ALK Positive

ALK Positive Improving the life expectancy and quality of life for ALK-positive cancer patients worldwide.

June is a special month for the ALK-positive community. In 2023, ALK-positive Awareness Month was officially declared i...
06/05/2026

June is a special month for the ALK-positive community.

In 2023, ALK-positive Awareness Month was officially declared in memory of Gina Hollenbeck — a beloved patient, advocate, and light in this community whose legacy continues to inspire everything we do. June was chosen to honor her, and this month carries her spirit forward.

There is a story of two prisoners looking out the same small window from the same cell.
One looked down and saw mud. The other looked up and saw stars.

When you receive a cancer diagnosis, life can feel exactly like that cell. The weight of
uncertainty is heavy. And in those moments, the choice of where to look can make all
the difference.

Gina Hollenbeck chose to look at the stars — and she used those three words “Mud or Stars” to guide her own journey through ALK-positive cancer. A reminder to keep that bright perspective, to keep pushing forward, to keep believing in what is possible.
Her family still lives by that motto today.

Throughout June, we are working to accelerate research, support clinical trials, advance patient-led innovation, and strengthen programs serving the global ALK-positive community.


Gina will always be our reminder to keep looking up. 💙

Donate Now: https://secure.qgiv.com/event/fuelthecure/

Worth checking out the ElevateLungCancerCare.com hub - developed by Nuvalent in collaboration with The ROS1ders LUNGevit...
06/05/2026

Worth checking out the ElevateLungCancerCare.com hub - developed by Nuvalent in collaboration with The ROS1ders LUNGevity Foundation, GO2 for Lung Cancer, LCFA: Lung Cancer Foundation of America, Lung Cancer Research Foundation and International Association for the Study of Lung Cancer STARS.

Full of great resources👉https://elevatelungcancercare.com/

It was thrilling to be at to see Dr Vincent Lam present this exciting and important study. Thank you Dr Lam for leadin...
06/03/2026

It was thrilling to be at to see Dr Vincent Lam present this exciting and important study. Thank you Dr Lam for leading this, thank you to all the members of our ALK+ lung cancer community participating in this study and to all donors. We need clinical trials today to find tomorrow's breakthroughs.

🚀 June is ALK-positive Awareness Month, and today we are officially launching — our 2026 campaign to help fuel the nex...
06/01/2026

🚀 June is ALK-positive Awareness Month, and today we are officially launching — our 2026 campaign to help fuel the next frontier in ALK-positive cancer research.

This month, we have one mission: to raise $650,000 to support research, clinical trials, patient-centered innovation, and critical programs for those living with ALK-positive cancer.

Thanks to this incredible community, we have already raised more than $60,000 toward that goal. And for a limited time, a group of dedicated donors has stepped forward to match every gift, dollar for dollar.

We are not just funding research. We are fueling the future.

Learn more and donate to help fuel the cure today.
👉 https://secure.qgiv.com/event/fuelthecure/

We’re kicking off ALK-positive Awareness Month in a big way - and we want you there.Join us for a special ALKtALK with C...
05/30/2026

We’re kicking off ALK-positive Awareness Month in a big way - and we want you there.
Join us for a special ALKtALK with Christine Lovly, MD, PhD - ALK Positive Scientific Advisory Board member, fierce advocate, and leading researcher for the ALK-positive community. We will be broadcasting live and in person from the American Society of Clinical Oncology (ASCO) Annual Meeting, where some of the biggest advances in cancer research are unveiled.

📅 Saturday, May 31, 2026
🕖 7:00 PM ET
📍 Live on Zoom, straight from ASCO
Dr. Lovly will break down the most exciting updates from ASCO and what they mean for the ALK-positive community, giving you a front-row seat to the latest science right as it’s happening.

This is your chance to hear cutting-edge research translated directly for patients, carepartners, advocates, and supporters - and to launch ALK Positive Awareness Month together, empowered and informed.

Whether you’re newly diagnosed, a longtime advocate, or somewhere in between - this one’s for you.

This session will be recorded and made available on the ALK Positive, Inc. YouTube channel for those unable to attend live.

05/29/2026

The 7-year CROWN data just dropped live at . 💥

So what does this mean for the ALK+ community?

Some members of our organization share the standout moments from the new lorlatinib data — from long-term progression-free survival and brain protection to why biomarker testing matters.

For our community, research matters. 💙

Be sure to save the date and join us this Sunday, 31 May at 7pm ET, when Dr. Christine Lovly joins us live from to dive deeper into the CROWN results and other important updates.

🔬 ALK Positive is heading to the ASCO Annual Meeting 2026 in Chicago!The American Society of Clinical Oncology Annual Me...
05/29/2026

🔬 ALK Positive is heading to the ASCO Annual Meeting 2026 in Chicago!

The American Society of Clinical Oncology Annual Meeting is one of the world’s premier oncology conferences — bringing together researchers, clinicians, advocates, and industry leaders to share groundbreaking science, discuss the latest clinical advances, and help shape the future of cancer care.

Our ALK Positive team will be in Chicago this week, excited to learn from the latest developments in ALK-positive cancer research, connect with the global oncology community, and continue advocating for patients and families affected by ALK-positive cancers.

We’re especially looking forward to the exciting new data and discussions emerging from this year’s lung cancer sessions, along with the meaningful conversations and collaborations that continue to move precision medicine forward and bring hope to our community.
If you’re attending , we’d love to connect — come say hello! 👋

In this special ALKtALK, Dr. Ken Culver, Executive Director and Medical Director at ALK Positive, shares a preview of AL...
05/28/2026

In this special ALKtALK, Dr. Ken Culver, Executive Director and Medical Director at ALK Positive, shares a preview of ALK Positive Awareness Month 2026 and highlights the discoveries, research initiatives, and future frontiers shaping the future of ALK-positive cancer care.

Dr. Culver highlights progress across ALK Positive’s research initiatives — including clinical and preclinical work, support for young investigators, and expansion of clinical trial opportunities.

From emerging science to expanded treatment opportunities, this conversation offers a closer look at the discoveries, collaboration, and research efforts helping move the field forward.

Whether you are a patient, care partner, advocate, loved one, researcher, or supporter, this is an important discussion for our entire community.

🎥 Recorded live on Sunday, May 17, 2026 at 7:00 PM ET
https://youtu.be/mMTqHDyFr8k?si=f5CEbRg5k4bo1NHd

Thinking about clinical trials but wondering what the experience is really like? 👀Join us TONIGHT at 7:00 PM ET for Clin...
05/21/2026

Thinking about clinical trials but wondering what the experience is really like? 👀

Join us TONIGHT at 7:00 PM ET for Clinical Trials Connect — a welcoming space to learn, ask questions, and connect with others in the ALK+ community.

What you’ll gain:
• Real-world perspectives from ALK-positive patients who have participated in clinical trials
• Insights into the motivations, experiences, and lessons learned along the way
• Discussion around Dr. Ken Culver’s paper, Six Facts About Clinical Research Participation for ALK-positive Lung Cancer Patients

💬 Bring your questions and lived experiences to share as we explore the clinical trial journey together.

Facilitated by Jeff Sturm, 11-year ALK-positive NSCLC patient, Board Member, and member of the Clinical Trials and Research Acceleration Committees.
To learn more and join: https://alkpositive.org/event/clinical-trial-connect-2/2026-05-21/

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6595 Roswell Road, Suite G2310
Atlanta, GA
30328

Website

https://secure.qgiv.com/for/am-ml/

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