MPN Research Foundation

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MPN Research Foundation

Patient-centric foundation that exists to fund research & improve outcomes for those living with MPNs Driving groundbreaking research. Improving lives.

Founded by patients for patients, MPN Research Foundation is a catalyst for research funding in pursuit of new treatments – and eventually a cure – for polycythemia vera (PV), essential thrombocythemia (ET), and myelofibrosis (MF) – blood cancers collectively known as myeloproliferative neoplasms (MPNs). To date, we have funded more than $18 million in MPN research. Through a combination of MPN c

ancer research, advocacy and education, we bring together patients, researchers, and clinicians around the common goal of realizing new treatment options and ultimately, a cure for MPNs.

06/19/2026

Too many myeloproliferative neoplasm (MPN) patients feel alone — and the data proves it.

The MPN Research Foundation’s 2026 MPN Unmet Needs Assessment found that:
• 63% of patients feel others don’t understand what they’re going through
• 64% report a negative impact on their quality of life

These findings highlight a critical gap, not just in care, but in connection and emotional support.
MPN Research Foundation is bringing these unmet needs to light — helping drive awareness, research, and better support for the MPN community.

And this is where organizations like Imerman Angels play a vital role. Through their 1:1 peer support model, Imerman Angels connects patients and caregivers with someone who truly understands the MPN journey, helping to close the empathy gap identified in the assessment.

Because no one should have to navigate an MPN diagnosis feeling misunderstood or alone.

Learn more about support: https://f.mtr.cool/uxtsmseorn

If you would like to gain access to the 2026 MPN Unmet Needs Community Assessment, please email: [email protected]

06/16/2026

A Phase 3 clinical study from Italfarmaco is now enrolling adults with polycythemia vera (PV) to evaluate an investigational treatment.

This study may be an option for adults with PV who meet specific eligibility criteria. A study doctor can help determine whether participation may be appropriate based on an individual’s medical history and treatment experience.

Interested in learning more? Talk with your doctor or review the patient‑approved study information to see whether this clinical study may be an option. Participation is always voluntary and may help advance research in polycythemia vera.

Talk to your care team about this trial: https://f.mtr.cool/chrbonuuij

MPN Research Foundation does not endorse any specific treatments or trials. We raise awareness of relevant clinical studies and pending treatments, regardless of sponsor or investigator. Our staff, advisors, and Board of Directors remain neutral while advancing mission-aligned efforts.

06/12/2026

Because of you, scientific progress continues.

Together, you raised more than $89,000 for MPN research this past May in honor of our founder, Bob Rosen.

Bob’s daughter Shapiro, with the support of their friends and family, led the charge once again, raising over half of this campaign's total contributions!

At a time when funding is uncertain, this support matters more than ever. This fall, we’re investing $1M+ in early-stage research to keep fueling new ideas, testing approaches, and building the evidence needed to bring new treatments from bench to bedside.

Your generosity fuels progress toward better treatments — and ultimately cures — for essential thrombocythemia, polycythemia vera, and myelofibrosis.

Thank you for believing in what’s possible.

06/11/2026

One week to go!

Scientific presentations are a major way myeloproliferative neoplasm (MPN) research is shared, but they’re not always designed for patients and caregivers.

Join us next week for MPN Pathways: Empowered Voices in Research
Patients’ and Caregivers’ Guide to Scientific Presentations.

Featuring:
• Amielle Moreno, PhD, Scientific Content Manager, MPN Research Foundation
• Tyler Parsons, PhD, MPN researcher and member of the MPN Research Foundation Patient Impact Council

Date: June 18
Time: 5–6pm CT
Virtual | Free | Recording available

Learn practical strategies to identify key messages, understand scientific language, and engage more confidently with MPN research.

Register today to earn credit toward your MPN Research Foundation Research Advocate Certification: https://f.mtr.cool/ewotnynbrj

06/09/2026

Meet Dana: a patient sharing her journey with polycythemia vera (PV). From diagnosis to treatment challenges and finding her voice through self-advocacy, her story is a powerful reminder that you’re not alone.

