Acromegaly - Philippines

29/07/2026

Acromegaly - Philippines would like to extend its warmest greetings to the Founder and President of Acromegaly Community, Ma'am Jill Sisco 🥳

On this special day, we wish you happiness, love, and abundance! 🎈 We're grateful for everything that you've done, and continuously doing in the field of patient advocacy for rare diseases, especially for Acromegaly. 🤗 Enjoy and have a good one! 🎂

25/07/2026

Today, July 25, 2026, Acromegaly - Philippines celebrates its 3rd Founding Anniversary! 🔍

We thank God for the gift of community! 🫂 The group was established to serve as a primary support group for all Filipino acromegaly patients.

Beyond that, we also aim to raise awareness and promote advocacy for acromegaly here in the Philippines. 🇵🇭

In the past three years, we are proud of what we are becoming. Since our organization has been established, we have already been a part of WAPO, an international and global organization for Pituitary Conditions.

We are also grateful to the Acromegaly Community for all the support and assistance they provide to educate all of us in terms of access to medicines, treatment advancements, and research. 🧬

Locally, we would like to acknowledge Philippine Society for Orphan Disorders Incorporated for their utmost support to rare disease patient organizations like ours. 🤗

Way to go! Thank you to all of you who keep us moving forward! With unity and one goal, may we be able to achieve the universal health care that every Filipino and rare disease patients deserve! 🌎

02/07/2026

Acromegaly - Philippines joins the Philippine Society for Orphan Disorders Incorporated and united with the National Council on Disability Affairs in observance of the National Disability Rights Week (17-23 July 2026)

Remember, not all disabilities are visible. Be kind, the people that our world needs today. 🌎

The Philippine Society for Orphan Disorders Incorporated joins the nation in observance of National Disability Rights Week (17-23 July 2026)

This year’s theme, “Rights First, Legislation Forward - Strategic Action for Equal Participation and Inclusive Development,” anchors the week-long celebration in two clear pillars: (1) strategic direction (long-term road map, system reform, right-based governance) and (2) legislative advancements (new laws, amendments, enforcement, closing gaps), aligned with the United Nations Convention on the Rights of Persons with Disabilities (UNCRPD) and national development goals.

Through Republic Act 10747 or the Rare Diseases Act of the Philippines, Filipinos with rare or orphan disorders are considered as PWDs and granted the rights and privileges of PWDs. While ten years have passed since its enactment, there remains a continuing call by the rare disease community for true health equity. Let us work together to ensure that every Filipino, regardless of their condition, has a fair shot at a quality, healthy, and meaningful life.

For more details on National Disability Rights Week activities and updates, follow National Council on Disability Affairs

30/04/2026

Happy Birthday, Dr. Carmencita Padilla! 🥳

Greetings From: Acromegaly - Philippines 🇵🇭

We wish you good health, happiness and abundance on this special day! 😊 We are grateful for the gift of your life and for your invaluable contribution to the Rare Disease Community. 😃 God bless you, Doc! 😇

Ang Philippine Society for Orphan Disorders, Inc. ay bumabati ng isang maligayang kaarawan kay Dr. Carmencita Padilla!

A trailblazer in medical genetics in the country, National Scientist Padilla is the founding chairperson of the Philippine Society for Orphan Disorders. Her remarkable contribution to the rare disease community and the institution of human genetics services in the Philippines have made her a beacon of hope for many in the Philippines.

24/04/2026

Today, people around the world are taking part in World Hormone Day –

When hormones are out of balance or fail, this can lead to chronic diseases such as diabetes, thyroid disorders, cancer, osteoporosis and obesity, and other health challenges such as infertility.

There are also more than 440 rare endocrine conditions that affect millions of people worldwide, but often go undetected.

Acromegaly is one of the rare endocrine conditions which affects the life of every patient. It is primarily caused by the tumor in the pituitary gland which produces excessive growth hormones and affects the function of the other hormones leading to hormonal imbalance.

Despite scientific progress and increased awareness in some areas, there’s still a lot more that can be done.

Let's put hormones in the spotlight on

Find out more: worldhormoneday.org

23/04/2026

Tomorrow is World HormoneDay! We’ll be helping to raise awareness of the vital role hormones play in health and disease –

Hormones affect growth, energy, stress, reproduction and a whole lot more. When they’re out of balance or fail, this can lead to diseases such as diabetes, thyroid disorders, cancer and many rare endocrine conditions. Better awareness means people can do more to protect their health and get diagnosed and treated sooner.

Acromegaly is a rare endocrine condition which is primarily caused by a tumor producing excessive growth hormones in the pituitary gland. We are in solidarity with all the other rare conditions whose hormones are also greatly affected.

Find out more: worldhormoneday.org

08/03/2026

AZ HELPS ACADEMY - MODULE 2
March 5-7, 2026
Luxent Hotel, Quezon City

Acromegaly - Philippines joined the Module 2 of AZ Helps Academy sponsored and organized by AztraZeneca Pharmaceutical Philippines, Inc. The workshop aims to teach the patient advocates, organizations, and different medical professionals to strengthen their advocacy, promote awareness, and attain sustainability in achieving their goals and objectives in their organizations.

Workshops like this truly empower the patient advocates, leaders, and different stakeholders who aim to be the voice of the patients.

Special thanks to AztraZeneca Pharmaceutical Philippines, Inc., to all the speakers during the sessions, and to all the people behind this successful 3-day workshop. We truly appreciate it!

28/02/2026

As we wrap up today's celebration of National Rare Diseases Day, the Philippine Society for Orphan Disorders Incorporated together with rare disease patients, their families and advocates organized the lighting up ceremony of the Fort Santiago in Intramuros, Manila. 💜

We Care for Rare! Thank you Intramuros Administration for joining

Patient members and their families, representatives of patient groups, volunteers gathered to witness the illumination of Fort Santiago, Intramuros. More than 20 sites are also illuminated across the country in support of and National Rare Disease Week Philippines.

Maraming salamat po.

28/02/2026

WORLD RARE DISEASE DAY 2026
February 28, 2026

The month of February is unique being the only month which has only 28 days or 29 days in a leap year. That being said, every last day of February is celebrated as the Rare Disease Day each year.

It is a global advocacy initiative launched in 2008 by EURORDIS and supported by over 65 national alliances and thousands of patient organizations worldwide. Its purpose is to raise awareness about the over 300 million people living with rare diseases globally, many of whom face delayed diagnoses, limited treatment options, and social exclusion.

The World Health Organization (WHO) recognizes the importance of this campaign in promoting equitable access to healthcare, research, and support services for rare disease patients. By spotlighting the challenges of more than 7,000 known rare conditions, Rare Disease Day mobilizes stakeholders—including governments, researchers, clinicians, and the public—to improve policy, funding, and care systems for affected individuals.

Credits: for this infographic.

27/02/2026

Yesterday, February 26, 2026, Acromegaly - Philippines joined the Rare Disease Forum hosted and organized by AstraZeneca 🧬

More Than We Can Imagine: Amplifying voices to strengthen equitable rare disease care in the Philippines. 🇵🇭

We are honored to attend such events like this promoting advocacy and raising awareness for rare diseases in the country.

May we continue to fight for the rights and privileges of every Filipino rare disease patient. 💪