Spina Bifida Association of Georgia-Tennessee

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Arlington, VA
Spina Bifida Association of Georgia-Tennessee

Since 1976, dedicated to enhancing the lives of all those affected by Spina Bifida in GA and TN.

Spina Bifida Association of Georgia-Tennessee (SBAGTN) works to support individuals with Spina Bifida as they reach their goals and pursue a fulfilling lifestyle. As a group of parents, dedicated professionals, and adults as well as children with Spina Bifida, we work collectively to promote the prevention of Spina Bifida while raising awareness of those affected with this birth defect. Furthermor

e, SBAGTN is working to support families and individuals with Spina Bifida, and we seek to provide information and education throughout the states of Georgia and Tennessee.

08/07/2026

💙 Better care starts with better education.

When you support Walk-N-Roll, you're helping the Spina Bifida Association equip healthcare providers with the knowledge they need to better serve adults living with Spina Bifida.

Through SBA's primary care curriculum, providers learn how to:
✔️ Understand the unique healthcare needs of adults with Spina Bifida
✔️ Recognize when specialist referrals are needed
✔️ Improve communication by addressing cognitive and health literacy challenges
✔️ Support access to preventive screenings in accessible healthcare settings

By strengthening the knowledge of primary care providers, we're helping improve access to quality care and better health outcomes for adults with Spina Bifida.

Join us in making an impact. Register for Walk-N-Roll today: https://vist.ly/5dyw2

08/07/2026

⏰ Today is the final day to share your story.

If you or a loved one has been impacted by access to urologic or ostomy supplies, now is the time to speak up.

Your story can help lawmakers understand what's at stake. The proposed CMS competitive bidding program could limit product choice, delay access to medically necessary supplies, and force substitutions that may not meet an individual's unique needs.

The right supplies help prevent complications such as UTIs, kidney damage, skin issues, pain, and hospitalizations—and support independence and quality of life.

Don't miss this opportunity to make your voice heard. Comment below or send us a DM before the end of the day.

Your story may be featured in a thumbnail page of testimonials included in advocacy packets for members of Congress, as well as future advocacy social media posts, helping ensure lawmakers hear directly from the people and families they represent.

Every story matters. Every voice makes a difference.

08/06/2026

🎉 Nashville and the greater Nashville area, we're excited to share that the location is set!

Join us for the 2026 Walk-N-Roll for Spina Bifida at Charlie Daniels Park in Mt. Juliet.

📅 Saturday, October 10, 2026
📍 Charlie Daniels Park
1075 Charlie Daniels Parkway
Mt. Juliet, TN

Registration is open! Now's the perfect time to register, create your fundraising page, and invite your friends, family, and coworkers to join your team. Every step, roll, and dollar raised helps support the Spina Bifida community.

👉 Register today: https://vist.ly/5duh3

We can't wait to see you in October!

08/06/2026

Your Voice Can Help Build More Inclusive Playgrounds. 🛝💙

Did you know that inclusive playgrounds benefit all children? They create opportunities for kids of all abilities to play, learn, build friendships, and grow together.

If you've ever wanted to advocate for more accessible play spaces in your school or community, this session is for you.

Join us to learn practical strategies for working with schools, parks departments, and community leaders to help make inclusive play a reality for children with Spina Bifida and other disabilities.

📅 August 20, 2026
⏰ 7 PM ET | 6 PM CT | 5 PM MT | 4 PM PT
🔗 Register today: https://vist.ly/5cnje

08/05/2026

We're excited to recognize Coloplast as the 2026 Walk-N-Roll Season Snack Sponsor! 🎉

As our Season Snack Sponsor, Coloplast's support will be recognized at the snack table during every Walk-N-Roll event throughout the season.

We're grateful for partners like Coloplast whose commitment helps make Walk-N-Roll possible and helps strengthen the Spina Bifida community.

💙 Join us in thanking Coloplast in the comments, then register, donate, or start a team to help create a better and future for all those impacted by Spina Bifida.

🔗https://vist.ly/5dqpq

08/05/2026

⏰ Only 2 days left to share your story!