Watch, learn, and explore more resources to support your myeloproliferative neoplasm (MPN) journey: https://f.mtr.cool/alnxyzemdu

In collaboration with Mechanisms in Medicine

06/04/2026

We’re grateful to the UChicago Medicine for welcoming the MPN Research Foundation team into the Drazer Group lab and HIM Lab following the 2026 MPN Roundtable™.

Seeing early-stage research up close is a powerful reminder of where progress in myeloproliferative neoplasms (MPNs) starts and how it gets from bench to bedside: collaboration across the entire MPN community.

Thank you to the University of Chicago team for welcoming us and for giving our team a meaningful look at the collaborative effort behind progress in MPNs.

👉 Join the effort to advance MPN research: https://goto.mpnresearchfoundation.org/4pIYQrn

06/01/2026

Over the past months, we’ve been working to implement some improvements to the MPN PROGRESSion Registry® enrollment and portal systems. Scroll through the images to learn about the updates that have launched!

This initial round of enhancements is just a start. We are committed to making the Registry the best possible experience for patients during enrollment, and throughout long-term participation. So, we’ll be working to improve the MPN PROGRESSion Registry® system on an ongoing basis. Let us know how we are doing.

Already a participant? Log in to your portal to see some of the changes.

Not yet enrolled? Join us! Learn more and register today: https://f.mtr.cool/hppxdpxbez

05/30/2026

One early investment can create a lasting ripple effect.

Since 2007, MPN Research Foundation has championed the Myeloproliferative Neoplasm Research Consortium, a collaborative network now spanning 17 institutions. An essential part of this work is the MPN‑RC Tissue Bank, one of the world’s largest collections of myeloproliferative neoplasm (MPN) patient blood and bone marrow samples.

These real‑world specimens allow researchers to study disease progression, biomarkers, and treatment response in ways laboratory models alone cannot. Nearly 2,000 patient samples are already advancing discovery worldwide.

This is what foundational funding makes possible. There is still time to support the infrastructure that allows research to move faster and further.

Invest in research: https://f.mtr.cool/oswwaaquob

05/28/2026

For people living with myeloproliferative neoplasms (MPNs), progress means more than scientific breakthroughs; it means getting better treatments to patients sooner. As the MPN community works to modernize how clinical trial success is measured, the 2026 MPN Roundtable™ highlighted important lessons from another blood cancer that has made real progress in this area: multiple myeloma.

In his keynote, Dr. C. Ola Landgren, MD, PhD, shared how years of collaboration helped the myeloma field agree on meaningful markers of treatment response, including minimal residual disease, or MRD, a way of detecting very small amounts of remaining cancer after treatment.

What can MPN research learn from this path?
• Earlier answers can lead to faster progress. In myeloma, MRD helped researchers understand sooner whether a treatment was working.
• Shared standards build trust. Agreeing on how and when to measure response made results more reliable across studies.
• Working together makes the difference. Advances came from researchers, doctors, industry, and regulators working toward a common goal.

This is why convening the community matters. At MPN Research Foundation, we bring researchers, clinicians, patients, caregivers, and industry together at events such as our annual MPN Roundtable to align on unmet needs and move the field forward together.

Stay connected and be part of what comes next: https://f.mtr.cool/mshgmqmeov

05/27/2026

Scientific research shapes progress in myeloproliferative neoplasm (MPN) care but scientific presentations aren’t always easy to follow.

Join us for MPN Pathways: Empowered Voices in Research: Patients' and Caregivers’ Guide to Scientific Presentations.

Date: June 18
Time: 5–6pm CT
Location: Virtual

Free | Recording available

Featuring:
• Amielle Moreno, PhD, Scientific Content Manager, MPN Research Foundation
• Tyler Parsons, PhD, MPN researcher and member of the MPN Research Foundation Patient Impact Council

Together, they will break down how scientific presentations work and how to find the key message, even when the details feel complex.

Register today: https://f.mtr.cool/gpvwtanhtv

Address

PO Box 10743
Chicago, IL
60610

Website

http://www.mpnresearchfoundation.org/

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