07/29/2026
🦷 XLH Community: We need your voice TODAY! 🦷
If you or a loved one is living with XLH, then you know that spontaneous dental abscesses and massive unmet dental care costs are some of the hardest challenges that the XLH Community face. Today, we have a powerful chance to change this - but WE NEED YOU to TAKE ACTION.
We are calling on all members of the XLH Network and their loved ones to support the Ensuring Lasting Smiles Act (ELSA)!
📜 What is the ELSA Act? The goal of the Ensuring Lasting Smiles Act (ELSA) is to provide health insurance benefits for outpatient and inpatient treatment related to any congenital anomaly, like X-Linked Hypophosphatemia (XLH). This bill ensures that any procedure related to restoring function or appearance due to a birth defect or any congenital anomaly would be covered by insurance from birth until function is restored.
⏱️ It Takes Less Than 2 Minutes to Help:
1️⃣Click the link to use the online ELSA Advocacy Tool.
2️⃣Fill out your basic information.
3️⃣Add your personal story (optional, but highly encouraged!) to explain why dental coverage is critical for XLH patients.
4️⃣Hit submit! (Technically, you hit "Send Email" - but, you get it! Easy peasy)!
The online ELSA Advocacy Tool automatically formats a template and emails your specific Congressmen and Senators for you - it seriously could not be easier! You can be the change.
Over 70 patient advocacy and healthcare organizations are already backing this bill so let's make sure the XLH community is heard loud and clear on Capitol Hill! 📢💜💙
👉ELSA Advocacy Tool: https://ujoin.co/campaigns/2473/actions/public?action_id=5391 👈
