11/08/2026
โ๐๐ง ๐ฎ๐บ ๐ธ๐ฆ๐ข๐ฌ๐ฏ๐ฆ๐ด๐ด ๐ค๐ข๐ฏ ๐ฃ๐ฆ ๐ด๐ต๐ณ๐ฆ๐ฏ๐จ๐ต๐ฉ ๐ง๐ฐ๐ณ ๐ฐ๐ต๐ฉ๐ฆ๐ณ๐ด, ๐ช๐ง ๐ ๐ค๐ข๐ฏ ๐ฉ๐ฆ๐ญ๐ฑ ๐ฐ๐ต๐ฉ๐ฆ๐ณ๐ด, ๐ธ๐ฉ๐บ ๐ฏ๐ฐ๐ต?โ
Yessika Sutawijaya, 45, was diagnosed with Neurofibromatosis type 1 (NF1), a rare genetic condition that causes tumours, most of which are benign, to grow along nerve tissues. The benign tumours in her left leg grew larger over time, affecting her mobility and appearance. In 2023, she was diagnosed with breast cancer and has since completed treatment.
It took decades for Yessika to meet another person with NF1. The experience inspired her to co-found the Neurofibromatosis Society Singapore (NFSS) so others with the rare condition can find the support and community she never had. ๐ซ
In an interview with CNA Women, Yessika shares her journey growing up and living with NF1 and how her experience inspired her to co-found NFSS, a patient-led community supporting people and families living with NF.
Read the full story to learn more about Yessikaโs journey and her hopes for the NF community. ๐
Find out more about NF1 here - https://www.nccs.com.sg/our-specialties/cancer-genetics-service/neurofibromatosis-type-1
Find out more about genetic testing at NCCS here - https://www.nccs.com.sg/our-specialties/cancer-genetics-service
It took decades for Yessika Sutawijaya to meet another person with neurofibromatosis. The experience inspired the 45-year-old to co-found a support group so others with the rare condition can find the support and community she never had.