IgG4ward

IgG4ward! Foundation is the only organization dedicated solely to IgG4-related disease (IgG4-RD ), providing trusted education, advocacy and support.

We empower patients, caregivers, and healthcare providers with resources to navigate IgG4-RD.

09/08/2026

🤔How do biopsies, imaging, and blood work help inform an IgG4-RD diagnosis? How can you recognize a possible flare or track changes in your disease? What should patients and care partners understand about treatment approaches and organ involvement?

These are some of the questions we will explore at CamJAM.

📆Join the IgG4ward! Foundation on October 11 at The Charles Hotel in Cambridge, Massachusetts, for a full day of practical education and conversation with IgG4-RD experts.

Hosted by Dr. Guy Katz and Dr. Cory Perugino, CamJAM will include two rounds of breakout sessions, allowing attendees to choose the topics most relevant to their experiences. Each session will include dedicated time for patient questions and discussion.

🗓️The agenda also includes a patient panel focused on life beyond the diagnosis, an update on IgG4-RD science and research, a faculty Ask the Experts panel, and a closing reception for our community.

Whether you are newly diagnosed, have been living with IgG4-RD for years, or care for someone with the disease, we hope you will join us in Cambridge.

➡️The agenda is now available. Review the program and register today: https://tr.ee/o50GPO

09/03/2026

When joint pain, fatigue, or simply not feeling right occurs, it is completely understandable to wonder: Is my disease flaring?

In our latest Good Question installment, UK nephrologist Dr. James Tomlinson explains how patients and their healthcare teams can begin distinguishing ongoing symptoms from active disease.

The video is just over three minutes and offers an important perspective for anyone navigating IgG4-RD.

Watch the full video and read the article here:
https://tr.ee/RYxTVN

09/01/2026

An exciting new chapter for IgG4ward! 💙

We are thrilled to welcome Jamie Gibson to the IgG4ward! Foundation team as our Executive Director.

Jamie brings more than 27 years of nonprofit leadership experience, including more than two decades with national nonprofit health and rare disease organizations.

Her appointment marks an exciting milestone for IgG4ward! as we continue to expand our programs, partnerships, and global community, always with a focus on improving the lives of people affected by IgG4-related disease.

Please join us in welcoming Jamie to IgG4ward! We are excited for what lies ahead.

🔗 Read the full announcement: https://tr.ee/VtxsUE

08/28/2026

How should vaccines be timed around B-cell-depleting treatment? What precautions should people with IgG4-RD consider when traveling, spending time with pets, eating certain foods, or going about everyday life?

In our latest IgG4ward! Fireside Chat, Dr. John H. Stone welcomes back infectious disease specialist Dr. Camille N. Kotton for Aiming for a Glide Path in Treatment.

Together, they discuss vaccine timing, infection prevention, COVID-19, flu, shingles, mosquito- and tick-borne illnesses, food and pet safety, travel, and many more practical questions from the IgG4-RD community.

Their message is an important one: life is meant to be lived. With thoughtful planning and guidance from your healthcare team, treatment does not have to mean stepping away from the activities that matter to you.

Watch the full conversation and use our viewing guide to find the topics most relevant to you:
https://tr.ee/fajBMg

08/25/2026

Meet the hosts of IgG4ward! CamJAM!

Dr. Guy Katz and Dr. Cory Perugino of Massachusetts General Hospital will welcome the IgG4-RD community to Cambridge on October 11 for a day of learning, questions, conversation, and connection.

Both Dr. Katz and Dr. Perugino care for people with IgG4-RD and are actively involved in research to better understand the disease and improve care. At CamJAM, they’ll help guide conversations between the IgG4-RD community and experts throughout the day.

Attendees will have opportunities to learn from leading IgG4-RD experts, choose from interactive breakout sessions, participate in dedicated Q&A, hear about current science and research, and bring their questions to an Ask the Experts panel.

