Project Peyton

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Project Peyton Your prayers & shares mean just as much.❤️‍🩹

Sharing our sweet girl’s journey with RCDP Type 1 while raising awareness for this ultra-rare condition.
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GoFundMe below; never any expectation to donate.

✨ A LITTLE CLOSER TO SEEING OUR GIRL’S WHOLE FACE AGAIN! ✨Over the past couple of days, Peyton has been doing several CP...
11/02/2026

✨ A LITTLE CLOSER TO SEEING OUR GIRL’S WHOLE FACE AGAIN! ✨

Over the past couple of days, Peyton has been doing several CPAP trials to see if she’s ready to be extubated. She failed one, but has passed all the rest! Our girl is working SO hard, and we couldn’t be more proud of her. 🥹💗

She has two more trials scheduled, one at 11 PM and another at 5 AM. If all goes well, we are hopefully looking at extubation TOMORROW!!! We are beyond thrilled and trying so hard to contain our excitement!

On top of all of this, she has been tolerating her feeds and has even given us a couple of those sweet little smiles. Those tiny smiles have brought so much light into some of our darkest days.

We know there is still a long road ahead, but every little victory feels HUGE right now. We are praying, hoping, and believing that tomorrow could be the day we get to see our sweet girl’s WHOLE face again. No more breathing tube covering that beautiful little face. ❤️

Please keep praying for Peyton, for her strength, for successful CPAP trials, and for a smooth extubation. We are so proud of our girl. She continues to amaze us every single day.

One step closer, baby girl. Mama can’t wait to see your whole face again. 🥹🙏🏼

🩷 PEYTON STRONG WRISTBANDS ARE HERE!! 🩷We’re excited to announce that our Peyton Strong wristbands have officially arriv...
10/30/2026

🩷 PEYTON STRONG WRISTBANDS ARE HERE!! 🩷

We’re excited to announce that our Peyton Strong wristbands have officially arrived!

These wristbands are more than just a way to support our sweet girl. They’re also a way to help spread awareness for RCDP and show support for Peyton and all of her Rhizo brothers and sisters who fight battles every single day!

WRISTBAND PRICES:

🩷 1 for $5
🩷 2 for $8
🩷 5 for $18
🩷 10 for $30

📍 LOCAL PICKUP ONLY!

Haiden will be at Poppas tonight, so if anyone wants to come by and purchase some wristbands, I’ll have them with me! You’re also more than welcome to message me to arrange another time to get yours.

💚 Cash App: $projectpeyton19
💙 Venmo: -19
💵 Cash is welcome too!

All proceeds will go toward helping our family with expenses related to Peyton’s ongoing medical journey.

As always, there’s absolutely no pressure to purchase anything. Every prayer, share, donation, and kind word means the world to us!

Thank y’all so much for continuing to love and support our sweet miracle girl. We can’t wait to see everyone rocking their Peyton Strong wristbands!

Wear it for Peyton. Wear it for awareness. Wear it for all our little Rhizo warriors!

A little update on our girl! 💗Peyton has been tolerating lower ventilator settings, and today the doctors decided to sta...
10/30/2026

A little update on our girl! 💗

Peyton has been tolerating lower ventilator settings, and today the doctors decided to start a CPAP trial to see if she’s getting ready to come off the ventilator! 🥹

There are a lot of things they look for during this trial, so even if her vital signs look good, that doesn’t necessarily mean she’ll pass. She’s been on the trial for about 45 minutes now. Her vitals are looking good, but she’s breathing a little faster than normal, so she may just barely pass or may not be quite ready yet. Either way, we’re so incredibly proud of her!

The doctors are very happy with how far she’s come, and that’s something we’re holding onto. She’s also tolerating her feeds really well, which is another little win!

We’re trying to take things one step at a time and celebrate every bit of progress. We know she still has a long road ahead, but our girl continues to show everyone just how strong she is.

Keep those prayers coming. We’re praying for strong lungs, steady progress, and the day we finally get to see that breathing tube come out. 💗

One day, one milestone, one little victory at a time.

We have some good updates on our sweet Peyton today! 🥹💕The doctors have been able to wean her ventilator settings down a...
10/29/2026

We have some good updates on our sweet Peyton today! 🥹💕

The doctors have been able to wean her ventilator settings down a little, and her EEG results came back NORMAL with no abnormalities showing! 🙌🏼 They’re going to keep the EEG on her a little longer because, with her RCDP, she is at an increased risk for seizures, but we are so thankful for this good news!

