MPN Research Foundation

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MPN Research Foundation

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Patient-centric foundation that exists to fund research & improve outcomes for those living with MPNs Driving groundbreaking research. Improving lives.

Founded by patients for patients, MPN Research Foundation is a catalyst for research funding in pursuit of new treatments – and eventually a cure – for polycythemia vera (PV), essential thrombocythemia (ET), and myelofibrosis (MF) – blood cancers collectively known as myeloproliferative neoplasms (MPNs). To date, we have funded more than $18 million in MPN research. Through a combination of MPN cancer research, advocacy and education, we bring together patients, researchers, and clinicians around the common goal of realizing new treatment options and ultimately, a cure for MPNs.

10/07/2026

Research is stronger when it includes the voices of the people most affected by MPNs.

That’s why we’re so proud to announce that 60 patients and caregivers dedicated their efforts and earned certification as Patient Research Advocates! Through MPN Research Foundation's MPN Pathways: Empowered Voices in Research education program individuals can now better understand MPN research and the role the patient voice can play in advancing it.

Through 9 educational sessions, our first cohort of participants explored topics including MPN science, clinical trials, drug development, and patient engagement. More importantly, they gained the knowledge and confidence to contribute informed perspectives that help shape the future of MPN research.

At MPN Research Foundation, we believe research moves forward when patient and caregiver insights are part of the conversation. Programs like MPN Pathways help ensure those perspectives are informed, empowered, and connected to the broader research community.

Over the next few weeks, we'll share experiences of newly certified advocates about what they learned and why they chose to get involved.

Interested in becoming a certified Patient Research Advocate or learning more about MPN research?

Explore MPN Pathways and join our community: https://www.mpnresearchfoundation.org/mpnpathways

[email protected]

10/06/2026

Blood Cancer Awareness Month May Be Over. Progress Continues.

Throughout Blood Cancer Awareness Month, patients and caregivers, healthcare professionals, researchers, advocates, and supporters came together to raise awareness, share knowledge, and spotlight the ongoing needs of people living with myeloproliferative neoplasms (MPNs).

With September now at a close, MPN Research Foundation would like to thank the organizations that supported our Blood Cancer Awareness Month efforts, including programs such as You & MPN and the MPN PROGRESSion Registry®. Their support helped amplify education, awareness, and conversations that matter to the MPN community.

Progress in MPNs happens because many groups contribute in different ways. Patients share their experiences. Researchers pursue new discoveries. Clinicians improve care. Partners, sponsors, and donors help make educational and research initiatives possible. Together, those contributions build momentum toward better understanding, better treatment options, and ultimately better outcomes.

Thank you to everyone who helped make this year's Blood Cancer Awareness Month meaningful. We look forward to continuing the work together.

❤️ Join us in thanking our supporters and partners.

Blood Cancer Awareness Month sponsors: Sobi, Novartis, Sumitomo Pharma, and Kartos Therapeutics
You & MPN sponsors: Disc Medicine, GSK, Incyte, Merck, PharmaEssentia, Sumitomo Pharma, and Takeda
MPN Progression Registry sponsors: Sobi, GSK, Karyopharm Therapeutics, PharmaEssentia, and Calytrix Bio

10/05/2026

Thank you for supporting MPN research during Blood Cancer Awareness Month.

Whether you shared your story, advocated for research, connected with others, started a fundraiser, or made a gift, you helped strengthen the MPN community.

Because of supporters like you, the MPN Research Foundation invested $2 million in 8 new research projects through the 2026 MPN Challenge, supporting innovative science and the next generation of discoveries in myeloproliferative neoplasms (MPNs).

Meet the 2026 MPN Challenge award recipients: https://www.mpnresearchfoundation.org/mpn-challenge

10/02/2026

Congratulations to Brian R. and Karen M., the winners of our first MPN PROGRESSion Registry® participant appreciation drawing! Each received a $150 prepaid gift card.

Fully enrolled and consented participants will be entered into randomized drawings twice a year.

Watch for details on the next one.

09/30/2026

Today is the final day of Blood Cancer Awareness Month.

We've reached 70% of our goal of $25,000. Help us raise the final $7,500 by midnight to fund MPN research.

Every advance in myeloproliferative neoplasm (MPN) research begins with people who believe better treatments and cures are possible. Your gift helps fund research that moves the field forward for people living with essential thrombocythemia, polycythemia vera, and myelofibrosis.