We hope you’ll join us in Cambridge!
📅 October 11, 2026
📍 The Charles Hotel | Cambridge, Massachusetts

There is no cost to attend for people living with IgG4-RD, caregivers, family members, and friends. Registration is required.

Learn more and register:
https://tr.ee/o50GPO

08/18/2026

What does it mean when we say IgG4-related disease is a “slow-moving” disease?

For someone living with IgG4-RD, that question can take on new meaning after diagnosis. How quickly can things change? What happens between appointments? What does “slow-moving” really mean?

We brought this question to our Good Question series through a conversation from the Expert Panel at the IgG4ward! EuroJAM.

In this short video, Dr. John Stone, explains what he tells patients about the pace of IgG4-RD and why understanding it can offer some reassurance after diagnosis.

Watch the video and read the full Good Question here: https://tr.ee/gWe0xP

This content is for educational and informational purposes only and is not intended as a substitute for professional medical advice, diagnosis, or treatment.

08/14/2026

There’s a lot ahead for the IgG4-RD community. 💙

We’re kicking things off today at 12 PM ET with our Fireside Chat, The Glide Path in Treatment: How Can YOU Help Ensure a Smooth Course with Medications?

Join Dr. John H. Stone and infectious disease specialist Dr. Camille Kotton for a practical conversation about preventing infections during treatment, vaccines, and ways patients can work with their healthcare teams to support a safe and successful treatment course.

And that’s just the beginning. 📅
August 20 - Support Group
September - Fireside Chat | Stay tuned!
October 8–10 - Symposium | For healthcare professionals & researchers; not a patient-facing event
October 11 - CamJAM | Cambridge, MA
Hosted by Dr. Guy Katz & Dr. Cory Perugino
November 14 - TexasJAM | Austin, TX
Hosted by Dr. Adam Kilian
December - Caregiver’s Conversation: Fatigue

Some of these events create spaces for patients and caregivers to connect. Others bring together healthcare professionals and researchers working to advance understanding and care in IgG4-RD.
Together, they reflect the many ways we serve our community.

Through Awareness, Education, Support, and Research, we remain focused on one shared mission: improving the lives of people affected by IgG4-RD.

💙 Save the dates and learn more about upcoming events:
https://igg4ward.org/events-webinars/

08/13/2026

Back in June IgG4ward! Joined The Sumaira Foundation’s Patient Day in Montreal. Wonderful discussions and presentations were had. Please do check out the link below!

08/12/2026

If you’re being treated for IgG4-RD, what questions do you have about staying healthy while on treatment?

Vaccines? Infection risk? What you can do before or during treatment?

Those are exactly the kinds of questions we’ll be talking about this Friday.

Join Dr. John H. Stone and infectious disease specialist Dr. Camille Kotton for a practical conversation about reducing infection risk, the latest thinking on vaccines, and ways patients can work with their healthcare teams to help treatment go as smoothly and safely as possible.

📣 And this is your last call to submit a question for our speakers before the event!

What have you wondered about vaccines, infection risk, or staying healthy while undergoing treatment? Submit your question below, and we’ll answer as many community questions as possible during Friday’s live conversation.

Submit question here: https://tr.ee/ORcH33

📅 Friday, August 14
⏰ 12:00–1:00 PM ET
👉 Register here: https://tr.ee/bUvjEg

Can’t make it live? Register anyway and we’ll send you access to the recording!

08/11/2026

What should you know about medications and side effects when living with IgG4-RD?

In EuroJAM Session 5, Dr. Maria Leandro and Comfort Dawodu lead an interactive discussion about medications used to treat IgG4-related disease, with a particular focus on steroids.

They explore the side effects that can affect everyday life - from infection risk and vaccinations to mood and sleep, weight and body changes, and bone and muscle health.

Questions and experiences from the EuroJAM community make this a practical conversation about recognizing changes, knowing when to speak up, and understanding why ongoing monitoring matters.

🎥 Watch EuroJAM Session 5 and explore the Key Takeaways & Viewing Guide: https://tr.ee/gaFCFG

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