10/14/2026
I’ve been quiet here for a couple of months, and I’ve missed these conversations.
I’ve especially missed talking about EDS and the people living with it. Our experiences are so varied. Some people are lightly affected. Others may struggle to hold up their own heads. Even with a shared diagnosis, our daily lives can look very different.
For years, my own illness was severe. Surgery helped me regain the ability to walk independently and began opening up possibilities I had missed for a long time. I remember how hard it can be to imagine any possibilities when you’ve been so sick for so long.
That experience is part of what I bring to this work, alongside my knowledge as a therapist and EDS educator. I care deeply about this community, and about making room for people whose experiences are too often overlooked.
I’m easing back into sharing here: thoughts about EDS, the emotional and practical realities of living with it, and the things that help us find more room for life.
It feels good to be back.