08/19/2026
🛝💙 For 3-year-old Bedford, a rare diagnosis became the beginning of a story that would bring thousands of people together.
When Bedford was 18 months old, he was diagnosed with Schwartz-Jampel syndrome (SJS), an extremely rare genetic condition that causes muscle stiffness throughout the body and affects the way bones and joints develop. There are only 150 medically recorded cases of SJS worldwide, experts say. As his parents, Hollie and Jesse, began navigating life with his diagnosis, they started sharing little moments online. Today, more than 1 million people follow Bedford’s journey, cheer him on virtually, and are motivated to tackle the challenges in their own lives, the way he does.
One of Bedford’s biggest challenges was also one of the most ordinary: finding a place to play.
As Bedford prepared to start preschool, Hollie realized the school’s playground wasn’t designed for a child who uses a walker. She shared the desire for more inclusive play spaces online, and the response was extraordinary.
The family was connected with Unlimited Play, a nonprofit committed to creating inclusive playgrounds where children of all abilities can play together. Together with Little Tikes Commercial and an incredible community of donors, the Ericksons raised nearly $700,000 to build not only the inclusive playground of their dreams, but a sport court and pavilion to go alongside it.
On Aug. 15, Bedford’s Playground officially opened at his school in Kankakee, just in time for his schoolyear. Designed so children with and without disabilities can play alongside one another, the space features accessible surfacing, sensory areas and an accessible “spine” that allows Bedford to move around comfortably with his walker.
One of the most wonderful parts of Bedford’s story is all in his name.
“To see his namesake come to fruition in teaching people that everyone’s life does have meaning and matters…it’s been such an amazing thing for us to watch as parents, but as people, too.”
Read Bedford’s full story, including the unexpected meaning behind his name, and how an inspired community helped build a place where every child can play and belong, on the blog: https://www.luriechildrens.org/en/blog/its-a-meaningful-life-bedfords-rare-diagnosis-social-media-movement-and-playground-for-all/