She has been SO much more awake and alert today, and I even got a little smile out of my girl. 🥹😭 You don’t realize how much a tiny smile can mean until you’ve spent days praying, worrying, and just wishing to see your baby come back to you. That little smile healed a piece of my mama heart that has been hurting so badly. ❤️‍🩹

Of course, we had to get our girl in the Halloween spirit with some cute little socks! 🎃🧦 Even in the ICU, we’re finding little ways to celebrate the small things and bring some normalcy to such a scary time.

We know we still have a long road ahead, and we’re taking everything one day at a time, one little victory at a time. We are so proud of our girl and the fight she continues to show us every single day.

Please keep praying for Peyton. Pray for continued healing, stronger lungs, steady progress, and for our girl to keep fighting her way back to us. We believe in the power of prayer, and we are so thankful for every single person standing beside our family through this journey. 🙏🏼💗

We have a little update on our girl. 🎀The doctors are hooking Peyton up to an EEG machine to monitor her brain activity ...
10/28/2026

We have a little update on our girl. 🎀

The doctors are hooking Peyton up to an EEG machine to monitor her brain activity and check for possible seizures. We won’t have any results until at least tomorrow, so we’re anxiously waiting and praying for answers. 🙏🏼

They also did an ultrasound of her heart and found that she has an arrhythmia. Her bloodwork showed that her potassium was a little low, so they gave her more in hopes of helping regulate things.

On the brighter side, we have some GOOD news! 🥹💕 They’ve been able to wean her down on some of her ventilator settings and reduce some of her sedation. We are holding onto every little bit of progress and thanking God for these small victories.

Our girl has been through more in her little life than most people ever will, and she continues to fight with everything she has. We know she still has a long road ahead, but we’re taking it one moment, one prayer, and one victory at a time.

Please keep our Peyton Rae in your prayers. Pray for answers, a steady heart, no seizures, healing lungs, and continued progress. Pray for strength for our girl and for our family as we navigate every unknown.

We love you endlessly, Peyton. Keep fighting, baby girl. Mommy and Daddy are right here with you. 💗🎀

Not a whole lot has changed with our sweet girl today, but sometimes no major changes are a blessing in themselves, espe...
10/28/2026

Not a whole lot has changed with our sweet girl today, but sometimes no major changes are a blessing in themselves, especially after everything she’s been through.

The doctors are considering removing the IV lines they currently have sutured into her thighs tomorrow, which would be another small step in the right direction! Our little fighter is also living up to her name and continues to fight the ventilator, so they’re having to keep her pretty heavily sedated for the time being. As much as we want to see her more awake and alert, we know her little body still needs time to rest and heal, and we don’t want to rush anything before she’s ready.

Other than that, we’re still slowly but surely moving in the right direction. There’s no big breakthrough to report today, but thankfully, no major setbacks either. And after the roller coaster we’ve been on, we’ll gladly take days like today. We’re learning that Peyton’s recovery isn’t going to happen overnight, and that’s okay. Whether it’s big strides or the tiniest baby steps, progress is still progress. We’re just thankful that we’re getting closer to having our sweet girl healthy and back home where she belongs.

Please continue to keep Peyton in your prayers. Pray that her lungs continue to heal, that her body gets stronger, and that she’ll soon be comfortable enough to start needing less support from the ventilator. Thank you all for continuing to love, pray for, and support our family through all of this. We couldn’t be more proud of our strong little miracle girl.

Keep fighting, baby girl. Mommy and Daddy are right here with you every step of the way.

We finally have some more good news to share about our sweet girl! 🥹First and foremost, Peyton is officially considered ...
10/27/2026

We finally have some more good news to share about our sweet girl! 🥹

First and foremost, Peyton is officially considered to be out of septic shock! After everything her little body has been through over the past week, those are words we are beyond thankful to finally hear. The doctors have also been able to stop her paralytic medication, and they’re now beginning the process of slowly, and I mean VERY slowly, weaning her off her sedation.

She did have a few hiccups today, but thankfully nothing the doctors weren’t able to get under control. They believe they may have been trying to make too many changes at once, and with Peyton’s little body, they’re realizing that things have to be taken at a much slower pace. And that’s perfectly okay with us. We’d much rather take a hundred tiny steps forward than rush things and risk taking a big step backward.

But the biggest moment of the day, at least for me, was something that might seem so small to everyone else. Our sweet girl opened her eyes today. And let me tell y’all, that was enough to make a grown man cry.

