Lymphedema Advocacy Group / Lymphedema Treatment Act

08/06/2026

For an update on the new ICD-10 diagnosis code for lipedema, please visit our website (https://lymphedemaadvocacygroup.org/lipedema-diagnosis-code/).

What the New Lipedema Diagnosis Code Could Mean for Coverage By Sarah Bramblette Throughout my years advocating for the Lymphedema Treatment Act, one quest ...

08/03/2026

***Medicaid Advocacy Opportunity For Healthcare Providers & Patients***
Every state’s Medicaid program has both a Medical Advisory Committee (MAC) and a Beneficiary Advisory Committee (BAC). If you qualify and are interested in applying to serve on your state’s MAC or BAC, please see our website for further details. (https://lymphedemaadvocacygroup.org/medicaid-advocacy-opportunity-for-healthcare-providers-patients/)

07/29/2026

Dr. Shelley Smith DiCecco PT, PhD, CLT-LANA, CI-CS has decades of experience treating lymphedema and is conducting a study on how pregnancy and lymphedema or lipedema impact each other. Please see the flyer for more information and to participate in her research, or go to (https://www.surveymonkey.com/r/25KY5WT).

07/27/2026

Registration is open for our next webinar, which will be taking place on August 19th at 12:00 PM Eastern: Pregnancy with Lymphedema and Lipedema - How Do They Impact Each Other? (https://zoom.us/webinar/register/WN_SMN3XAUSQNeTk0APc7FpIg #/registration)

Limited research is available on how pregnancy and lymphedema or lipedema impact each other, and even less evidence-based information is available for treatment options. This webinar will cover the changes during pregnancy and the post-partum period that impact the lymphatic system and how one can safely treat any signs or symptoms that develop.

The guest presenter will be Dr. Shelley Smith DiCecco, PT, PhD, CLT-LANA, CI-CS. Dr. DiCecco has decades of experience treating lymphedema, is the founder of LymphEd.

Limited research is available on how pregnancy and lymphedema or lipedema impact each other, and even less evidence-based information is available for treatment options. This webinar will cover the changes during pregnancy and the post-partum period that impact the lymphatic system and how one can s...

07/24/2026

A recording of our July webinar is now available — Ge***al Lymphedema: Everything You’ve Wanted to Know But Were Afraid to Ask (https://youtu.be/ZvaiIujzFU4).

Because it is still taboo to discuss our “private parts” in public,...

07/21/2026

We’ve recently made several upgrades to our Supplier Directory and it is now bigger and better than ever! (https://lymphedemaproject.org/find-a-supplier/) New features include:
* The ability to search for a supplier by name, in addition to the existing option of a distance-based search using your zip code or state.
* The ability to filter your search results by item type, body part, brands sold, and insurances accepted.
* The addition of approximately 1,000 more suppliers, bringing the current grand total to nearly 1,500 suppliers nationwide.

We hope that you are finding this resource helpful. If your supplier is still not in the directory, please encourage them to join by clicking on the “Register” button at the top of the Supplier Directory homepage. It’s 100% free to join, but suppliers do need to register their own businesses. (https://lymphedemaproject.org/find-a-supplier/)

Lymphedema Supplier Directory Suppliers: Please add your business to this free directory by clicking on the "Register" button above and creating a ...

07/10/2026

You’re invited to a special Community Conversation webinar hosted by ARPA-H taking place on Wednesday, July 15, from 12:00–1:30 p.m. ET. The meeting will bring together patients, researchers, advocates, clinicians, caregivers, and visionaries who are helping build a new future for lymphatic health. You’ll also discover how to participate in Voice Sessions that will directly shape research priorities and technology development. A recording will be sent to all those who register for the meeting, even if you are unable to attend live, so please register! (https://engage.arpa-h.gov/glide-conversations)

Join us for a special conversation that brings together patients, researchers, advocates, and visionaries who are building a new future for lymphatic health. Learn about LIGHT (diagnostics) and GLIDE (therapeutics)—two groundbreaking ARPA-H programs working to make lymphatic dysfunction detectabl....

07/09/2026

ACTION ALERT: If you or your patients have been denied coverage by an Aetna or United Healthcare insurance plan, please use our Denial Reporting Form (https://www.surveymonkey.com/r/denial-form). Reports are encouraged regardless of your insurance plan, but we are preparing outreach to these two companies and want to make sure we have heard from anyone who has been negatively impacted by their current lymphedema coverage policies. Your voice makes a difference!

Take this survey powered by surveymonkey.com. Create your own surveys for free.

07/08/2026

Register now for our next webinar, taking place on July 21st at 3:00 PM Eastern — Ge***al Lymphedema: Everything You've Wanted to Know but Were Afraid to Ask (https://zoom.us/webinar/register/WN_FI5cw5hvTAe_F9ze0jI2dA #/registration)

Because it is still taboo to discuss our "private parts" in public, ge***al lymphedema is often overlooked and left untreated. This presentation will help participants understand the anatomy of the pelvic region, common causes of ge***al lymphedema, the most common signs and symptoms, and evaluation and treatment techniques.

Attendees will learn how to recognize ge***al lymphedema, understand the importance of not ignoring the area, learn how to modify complete decongestive therapy (CDT), and the importance of hygiene.

Our guest presenter will be Dr. Shelley Smith DiCecco, PT, PhD, CLT-LANA, CI-CS. Dr. DiCecco has decades of experience treating lymphedema patients and is also the founder of LymphEd. We hope you can join us!

The guest presenter will be Dr. Shelley Smith DiCecco, PT, PhD, CLT-LANA, CI-CS. Dr. DiCecco has decades of experience treating lymphedema and is also the founder of LymphEd.com. Because it is still taboo to discuss our "private parts" in public, ge***al lymphedema is often overlooked and left untre...