Cure GM1 Foundation

09/09/2026

Add the Do It For GM1 frame to your profile photo and help us spread the word! Then create a GiveButter campaign and join the team for 2026.
JOIN: curegm1.org/do-it-for-gm1

09/08/2026

Follow Cure Kinley & Kennedy and see how their team is doing it for GM1 to support enzyme replacement therapy!

GIVE: https://givebutter.com/do-it-for-gm1-in-2026/kylieharrison

Day 8! ✔️

I haven’t been this strong in a long while!!!

Plus, I did some cardio today too (which is still tough after having my ACL and meniscus put back together last October) 🤪

But I’m doing this for GM1 💪🏃🏼‍♀️🏋️‍♀️🚴🏻‍♀️🧬

The goal is to get these kids enzyme replacement therapy and a better life!
Cure GM1 Foundation
Kylie Harrison
Kyle Harrison

Please consider donating to a great cause ⤵️

09/08/2026

WE ARE OFF TO AN INCREDIBLE START! 💙
Week 1 of our Do It For GM1 campaign is officially underway, and your energy is already driving hope in motion! Thanks to this amazing community, here is where we stand:

🎯 Total Raised: $6,636 of our $10,000 Goal
🏃 Active Teams: 10 Teams Doing It For GM1!

A huge shoutout to our 10 kickoff teams for leading the charge. Whether you’re running, walking, baking, or sharing our posts, every single action brings us closer to funding critical research and supporting families affected by GM1.

How you can help us hit our next milestone:

🔹 Already have a page? Keep sharing your progress and page link with friends and family!
🔹 Haven't joined yet? Click the link below to launch your page, join a team, or make a donation today.
🔗 https://givebutter.com/do-it-for-gm1-in-2026

09/08/2026

Today we remember sweet baby Gael.

Though his time here was far too short, his life mattered deeply. Gael will always be loved, always be remembered, and always be part of the GM1 community.

We hold his family close in our hearts today and honor the love and light he brought into this world.

09/07/2026

“These have been very difficult days, not knowing how long God will allow us to have her by our side. So far, the most noticeable sign of her disease is hypotonia. We love seeing her smile, holding her in our arms, giving her all our love, and making sure she feels that she is a little girl who is deeply loved by her family.”
-Victoria’s Mom
LEARN MORE: curegm1.org/about-gm1

09/06/2026

My birthday is this month. I don't want anything.

What I want is for GM1 gangliosidosis to have a treatment before it takes another child. Right now it doesn't have one. Not for the infantile form, not for the late infantile, not for the juvenile form my daughter Iris lives with.

So I'm doing what I do every year. I'm asking.

My goal is $2,000 for Cure GM1. Three people have given so far and we're at $750. That leaves $1,250 and 27 days.

GIVE: https://tinyurl.com/2ck2nsm3
( turn off the GiveButter tip or donate here for no fee https://www.paypal.com/us/fundraiser/charity/1742791)

If you've ever wondered what to get me, this is it. Any amount. $10 counts.

09/05/2026

Walking this path together 💙

Just a few days into our campaign and we are already blown away by the incredible wave of community support! Whether you’re running, cycling, baking, painting, or sharing your story, every effort helps lift up this community.

We see you, we are cheering for you, and we are here to support you 💙

Let us keep this momentum going!

Visit https://givebutter.com/do-it-for-gm1-in-2026 or scan the QR code to participate, donate, and help us drive change!

09/04/2026

Donate to Cure Kinley & Kennedy's Do It for GM1 fundraiser! See the link in comments. Start the holiday weekend by supporting a critically important cause!

Kinley got her workout in today 💪

We’re hoping to raise $5,000 for the Cure GM1 Foundation this month…Please consider supporting us in getting in better shape for the “Do it for GM1” campaign or even start your own campaign.

Workout #4 ✔️✔️ for mom and dad today

See below⤵️