PANS Awareness TX

09/13/2026

🎥 Video Testimonial Deadline Extended!!

Your story matters — and this is your opportunity to make sure your unique voice and experience are heard at the Texas Capitol.
We’re extending the deadline for PANS & PANDAS Awareness Day video submissions to Tuesday, September 15 to give more families, practitioners and advocates time to participate.
Whether you want to share hope, the realities of living with PANS/PANDAS, what you’ve learned, or what you want policymakers and healthcare professionals to understand — your perspective matters. 💚

📱 Videos should be 2 minutes or less, recorded in landscape format.
📅 New deadline: September 15

Help us bring the voices of the PANS/PANDAS community to the Capitol. Please consider sharing yours.

Submit your video through our event page here: https://pansawarenesstx.org/p%2Fp-awareness-day #:~:text=Submit%20Your%20Video,-We're%20inviting%20families

09/11/2026

Your voice matters — and your legislators need to hear from you. 💚

As we prepare for the 4th Annual PANS & PANDAS Awareness Day at the Texas Capitol on October 9, we’re asking families and supporters across Texas to personally invite their state legislators and staff to attend.

These invitations matter. Legislators are more likely to understand the urgency of PANS & PANDAS when they hear directly from the families and communities they represent.

This year, two important legislative efforts are already taking shape:
💚 An insurance bill aimed at improving access to needed PANS/PANDAS care
💚 An effort to pursue continuing medical education requirements for certain Texas healthcare practitioners - to broaden the base of professionals who recognize neuroimmune conditions

The more legislators who hear from constituents — and the more who attend and learn firsthand — the stronger our advocacy becomes.

We’ve made it easy to participate with ready-to-use letter and phone templates you can personalize and send to your legislators, as well as a day-of schedule with registration links for any legislators or staff who would like to come for lunch and hear more of the program.
Additionally, you can share an important write-up by ASPIRE: The Alliance to Solve PANS and Immune Related Encephalopathies on the cost of inaction, linked below, that discusses the consequences of lack of access to appropriate care.

👉 Templates and schedule are available here:
https://drive.google.com/drive/folders/1V8cMGVtbCK7PVWeoCUuYpwClufloOGLC?usp=share_link

🔎 Look up your Texas State Senator and Representative here: https://wrm.capitol.texas.gov/home

🩺"Why States Need to Require PANS/PANDAS Provider Education - The Cost of Inaction": https://aspire.care/featured/why-states-need-to-require-pans-pandas-provider-education-the-cost-of-inaction/

Please take a few minutes to reach out, invite your legislators, and help us bring PANS & PANDAS awareness directly to the Capitol.

Every call. Every email. Every invitation matters. 💚

09/09/2026

💚 A bigger space for a growing community!
We’re excited to share a first look at the space where we’ll gather for our 2026 PANS & PANDAS Awareness Day at the Texas Capitol on October 9.
As attendance has grown, so has our need for a space that offers more room to connect — and this year, we’ll have it.

Our expanded Capitol meeting space will give us room for:
•Our Expert Practitioner Q&A
•Boxed lunches for attendees
•A spacious Practitioner & Family Resource Showcase
•More room for families to visit, connect and spend time together
•A separate kids room where children can take a break, relax and enjoy time with other kids

We are especially grateful to be able to create a more comfortable, welcoming environment for families this year.
We can’t wait to fill this space with conversation, connection, advocacy and community. 💚

📅 Friday, October 9, 2026
📍 Texas Capitol, Austin
Registration and complete event information are available on our event page: https://pansawarenesstx.org/p%2Fp-awareness-day

Together, we are UNITED for awareness, support and hope!

09/07/2026

🍽️ Join Us for Dinner at Chez Zee Bistro! 💚

The night before our 2026 PANS & PANDAS Awareness Day at the Texas Capitol, we’re gathering at Chez Zee Bistro in Austin for a relaxed, family-friendly evening of delicious food, connection, and community.

Take a look at these meal choices! 😍 Guests will select from a special menu featuring Smoked Pork Tenderloin, Chicken Adrano, New Orleans Pecan Chicken, Grilled Salmon over Quinoa, the Zee Burger, Pasta Primavera, delicious desserts, and kid-friendly favorites.

Gluten-free and dairy-free options are available for those with dietary restrictions. 🌾🧀

This dinner is a wonderful opportunity to connect with other families, practitioners, advocates, and supporters before we come together at the Capitol the following day. Come as you are, bring the family, and enjoy an evening together!

🍽️ Advance registration and payment are required.

📅 Registration deadline: September 28

👉 Register for the dinner:
https://www.zeffy.com/en-US/ticketing/2026-pans-and-pandas-awareness-day-at-the-capitol

🍰 Learn more about Chez Zee Bistro:
https://www.chez-zee.com

A special thank you to Chez Zee Bistro, one of our 2026 Awareness Day sponsors, for helping us create a welcoming place for our community to gather. 💚
We hope you’ll join us for dinner!

09/02/2026

Our 2026 PANS & PANDAS Awareness Day shirts are available now!

Whether you’ll be joining us at the Texas Capitol on October 9th or supporting from afar, wearing your shirt is a simple way to help raise awareness, start conversations, and show families across Texas that they are not alone.

This year, we are UNITED — families, practitioners, advocates, and supporters coming together with one voice for greater awareness, support, understanding, and change.