After watching our baby girl lie there so still, surrounded by machines and fighting for her life, getting to see her open those beautiful little eyes again was something I can’t even begin to put into words. It was truly amazing to see some of that life coming back into our sweet girl after everything she’s endured. It’s something so many people probably take for granted, but in that moment, it meant absolutely everything to us. I don’t think I’ll ever forget how it felt to see those eyes open again.

We know we’re still not out of the woods completely. She’s still on the ventilator, still requiring sedation, and still has a long road ahead of her. But she is absolutely taking strides in the right direction, and we couldn’t be more proud of our strong little miracle girl.

Please continue to keep Peyton in your prayers. Pray that her body continues to heal, that she tolerates the slow reduction in sedation, and that her lungs continue getting stronger so we can hopefully get her off that ventilator when she’s ready.

Thank you all for every prayer, message, and bit of love you’ve sent our way. We truly believe God has been watching over our sweet girl, and we’re so thankful for every little blessing along the way.

Today, we got to see our baby girl’s eyes again. And after the week we’ve had, that was more than enough to make today a beautiful day. 🥹💜

Keep fighting, sweet Peyton. Mommy and Daddy are so incredibly proud of you. 💜🙏🏼

💗🦋 HAPPY DWARFISM DAY TO MY BEAUTIFUL GIRL, PEYTON RAE! 🦋💗My sweet girl, you may be little in size, but your strength, c...
10/26/2026

💗🦋 HAPPY DWARFISM DAY TO MY BEAUTIFUL GIRL, PEYTON RAE! 🦋💗

My sweet girl, you may be little in size, but your strength, courage, and the love you bring into this world are bigger than words could ever explain. 💕

Your journey with RCDP Type 1 hasn’t been easy, and you’ve already had to fight battles that no baby should ever have to face. Yet here you are, continuing to show us what true strength looks like. You have changed my life in ways you’ll never fully understand, and I am so proud to be your mama.

You are so much more than your diagnosis. You are my heart, my purpose, my little fighter, and one of the greatest blessings God has ever given me. I pray that the world sees your beauty, celebrates your differences, and learns how extraordinary little people truly are. 🥹💗

You are small but mighty, Peyton Rae, and you will ALWAYS be worth celebrating! Today and every day, we celebrate YOU! 🎀

💗

She’s such a light on our world🤍
10/26/2026

She’s such a light on our world🤍

💗 Project Peyton — Peyton’s Story 💗 For those who may be new here, we wanted to make a post to help bring everyone up t...
05/11/2026

💗 Project Peyton — Peyton’s Story 💗

For those who may be new here, we wanted to make a post to help bring everyone up to speed on our sweet girl, Peyton.

Peyton was born with a very rare genetic condition called Rhizomelic Chondrodysplasia Punctata Type 1 (RCDP1), which affects growth and development throughout the body. Since the day she was born, she has already faced more challenges than most people ever will in a lifetime — breathing difficulties, oxygen support, feeding issues that led to feeding tubes, surgeries, specialist appointments, a cervical brace for her spine, cataracts, and countless hospital stays.

Despite everything stacked against her, Peyton has continued to prove over and over again that she is a fighter. Doctors have been surprised by her strength more times than we can count, and she continues to overcome obstacle after obstacle with a resilience that inspires us every single day.

Most recently, Peyton became very sick with Parainfluenza 2, which led to her being admitted into the PICU at Children’s Hospital. Her breathing worsened, and she is currently intubated so the ventilator can help her little body rest and heal while her lungs recover. This has been one of the hardest things we have ever faced as parents, but we continue to hold onto faith, prayer, and hope for our miracle girl.

We created this page not only to update everyone on Peyton’s journey, but also to build a community around her filled with love, support, and prayer. We truly believe the prayers and kindness from so many people are helping carry our family through all of this.

If anyone feels led to support our family financially while we stay by Peyton’s side through hospital stays, appointments, and ongoing medical care, we are incredibly grateful — but please never feel obligated. Your prayers and support mean just as much to us. 💗

Venmo:
CashApp: $babypeyton19
GoFundMe: https://www.gofundme.com/f/support-for-peytons-hospital-stay?attribution_id=sl:4f6b4887-8921-451f-8e4b-021e2a2f0317&lang=en_US&ts=1778385653&utm_campaign=man_sharesheet_dash&utm_content=amp17_ta-amp20_t1&utm_medium=customer&utm_source=native_options


Thank you all for loving Peyton the way you do. She is our miracle, our fighter, and the strongest little girl we know. 🙏💗

With love,
Ally, Haiden & Peyton

Address

1600 7th Ave S
Birmingham, AL
35233

Telephone

+12057254699

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