Henry's Heroes - Dernalowicz Family

07/31/2026

🎗️

Childhood Cancer Doesn't End When Treatment Ends. 💛

For many children, ringing the end-of-treatment bell is just the beginning of a lifelong journey.

Long term effects (Late Effects) are health problems that can appear months or even years after cancer treatment. They can impact survivors physically, emotionally, and cognitively.

💛 Childhood cancer survivors may face:

❤️ Heart and lung damage
🧠 Learning, memory, and attention challenges
📏 Growth and hormone disorders
🦴 Bone and muscle problems
👂 Hearing or vision loss
❤️‍🩹 Fertility concerns
😔 Anxiety, depression, PTSD, and emotional trauma
🎗️ An increased risk of developing a second cancer later in life

Did you know?
📊 Studies show that 60–90% of childhood cancer survivors develop at least one chronic health condition related to their cancer treatment, and many require lifelong follow-up care.

Survival is only the first step. Every child deserves not only to survive—but to thrive.

That's why continued research, survivorship care, and family support matter.

07/29/2026

Have you ever seen these ducks outside peoples houses? These are ducks for cancer! A local charity that sends these ducks to individuals with cancer.

Henry got sent some today!

Check them out https://www.ducksforcancer.com

07/26/2026

We registered Henry to be included in the CureFest Wall this September in Washington, DC.

What is CureFest? CureFest is an annual event held in Washington, D.C., dedicated to raising awareness and funds for childhood cancer research. It brings together individuals, families, advocates, and organizations from various childhood cancer foundations, uniting them as a collective voice against childhood cancer 🎗️

07/24/2026

07/24/2026

We got our new shirts!! Stop by John's Sport Shop and grab yours today. While there get a copy of Jay Gearan’s new book, A Course Called Gardner!

07/23/2026

I know people have asked about purchasing Henry Heroes shirts and I’m happy to share that John's Sport Shop is selling them! Henry loves to see people out wearing his shirts 🤗

Thank you, everyone, for your continued support, thoughts, and prayers! 🎗️

07/22/2026

After 5 hours of what I would describe as torture for any parent, we finally got the x-ray results (mind you the results are usually available in 20 minutes 🫠)

What they saw in the last x-ray is still there, however, what I learned today was they were not exactly expecting it to disappear (something I should have asked prior to the repeat x-ray.).

The results state it’s consistent with what they felt before, that it’s most likely a vascular or airway structure. This time the image was able to show it is tubular, which is a good sign.

There are no immediate next steps. They will be adding an x-ray to his MRI in October.

This is good news, despite it still being there. It will take me a bit to accept this is good news. Would have loved for them to have never seen anything.

Thank you for continued love, support and prayers 🎗️

07/22/2026

And we’re off!

07/21/2026

Tomorrow morning we head back to Boston Children’s. Henry’s team did make a change on what he will be getting done.

After bringing his X-ray to a committee consisting of oncologists and radiologist, it was determined to cancel the CT Scan planned for tomorrow and just do another X-ray.

The hope is that we get a clear X-ray and move on. If they do spot anything in the repeat X-ray he will need a sedated CT scan at a later date.

Let’s hope, wish and pray it’s a clear X-ray tomorrow! 🎗️

07/16/2026

It was a long day at Boston Children’s & the Jimmy Fund clinic. We were happy to see Henry’s ultrasound results clear but unfortunately they did spot something on his X-ray.

They saw an 8mm density in one of his lungs. The radiologist did state that it most likely represents vascular or airway structure, but it is new (compared to previous X-rays) so they need to do a CT scan to exclude a true lesion, especially with his history.

Henry’s CT scan is scheduled next Wednesday. Please continue to pray and send positive thoughts his way.