12/19/2020
This is a video of a young man (age 18) who lives in the UK discussing his experience of PDA with his mom. He is extremely articulate in being able to get inside and really talk about the experience and how frustrating it can be. The UK is far ahead of the US in researching this sub-category of autism and providing supports and services. For example, he references the fact that he is living in a special housing unit with an attached school for PDA youth. these schools are becoming a widespread as a form of state-funded support for autism in the UK.
Please note that in the video the speaker refers to PDA as a diagnosis. In the US, PDA is NOT an official diagnosis (here we speak of PDA as a sub-category of ASD, much as auditory processing deficits are a common subcategory of ADHD). However, PDA is still a very useful and important framework for understanding ASD and related conditions on the neurodiversity spectrum (such as ADHD, which can also involve elements of demand avoidance).
Be aware that you do not need to seek a diagnosis beyond autism (or ADHD, etc.) to understand yourself or your child as falling into the category of PDA. While I very much hope to see PDA become an official diagnosis in the future, for the time being, the emphasis of myself and professionals like me serving this population, is on advocacy and spreading information about this important aspect of autism.
Feel free to leave a comment below: I will answer any questions you may have!You can also contact me on twitter you can email me isaacrusse...