24/02/2026
Equity for rare diseases means MORE HOPE.
Meet Dana, 17, from Batangas, Philippines. She is living with Phenylketonuria (PKU), one of the rare diseases included in the Philippine Newborn Screening panel.
Because of newborn screening, Dana was diagnosed early. With proper medical care, regular follow-ups, and support from healthcare providers and her family, she continues to grow, learn, and pursue her dreams, even sharing her music with the world.
Without early detection, PKU can lead to intellectual disability, behavioral problems, and poor growth. But through timely screening and lifelong care, children like Dana are given a chance at a healthier future.
This is why equity matters.
Equity means access to screening.
Equity means access to treatment and follow-up care.
Equity means no Filipino child is left behind.
This National Rare Disease Week, February 22–28, 2026, we stand with over 300 million people worldwide living with rare diseases.
RARE IS STRONG.
RARE IS MANY.
RARE IS PROUD.
Join us in raising awareness, sharing stories, and calling for more opportunities, more action, and more hope for the rare disease community. Be part of the movement:
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