08/31/2026
A BIG PEYTON UPDATE🩷
We figured now that our sweet girl is finally HOME, it was time for a big update on everything going on in Peyton’s world!
For anyone new here, Peyton has RCDP Type 1 (Rhizomelic Chondrodysplasia Punctata), an incredibly rare genetic condition that affects many different parts of her body. Her journey has certainly not been an easy one, but if there is one thing everyone should know about Peyton, it’s that this little girl is a FIGHTER.
Most recently, we had another scary trip to Children’s that turned into Peyton’s second hospital stay; this time after testing positive for COVID. She ended up in the PICU requiring high-flow oxygen, and for a while they weren’t able to get her below 6 liters.
Those hospital walls never get easier for us. Every admission brings back so many emotions, and watching your child struggle to breathe is something no parent ever gets used to. But our girl did what she always does. She fought. And now, after everything, we finally have our sweet girl back HOME where she belongs!
She is still our happy, smiling Peyton, and getting to see her back in her own environment after another hospital stay is a feeling we can’t even put into words.
Outside of this most recent illness, we still have all of the different pieces of Peyton’s care that we continue navigating. Her feeding tube remains a huge part of her daily routine, we continue following her respiratory needs closely, and we’re still keeping a very close eye on her cervical spine and neck because of the narrowing near the top of her spinal canal.
We continue to follow with all of her specialists and take things one appointment, one decision, and one day at a time.
And we also have something incredibly important ahead of us: Peyton’s clinical trial in Delaware.
Having the opportunity for Peyton to participate means so much to us. With a condition as rare as RCDP, research is incredibly important; not only for our girl, but for every RCDP child who comes after her. We’re hopeful, nervous, excited, and grateful all at the same time.
Through everything she has been through—oxygen, feeding difficulties, surgeries, hospital stays, respiratory illnesses, her neck brace, cataracts, PICU admissions, and more. Peyton continues to remind us that her diagnosis does not define her.
She is SO much more than RCDP.
She’s our sweet pea.🩷🫛
She’s stubborn.
She’s strong.
She’s beautiful.
She’s loved beyond measure.
And she has one of the sweetest smiles you’ll ever see.
We’ve also recently started expanding Peyton’s social media presence because we want to do everything we can to raise awareness for RCDP and get our sweet girl’s story in front of more people. If even one person sees Peyton and decides to learn what RCDP is, then sharing her journey is worth it.
If you’d like to follow along with more of Peyton’s journey, you can now find her here:
📸 Instagram:
🎵 TikTok:
Please give her a follow, and more importantly, share her story. We want to reach as many people as we possibly can and help put RCDP on the map.
We also have Peyton’s GoFundMe linked in her bio for anyone who ever feels led to help our sweet girl along her journey. There is absolutely no expectation or pressure to donate. We are every bit as grateful for a follow, a share, a prayer, or simply telling someone about Peyton and RCDP. Every little bit of awareness and support means more to our family than you know
We know so many of you have followed Peyton from the very beginning, through some of the scariest moments of our lives and some of the absolute BEST ones. We could never adequately explain what your prayers, messages, shares, donations, and support have meant to our family.
And to anyone who is just now finding our girl:
Welcome to Peyton’s journey. There will be hard days. There will be scary days. But there will also be smiles, milestones, laughter, little victories, and SO much love. Right now, though, we’re simply thankful. Thankful that she fought through another illness.
Thankful for the doctors, nurses, respiratory therapists, and everyone who cared for her.
Thankful for everyone who prayed for our family.
And most of all…Thankful that our sweet girl is HOME.
Please continue to keep Peyton in your prayers as she recovers and as we prepare for everything coming next.
Our miracle girl still has a whole lot of story left to tell.
