Children's Craniofacial Association

Children's Craniofacial Association The mission of the Children’s Craniofacial Association is to support and inspire individuals and families affected by facial differences.
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CCA envisions a world where all people are accepted for who they are, not how they look.

We are please to share this research opportunity for Parents of Children with Cleft, ages 3-6: the ICEEFT “Couples with ...
06/06/2026

We are please to share this research opportunity for Parents of Children with Cleft, ages 3-6: the ICEEFT “Couples with Newborns Navigating the challenges of Cleft (CONNECT)” research project.

This project will adapt and pilot an existing couples’ therapy intervention to improve relationship satisfaction and psychological health in parents of infants with cleft lip and/or palate.

The project runs from February 2026 to July 2027.

If you are interested, please email [email protected].

06/04/2026


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𝐌𝐄𝐄𝐓: Adele Capitella-Liu

WATCH HERE:
https://youtu.be/AHD5w3UsHsc?si=lknDKB-cSCxhQ-Kg

Facebook Community: https://www.facebook.com/groups/facialdifferenceadults

Adele is a creative and dreamer. She was born and raised in Brooklyn, New York. A phoenix of sorts who rose above the tribulations of experiencing domestic violence at a young age. Focused on education, Adele survived the New York City Public School system. She continued her education that cumulated with a master's degree in elementary education. Adele worked in the inner-city schools of NYC for most of her career. A secondary career led to her working with special needs children and teens in the foster care system. Adele has two adult daughters and is widowed now for 8 years. She survived a bout of breast cancer and is now living carefree in remission. Adele has an orphan disease known as Parry-Romberg Syndrome. PRS is a progressive hemi-facial atrophy. Adele is the admin for the Adult Facial Difference Community on Facebook. Currently, there are over 500 members from all over the world. Her vision is to host annual retreats for young adults and adults with facial differences. The joy of community gathering together to break bread is an unparallel experience when you are among your peers. In addition, Adele adores travelling, painting, arts and crafts, candle-making, biking and walking. She also enjoys writing poetry as it gives voice to her soul's internal longings.

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💛𝘏𝘦𝘭𝘱 𝘶𝘴 𝘵𝘰 𝘤𝘰𝘯𝘵𝘪𝘯𝘶𝘦 𝘱𝘳𝘰𝘥𝘶𝘤𝘪𝘯𝘨 𝘤𝘰𝘯𝘵𝘦𝘯𝘵 𝘭𝘪𝘬𝘦 𝘵𝘩𝘪𝘴, 𝘣𝘺 𝘥𝘰𝘯𝘢𝘵𝘪𝘯𝘨 𝘵𝘰𝘥𝘢𝘺:⁣
https://link.edgepilot.com/s/064d4b2f/CEB4oD68h0y-6RSCtDOotQ?u=https://ccakids.org/donate/
⚪ 𝐏𝐚𝐲𝐏𝐚𝐥: [email protected]⁣
⚪ 𝐙𝐞𝐥𝐥𝐞: [email protected]⁣
⚪ 𝐅𝐚𝐜𝐞𝐛𝐨𝐨𝐤/𝐈𝐧𝐬𝐭𝐚𝐠𝐫𝐚𝐦: /ccakids

LAST CHANCE! Send a message to Annie for her Retirement Celebration! See link below:https://ccakids.dm.networkforgood.co...
06/03/2026

LAST CHANCE!
Send a message to Annie for her Retirement Celebration! See link below:
https://ccakids.dm.networkforgood.com/forms/annie-reeves-retirement-tribute

We will be honoring Annie Reeves, Program Director, for her 22 Years of Service to CCA! Please share your well wishes, memories, and thanks to her at the link above.

The notes will be presented to her at Retreat 2026
*** THE DEADLINE FOR SUBMISSIONS IS JUNE 5 at Midnight ***

We are saddened to learn of the passing of our beloved mentor and friend, 𝐃𝐚𝐯𝐢𝐝 𝐑𝐨𝐜𝐡𝐞, 𝐂𝐌, on Wednesday, May 27, 2026.⁣⁣...
06/01/2026

We are saddened to learn of the passing of our beloved mentor and friend, 𝐃𝐚𝐯𝐢𝐝 𝐑𝐨𝐜𝐡𝐞, 𝐂𝐌, on Wednesday, May 27, 2026.⁣⁣
CCA and the facial difference community mourn the loss of our magnificent, storied, accomplished, kind, gentle, powerful, consistent, and loving advocate. ⁣⁣
⁣⁣
David was so much more than an advocate. He was a true friend. A force of change and a place of calm. He was forever amplifying the voices of our community. ⁣⁣
He worked systematically and individually. For all of the ways he served, we are grateful. For all of the hearts he touched, we are better off.⁣⁣
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May we all endeavor to live like David: embracing warmth, wit, and authenticity in our own lives.⁣⁣
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Our hearts are with his wife, 𝐌𝐚𝐫𝐥𝐞𝐧𝐚 𝐁𝐥𝐚𝐯𝐢𝐧, and his family at this time. ⁣⁣

Our friends at Choose-Kindness have opened registration for their camp!Kenzie's Camp is a one of a kind experience for ...
05/31/2026



Our friends at Choose-Kindness have opened registration for their camp!

