IFPA

Global leader in fighting psoriatic disease

Vision

A future where all people living with psoriatic disease enjoy good health and wellbeing, free from stigma and preventable disability and comorbidities

Mission

Unite, strengthen and lead the global psoriatic disease community to improve the lives of all people affected by psoriatic disease.

18/09/2026

Every treatment or medicine we use today once started with a clinical trial.

But not everyone has had the same chance to take part. Many groups have long been underrepresented in clinical research, including Black, Hispanic and Asian populations, and also pregnant, older adults, people with disabilities and those living in rural and underserved areas and many more.

Why is this happening? What obstacles and systemic barriers keep people from participating in clinical trials that could benefit them?

These are some of the questions we’ll unpack in our upcoming webinar: Until No One is Left Behind — From Barriers to Solutions: How Can We Make Clinical Trials More Inclusive?

Join the discussion on what needs to change to make clinical research more inclusive and better reflect the populations it is meant to serve. Registration to the webinar is mandatory.

📅 September 22
⏰15:00–16:00 CEST

Register — link in first comment 👇

18/09/2026

This year, our World Psoriasis Day campaign is focusing on youth. 💜

We're bringing young people's stories into the spotlight.

Meet Abhinand Krishnashankar, who shares his journey of living with psoriasis, navigating his diagnosis, redefining his identity, and finding his way forward.

🎥 Watch Abhinand's story when it premieres on September 21. Save the date.

17/09/2026

What happens when science, innovation and the patient voices come together?

8th World Psoriasis and Psoriatic Arthritis Conference is a unique opportunity for scientists, researchers, healthcare professionals and patient advocates from around the world to come together and engage with the critical issues affecting people living with psoriatic disease.

Why attend?
🔬 Discover cutting-edge research in psoriasis and psoriatic arthritis
🌍 Deepen understanding of psoriasis and its comorbidities
💡 Meet the world’s leading researchers in the field and beyond
🤝 Connect with patient advocates from around the world

Don’t miss out on this unique chance to be part of the global psoriasis and psoriatic arthritis community.

📢 Registration is open.
📅 Abstract submission opens Oct 1.

👉 Read more and register here: https://eu1.hubs.ly/H0ypQH50

16/09/2026

📢 The registration to the 8th World Psoriasis and Psoriatic Arthritis Conference is officially underway!

Don’t miss your chance to explore the latest research and innovation within psoriasis and psoriatic arthritis and beyond.

📍 Waterfront Congress Centre, Stockholm, Sweden
📅 20–22 May 2027

👉 Read more and register here: https://eu1.hubs.ly/H0ylwwz0

15/09/2026

🌍Today, we launch IFPA’s World Psoriasis Day 2026 campaign, dedicated to young people living with psoriasis.

This year's campaign has been co-created with a diverse global group of young health advocates, living with psoriasis. Many thanks to them for sharing their stories and inspiring their peers to speak up.💜

The slogan is a call for society to see the whole person beyond their condition, to embrace young people for who they are and take their experiences seriously.

Over the coming weeks, we will share the stories of young people living with psoriasis around the world, who will tell how the disease shaped their lives and what they want others to understand.
Stay tuned!

Special thanks to in Sweden for their support and guidance in development of the campaign.

14/09/2026

Four days of science, conversations and new connections in Heidelberg!

From 9–12 September, IFPA joined the European Society for Dermatological Research (ESDR) Annual Meeting, bringing the patient perspective into one of Europe’s leading gatherings for dermatology research.

At our booth in the Patient Organizations Village, together with Anette Meyer, from Deutscher Psoriasis Bund e.V. (German Psoriasis Association), Raquel Vaz, representing IFPA, had the opportunity to meet researchers, healthcare professionals, patient organizations, partners and friends from around the world.

We had a chance to present IFPA's research and advocacy work for people living with psoriasis and psoriatic arthritis, and spread the word about the 8th World Psoriasis and Psoriatic Arthritis Conference ( ), taking place 20–22 May 2027 in Stockholm.

ESDR offered four packed days of research and discussion. Among the topics that caught our attention were new insights into generalized pustular psoriasis (GPP), genetic and environmental risk factors in psoriasis, and the latest research exploring how earlier treatment may influence the long-term course of psoriasis.

Another important discussion focused on the psychological and sexual health impact of psoriasis. While awareness among dermatologists is high, discussing these topics with patients remains a challenge.

We were also pleased to take part in this year’s International Psoriasis Council Research Incubator, bringing researchers together to explore topics within psoriasis and eczema and identify areas for future research.

Thank you to ESDR for a fantastic meeting and for making patient organizations such a valued part of the congress. And thanks to the patient organizations in the Village for the conversations, ideas and positive energy — including DEBRA International, Eczema UK, GlobalSkin, Pachyonychia Congenita Project and VIPOC, and especially our booth partners at Deutscher Psoriasis Bund e.V.

We leave Heidelberg with new knowledge, new connections and plenty of inspiration to bring back into our work for people living with psoriatic disease.

11/09/2026

Just 3% of participants across psoriasis clinical trials worldwide were Black.

So who gets included in clinical research and who gets left out?
🔎 How do clinical trials actually work?
🙋 What is it really like to take part?
🌍 Do clinical trials reflect the people who will eventually use the treatments?
🤝 How can we make sure everyone who could benefit has the chance to take part?

Join our webinar — Clinical Trials Demystified: Everything You Wanted to Know About Clinical Trials (But Were Afraid to Ask) and bring your questions.

📅 September 18
⏰10:00–11:00 CET

🔗 Register now! Link in the first comment 👇

10/09/2026

You can't always see when someone is struggling.

On , it's important to remember that the toughest struggles are often invisible.

Over 100 million people live with psoriasis worldwide. Around third of them experience their first symptoms in childhood or teenage.

Young people living with psoriasis are more likely to experience anxiety, depression and suicidal thoughts than their peers. Yet what others often see, is just their skin.

That's why this year's World Psoriasis Day campaign calls to

Look beyond the visible symptoms. Look beyond the assumptions. See the real person behind their condition.

Being seen, heard and understood can make a big difference. 💜

09/09/2026

What comes after IFPA Forum Africa? A Roadmap for what needs to change — and an Action Playbook for how to get there.

In May 2026, IFPA Forum Africa brought people living with psoriatic disease, patient organizations, healthcare professionals, experts and partners together in Nairobi to discuss gaps in psoriatic disease care across Africa and identify practical ways forward.

Now, two new resources are available:

📍 The Roadmap sets out key advocacy priorities for improving psoriatic disease care across Africa, with practical approaches that can be adapted to different national contexts.

🛠️ The Action Playbook focuses on how to turn those priorities into action, with tools, tactics and real-world examples from Africa and other continents.

👉 The Roadmap and Action Playbook are now available on our website. Explore and download here: https://eu1.hubs.ly/H0y9rVT0

08/09/2026

Some of the most important conversations are often the hardest to have.

Series 2 of Beyond The Flare launches later this month, continuing to explore the realities of living with psoriatic disease through lived experiences, expert perspectives and stories that often go untold.

Until then, catch up on Series 1:
https://eu1.hubs.ly/H0y7HzG0

Adress

Slottsbacken 8
Stockholm
SE-16751

Webbplats

http://www.ifpa-pso.com/

Aviseringar

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Utvald

Sponsrad
2Heal Medical
Drottninggatan 101

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Dela

Typ

Medicin och hälsa