Choose from several shirt styles, including tees, a women’s cut, and a hoodie.

💚 Wear your support.
💚 Raise awareness.
💚 Stand UNITED.

Order yours here: https://www.bonfire.com/panspandas-awareness-day-2026/

Visit our event page to register and find everything you need to know about PANS & PANDAS Awareness Day at the Capitol:
https://pansawarenesstx.org/p%2Fp-awareness-day

08/27/2026

🎥 Share Hope. Share Reality. Inspire Change. 🎥

We’re inviting families, practitioners, and advocates to submit a short video for our 2026 PANS & PANDAS Awareness Day at the Texas Capitol. In place of live personal testimonies, selected clips will be compiled into a video montage to help bring real voices and experiences to the Capitol and beyond.

Wondering what to share?

• Give hope — share progress, healing, support, or something you wish other families knew.

• Share the reality — describe a challenge your child or family has faced and why greater awareness matters.

• Call for change — tell policymakers, practitioners, and advocates what you hope can improve in awareness, diagnosis, treatment, education, insurance coverage, or family support.

• Share what you’ve learned — offer something you wish you had known earlier in your PANS/PANDAS journey.

There is no “right” story to tell. Choose the message that feels most important to you right now and speak from the heart. 💚

Your audience includes fellow PANS/PANDAS families, advocates, policymakers, and practitioners.

A few simple guidelines:
📱 Turn your phone sideways and record in landscape (16:9)
⏱️ Keep your video to 2 minutes or less
📅 Submit by September 13

Ready to share your voice?
Submit your video here:

Thank you for sharing your story with PANS Awareness TX. Please complete this short form before uploading your video.

08/25/2026

💚💚💚

Registration is OPEN for the 2026 PANS & PANDAS Awareness Day at the Capitol!

We are excited to invite you to the 4th Annual PANS & PANDAS Awareness Day at the Texas Capitol on Friday, October 9th for a day of hope, connection and advocacy!

This year’s word is UNITED—because when families, professionals, and advocates come together, our voices are stronger and hope grows.

The program features a one hour Q&A session with a panel of expert healthcare practitioners from across the state. In addition, there will be a breakout time with opportunities to meet practitioners and other professionals serving the PANS & PANDAS community.

With our growing attendance, we are pleased to be moving into a larger meeting space (the Extension Legislative Conference Center) at the Capitol this year. The expanded space will allow us to provide lunch and a kids activity area, where children can take a break and spend time together. The small registration fee will help offset these additional costs and keep the event as affordable and accessible as possible for families.

🍽️ In addition to the Capitol event on October 9th, there will be a casual dinner the night before at the delicious Chez Zee Bistro.
Registration for both Awareness Day and our optional dinner the evening before is available through the same registration link. You can register for either or both now, and return later to add additional tickets as desired. The deadline to register is September 28th.

Register here:
https://www.zeffy.com/en-US/ticketing/2026-pans-and-pandas-awareness-day-at-the-capitol

🎥 To better honor everyone's time and ensure each family's story can be shared thoughtfully, we will not have live personal testimonies during the event. Instead, families will have the opportunity to submit a short video testimony that may be included in a video compilation shown at the Capitol. Be on the lookout for additional information about how to submit your video testimony.

For complete event information, including a discounted hotel room block, event shirts, templates for inviting your legislators, schedule details, and Capitol maps and updates, visit our event page:
https://pansawarenesstx.org/p%2Fp-awareness-day

Together, we are UNITED for awareness, support, and hope.

💚💚💚

a 501 (c)(3) organization EIN #33-3340596

08/14/2026

LymeLight Foundation is an organization whose mission is to provide grants to enable eligible children and young adults with Lyme disease to receive proper treatment and medication.

Today is the deadline to apply for the October Grant, but applications for the February Grant are available at the same link.

⏰ Less Than Two Weeks Left to Apply! ⏰

The deadline to apply for a LymeLight Foundation Grant is FRIDAY, AUGUST 14th! Our grants help children and young adults (through age 25) across the U.S. access Lyme disease treatment when financial barriers stand in the way. 💚

Don't miss your opportunity to apply! Learn more and submit your application (also linked in bio): lymelightfoundation.org/grants

Questions? Reach out to Kate, our Grants Coordinator, at [email protected]

08/13/2026

We are pleased to highlight a wonderful resource for our PANS/PANDAS Community:

💚 MAPS 💚

The Medical Academy of Pediatrics & Special Needs (MAPS) provides education for healthcare professionals caring for children with complex medical and neurodevelopmental conditions, including PANS and PANDAS. They offer many helpful tools including a clinician directory, podcasts, blogs and more.

MAPS is also hosting its second *Parent Conference* this September, with both in-person and virtual attendance options. The conference includes education on topics relevant to many families in our community, including PANS/PANDAS, mold, Lyme disease, mitochondrial dysfunction, cerebral folate deficiency, testing, and more.

Learn more about MAPS:
https://www.medmaps.org

Parent Conference: 📅 September 12–13, 2026
https://www.medmaps.org/events/fall2026-parent-conference/

The MAPS Parent Conference was created in response to a growing need within our community for accessible, medically grounded education for parents navigating chronic complex conditions in their children. While MAPS is not a parent support group, we recognize that informed families are empowered fami...

06/13/2026

It’s a beautiful morning for coffee and community 💚