14/06/2023
LINK IN BIO If you want to "be the change you want to see in the world" here is an opportunity for you:
This cause very close to my heart. Max is a wonderful, playful and smart baby and when I had the pleasure of meeting him and his amazing parents we discussed this brain generative disease he has been diagnosed with after experiencing seizures. There is something that CAN be done to help. You are being called to help us help Max and other babies who will be diagnosed with Alexander disease.
There are currently scientists working to give Max a chance to live. A chance to survive. It's unimaginable for us to be in a position where money and scientific developments are the difference between whether our son lives or does not.
one click and every donation is a step closer to safety for Max
https://www.gofundme.com/f/help-max-find-a-cure-for-alexander-disease
Although you may not have heard of Alexander Disease, it's a devastating degenerative condition which currently has no cure. Gene therapies offer an opportunity and you can be a part of the Professors and Doctors ability to make this happen.
Max's parents are working tirelessly with medical research institutions in the USA, UK and Sydney to get him into a potential trial and the more money & shares we can raise, the more likely this absolutely critical ongoing research can bring a treatment to market.
Just in the last week alone (since this poster was put together) a researcher Professor Xie has stated that their Gene Vector therapy is working in rats.
So what can I do?
โ๏ธโ๏ธโ๏ธSentosa buddies head down to this Family Day โ๏ธโ๏ธโ๏ธ
๐๐ผ๐๐ผ๐๐ผPlease donate, please share and let this resonate with you ๐๐ผ๐๐ผ๐๐ผ
Thank you so much