Kenzie's Camp is a one of a kind experience for kids a teens with Craniofacial differences- a place to make friends, build confidence and celebrate exactly who you are.

This year, thanks to their incredible sponsors, they have scholarship funds available, including support for travel expenses.

Have any questions or need help applying? Contact Shelbie, our Camp Director at (860) 817-7512.

CAREGIVERS! JOIN US THIS WEDNESDAY!! ⁣CCA caregivers and care partners, Wednesday 𝐚𝐭 𝟕:𝟎𝟎𝐩𝐦 𝐂𝐒𝐓 this week for our caregi...
05/31/2026

CAREGIVERS! JOIN US THIS WEDNESDAY!! ⁣

CCA caregivers and care partners, Wednesday 𝐚𝐭 𝟕:𝟎𝟎𝐩𝐦 𝐂𝐒𝐓 this week for our caregiver support circle in partnership with ConnectMed International

Talk about hot topics you encounter as a caregiver or care partner, tips on kickstarting a mindfulness practice, and more!⁣ We come together monthly to cheer each other on through life's ups and downs of being a caregiver and/or parent in our community.

Sign up and receive the Zoom link at this registration link https://ccakids.dm.networkforgood.com/forms/caregivers-signup-form

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[Image description: White background with yellow water color effect and purple title font that reads: 'Caregiver Support Group' with a brown font tab that reads: Wednesdays* *1st Wednesday of the Month 7:00pm CST. An image of two parents with their kids on the left and a picture of staff member Kara, and a logo of ConnectMed International to the right.]

**VOLUNTEERS IN ORLANDO, FL NEEDED**Are you a photographer or videographer based in Orlando, FL?! Interested in assisti...
05/29/2026

**VOLUNTEERS IN ORLANDO, FL NEEDED**

Are you a photographer or videographer based in Orlando, FL?! Interested in assisting us capture memories at our 2026 Retreat?

For more information or to sign up please visit:
https://ideali.st/avExm2

05/28/2026


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𝐌𝐄𝐄𝐓: Arielle

WATCH HERE:
https://youtu.be/KHU4XL4KbGw

Arielle Brathwaite is born and raised in Barbados with Apert Syndrome. She aspires to be Special Ed Instructor. "I believe my story can encourage others who may have the same diagnosis as me for other characteristics/ other facial differences. My hope is to encourage the audience, you are not alone, always strive to be the best you can be, keep reaching to the star"

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💛𝘏𝘦𝘭𝘱 𝘶𝘴 𝘵𝘰 𝘤𝘰𝘯𝘵𝘪𝘯𝘶𝘦 𝘱𝘳𝘰𝘥𝘶𝘤𝘪𝘯𝘨 𝘤𝘰𝘯𝘵𝘦𝘯𝘵 𝘭𝘪𝘬𝘦 𝘵𝘩𝘪𝘴, 𝘣𝘺 𝘥𝘰𝘯𝘢𝘵𝘪𝘯𝘨 𝘵𝘰𝘥𝘢𝘺:⁣
https://link.edgepilot.com/s/064d4b2f/CEB4oD68h0y-6RSCtDOotQ?u=https://ccakids.org/donate/
⚪ 𝐏𝐚𝐲𝐏𝐚𝐥: [email protected]⁣
⚪ 𝐙𝐞𝐥𝐥𝐞: [email protected]⁣
⚪ 𝐅𝐚𝐜𝐞𝐛𝐨𝐨𝐤/𝐈𝐧𝐬𝐭𝐚𝐠𝐫𝐚𝐦: /ccakids

Send a message to Annie for her Retirement Celebration! See link below:https://ccakids.dm.networkforgood.com/forms/annie...
05/26/2026

Send a message to Annie for her Retirement Celebration! See link below:
https://ccakids.dm.networkforgood.com/forms/annie-reeves-retirement-tribute

We will be honoring Annie Reeves, Program Director, for her 22 Years of Service to CCA! Please share your well wishes, memories, and thanks to her at the link above.

The notes will be presented to her at Retreat 2026
*** THE DEADLINE FOR SUBMISSIONS IS JUNE 5 at Midnight ***

Address

15851 N. Dallas Pkwy. , Ste. 245
Addison, TX
75001

Opening Hours

Monday 8am - 4:30pm
Tuesday 8am - 4:30pm
Wednesday 8am - 4:30pm
Thursday 8am - 4:30pm
Friday 8am - 4:30pm

Telephone

+12145709099

Website

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