08/08/2026
💜 Heart disease affects around 2% of pregnant women and is the leading cause of maternal death in the UK.
Despite accounting for more than one third of pregnancy-related deaths, current evidence is limited. A major new NIHR-supported study to transform understanding of cardiovascular disease in pregnancy has launched across the UK with women’s voices at its heart.
The new study, known as PREG-HEART, is being hosted by the The heart hive, and invites pregnant women anywhere in the UK diagnosed with heart conditions to join online and take part from the comfort of home on a smartphone or computer.
By partnering with maternity units serving diverse communities and trusted community organisations like British Heart Foundation, the team will reach women from Black and other minority backgrounds, who experience poorer maternal and neonatal outcomes.
Claire Sheppard, who was diagnosed with heart failure following pregnancy, is part of the research team. She helped shape the study’s design as a patient contributor and expert-by-experience.
Claire said: “So little is known about heart disease in pregnancy, my diagnosis was delayed and my life was put at risk. PREG-HEART gives women like me the chance to change that by helping researchers build the evidence needed to improve care for future mothers.”
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