FSGS and Nephrotic Syndrome Research

08/25/2021

Hello there. We are looking for a volunteer with NPHS1 associated kidney concerns to give a one time blood sample. If you or someone you know is interested, please email our research coordinator, Andrea at [email protected]. Thanks so much!

05/12/2020

"Nephrotic.... What?!" Yes, the name can be intimidating at first, but don't let Nephrotic Syndrome confuse you. It's not a disease, but rather an umbrella term for the collection of signs and symptoms that occur when the kidney filters leak protein into the urine. Learn more below!

03/14/2020

03/08/2020

At a historic meeting held Monday at Harvard Medical School, more than 80 clinicians and scientists came together to commit to a response.

03/06/2020

A local Angeleno who had been living with kidney failure is counting his blessings after receiving a transplant after his story was told on FOX 11.

02/24/2020

Today kicks off Rare Disease Week! Join us for the next 7 days as we push out informative information on your rare kidney disease.

The first thing we want to make sure you're aware of... our friends and colleagues at the National Center for Advancing Translational Sciences and The NIH Clinical Center are co-sponsoring the 10th this Friday, February 28th.

Hear more about the latest collaborative research for rare diseases at the FREE event. Register now for Rare Disease Day at NIH at https://go.usa.gov/xdrgg

12/17/2019

“Today the Administration announced two new proposed rules to address the critical organ supply crisis in America by expanding reimbursable expenses for living donors, establishing quality metrics for Organ Procurement Organizations (OPOs) and increasing the supply of transplantable deceased donor...

12/03/2019

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