The proposed CMS competitive bidding program could limit access to the urologic and ostomy supplies that people with Spina Bifida rely on every day.

Delays in receiving supplies, fewer product choices, or being forced to switch to products that don't meet your needs can have serious consequences—including UTIs, kidney damage, skin complications, pain, loss of independence, and even hospitalization.

Whether you're a person living with Spina Bifida, a family member, caregiver, clinician, or supporter, your voice can help educate members of Congress about what's at stake.

📣 Share your story by August 7. Comment below or send us a DM to tell us why protecting access to medically necessary supplies matters to you.

Your story may be included in advocacy materials shared with members of Congress and featured in future advocacy social media posts. If shared, only your first name and last initial will be used.

Together, we can help ensure lawmakers hear directly from the people, families, and communities whose lives depend on access to the right supplies.

08/02/2026

🚨 Your voice can make a difference.

For people living with Spina Bifida, having access to the right urologic and ostomy supplies isn't a convenience—it's essential to staying healthy, independent, and active.

A proposed CMS competitive bidding program could reduce access to the catheter and supplies that best meet your unique needs. Being forced to switch products or experiencing delays in receiving supplies can put your health at risk.

The consequences can include:
• Urinary tract infections (UTIs)
• Kidney damage
• Skin breakdown and complications
• Leaks and discomfort
• Pain and loss of independence
• Preventable hospitalizations

Congress needs to understand what's at stake for individuals and families in the Spina Bifida community.

📣 Share your story by August 7. Comment below or send us a DM to tell us why access to the right supplies matters to your health, independence, and quality of life. By speaking up, you're not only advocating for yourself—you’re helping protect access to essential supplies for your friends and others across the Spina Bifida and disability community.

08/01/2026

📚✨ Today’s the day! ✨📚

Join us tonight at 7 PM ET for a special family-friendly webinar with Kelly Jeffers, author of I Might Be Just a Little Bit Different! 💙

Bring your children and join Kelly as she reads her inspiring book, shares her journey living with Spina Bifida, and answers questions from attendees.

Through her story, Kelly shares a message of hope, love, and determination while celebrating the beauty of what makes each of us unique.

💙 We can’t wait to see you there!

Join us on Zoom:
https://vist.ly/5d97k

07/31/2026

💙 Walk-N-Roll fuels advocacy.

Every dollar raised through Walk-N-Roll helps advance the Spina Bifida Association's mission, including advocacy efforts that empower individuals, families, and healthcare providers to make their voices heard.

Thanks to your advocacy, $7.5 million in federal funding was secured this year for the National Spina Bifida Program, which supports research, improves clinical care, identifies best practices through the National Spina Bifida Patient Registry, and helps improve health outcomes for people living with Spina Bifida.

When you register, fundraise, and support Walk-N-Roll, you're doing more than participating in an event—you’re helping advance research, improve care, and create lasting change for the Spina Bifida community.

Join us at Walk-N-Roll and help fuel the advocacy that moves our mission forward. Register today: https://vist.ly/5d7rr

07/30/2026

Your Advocacy Can Make a Difference

The proposed CMS competitive bidding program could limit access to the urologic and ostomy supplies that people with spina bifida rely on every day.

Limiting product choice, delaying access, or requiring substitutions can have serious consequences, including UTIs, kidney damage, skin complications, pain, loss of independence, and even hospitalization.

Whether you're a person with spina bifida, family member, caregiver, clinician, or supporter, your voice can help educate members of Congress about what's at stake.

Share your story—or tell us why protecting access matters to you—by August 7. Comment below or send us a DM.

Your story may be featured in a thumbnail page of testimonials included in advocacy packets for members of Congress, as well as future advocacy social media posts supporting efforts to protect access to medically necessary urologic and ostomy supplies. Only first name and last initial will be used when your story is shared.

Together, we can help ensure lawmakers hear directly from the people and communities they represent

Address

2000 Duke Street, Suite 300
Arlington, VA
22314

Opening Hours

9am - 5pm

Telephone

+12029443285

Website

https://www.spinabifidaassociation.org/chapter/sbagatn/

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