Make your gift today: https://www.mpnresearchfoundation.org/donate-to-mpn-research/

09/29/2026

Blood Cancer Awareness Month ends in 48 hours, but we aren’t slowing down.

MPNs affect more than 300,000 people in the US alone. Yet, they’re still misunderstood within the broader cancer conversation. This gap in awareness has consequences: delays in diagnosis and care, and too little funding for research that could change lives.

YOU can be part of the solution.

With your help, we can close the gap in understanding and treating MPNs. Understanding leads to earlier diagnosis, better research, and better care.

Will you share this and show your support for MPN research? https://www.mpnresearchfoundation.org/donate-to-mpn-research

09/24/2026

This Blood Cancer Awareness Month, we stand with a worldwide network of partners.

Thank you to Canadian MPN Research Foundation, MPN Advocacy & Education Int'l, MPN Advocates Network, MPN Alliance Australia, Blood Cancer United, Global MPN Scientific Foundation, MPN Education Foundation, MPN Cancer Connection, PV Reporter, Cancer Research & Treatment Fund, Inc., MPN Voice and more!

And thank you to all the patient-led groups, research collaborators, and advocacy allies who are also at the forefront of this united mission.

Together, we are stronger.

Together, we are turning awareness into action and action into progress for MPN patients and families everywhere.

Join the movement and donate today. Your gift fuels collaboration, accelerates discovery, and helps create a brighter future.

Will you share this and help fund MPN research this month? https://www.mpnresearchfoundation.org/donate-to-mpn-research

09/23/2026

This Saturday, September 26, marks the 1st anniversary of the MPN PROGRESSion Registry®.

To every one of the 700+ patients who has joined the study; to every physician, health care provider, researcher, and nonprofit partner who has helped spread the word; and to our biopharma sponsors who have helped bring the Registry to life: THANK YOU for helping us embark on this important research journey.

Together, you’re turning collective effort into a meaningful force for progress in myeloproliferative neoplasm (MPN) research. We’re just getting started! https://goto.mpnresearchfoundation.org/46DAkRC

09/22/2026

An MPN diagnosis can introduce a whole new vocabulary. Understanding common testing terms can help patients ask informed questions and take a more active role in conversations with their care team.

This Blood Cancer Awareness Month, we’re getting back to basics.

Do you know your ABCs of MPN testing?

A — Allele burden
Also called variant allele frequency, allele burden estimates the proportion of tested gene copies carrying a specific mutation, such as JAK2, CALR, or MPL. JAK2 mutations are the most common, found in nearly all people with polycythemia vera and about half of those with essential thrombocythemia or primary myelofibrosis. How this measurement is used can vary by diagnosis and clinical situation.

B — Bone marrow biopsy
During this procedure, a small sample of bone marrow is collected and examined. It can reveal features such as marrow cellularity, abnormal blood-cell development, and fibrosis that may not be apparent from blood tests alone.

C — Complete blood count
A complete blood count (CBC) measures red blood cells, white blood cells, hemoglobin, hematocrit, and platelets. Clinicians use these results alongside symptoms and other testing to help diagnose an MPN, monitor blood counts, and guide care.

What term should we add next? Tell us in the comments.

This Blood Cancer Awareness Month, will you help us continue providing trusted education to the MPN community? https://www.mpnresearchfoundation.org/donate-to-mpn-research/

09/18/2026

One of the questions many people living with an MPN ask is: Will my disease progress, and can progression be predicted earlier?

Predicting disease progression remains one of the biggest challenges in MPN care. A newly published Perspective paper in Leukemia explores how biomarkers, biological measurements that can be tracked, may help researchers and physicians better understand how MPNs change over time.

The publication, Defining and predicting disease progression in myeloproliferative neoplasms: a proposed biomarker-driven approach, outlines a roadmap for developing more precise ways to monitor disease progression and evaluate future treatments.

It also highlights the work of the MPN Progression Research Network (PRN), a collaborative initiative established by MPN Research Foundation to accelerate research focused on understanding, preventing, and treating MPN disease progression. MPN Research Foundation is proud to support making this publication open-access and freely available to patients, caregivers, researchers, and clinicians.

📖 Read the publication: https://www.mpnresearchfoundation.org/progression-research-network

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PO Box 10743
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http://www.mpnresearchfoundation.org/

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