care, and for some people, family support may not be safe or appropriate.
Family care also comes at a cost. When someone reduces their hours or leaves paid employment to provide care, it can reduce household income and contribute to poverty and inequity. Families provide a huge amount of support that would otherwise place greater pressure on Government-funded services, and the funding they receive should reflect the important role they play.
The Bill also now requires the Government to consult with members of the disability community before making significant changes to disability support services.
This is another positive step. People who use disability support services should have a meaningful say in decisions that affect their lives.
But consultation needs to be genuine, accessible and give people enough time to have their voices heard.
There is still more work to do to make sure the Bill protects choice, dignity, autonomy and participation.
Thank you to everyone who spoke up. Thousands of people across the disability community shared their concerns about the Government’s Disability Support Services Bill. These changes show what can happen when our community comes together.
Read our full response to the latest changes via the link in the comments.
Image description: A social tile announcing key changes to the Disability Support Services Bill. The image features Louise Upston speaking at a podium, alongside a screenshot of a Government announcement titled “Disability community informs improvements to DSS Bill”.