Cincinnati Children's Heart Institute

Cincinnati Children's Heart Institute The Heart Institute is a world-renowned leader in pediatric and adult congenital heart care. Together we can change the outcome.

If you or your child faces the ongoing challenge of heart disease, nothing but the best, most knowledgeable care will do. The Heart Institute provides world-class care as a result of our unique partnership between our top researchers and physicians. With our family centered care, we work with you to develop the best care plan for you or your child.

Day 1 of our annual scratch golf camp! Thank you to the First Tee-Greater Cincinnati & No. Kentucky and Congenital Heart...
07/30/2026

Day 1 of our annual scratch golf camp! Thank you to the First Tee-Greater Cincinnati & No. Kentucky and Congenital Heart Alliance of Cincinnati for all of their hard work! 🩷 An absolute gorgeous day and great turnout!

The Cincinnati Children's Heart Institute has been recognized as a Cardiomyopathy Center of Care by the Children’s Cardi...
07/30/2026

The Cincinnati Children's Heart Institute has been recognized as a Cardiomyopathy Center of Care by the Children’s Cardiomyopathy Foundation, a national nonprofit focused on pediatric cardiomyopathy. This recognition was based on the Cincinnati Children's Heart Institute's excellence in diagnosing and treating children with all forms of cardiomyopathy. Pediatric cardiomyopathy is a chronic and potentially life-threatening heart disease that affects how the heart pumps blood through the body.

Thank you, Children's Cardiomyopathy Foundation for this honor!

07/29/2026

šŸ’™ Because of you, something incredible happened today.

Together with our generous supporters, donors, and our amazing partner, Luxie Charm, we were able to donate $15,000 worth of adaptive pajamas, swaddles, and scented hearts to the Cardiac ICU and Heart Institute at Cincinnati Children’s Hospital.

These aren’t just pajamas.

They are thoughtfully designed for medically fragile newborns and babies with lines, wires, and monitor which allows them to stay dressed while still receiving the lifesaving care they need.

For many families, these pajamas will provide something they have been longing for: the chance to dress their baby and perhaps for the first time. A moment that can mean everything when your child is fighting congenital heart disease.

James spent nearly six weeks in the Cardiac ICU and only wore clothes during his end-of-life memory making. We know firsthand how meaningful that simple act of putting pajamas on your baby can be.

Our hope is that these donations bring comfort, dignity, and a small sense of normalcy to families during one of the hardest seasons of their lives.

To every person who donated, shared our fundraiser, encouraged us, and believed in this mission, thank you beyond words. This impact belongs to all of you.

We hope to continue to honor the legacy of babies gone too soon and that is the most beautiful legacy we could ever imagine. šŸ’™

"I will never forget the moment I heard the words, 'Your baby has a congenital heart defect.' It was impossible to fully...
07/28/2026

"I will never forget the moment I heard the words, 'Your baby has a congenital heart defect.' It was impossible to fully comprehend what was being said. Like so many parents who receive that news, we were scared, overwhelmed, and desperate for reassurance that our child would be okay. In an instant, we were trying to understand a diagnosis we had never anticipated and what it would mean for our son’s future.

We soon learned that Palmer had Tetralogy of Fallot with Double Outlet Right Ventricle, a complex congenital heart defect that would require open-heart surgery. Once the initial shock began to settle, our focus shifted to learning everything we could, asking questions, and placing our trust in the medical team guiding us forward.

Palmer was born prematurely at 35 weeks and spent his first days in the NICU. Seeing such a tiny baby surrounded by monitors, wires, and constant medical attention was overwhelming. Yet even during those difficult early days, we were consistently reminded that he was strong, that his condition was treatable, and that there was a clear plan in place. That plan became something we could hold onto when everything else felt uncertain.

During that season of fear and unknowns, we found an unexpected source of hope while watching Shaun White compete in the 2018 Winter Olympics. Learning that he had been born with the same heart condition and then seeing him perform and win on one of the world's biggest stages was incredibly reassuring. I remember thinking that if someone with the same diagnosis could thrive at that level, then our child could too.

Later, we watched an interview Shaun White gave on The Tonight Show Starring Jimmy Fallon, where he shared how his parents never allowed his heart condition to define him or limit what he could do. They did not place him in a bubble or let fear dictate his future. That perspective stayed with us and ultimately shaped how my husband, Jeremy, and I chose to parent Palmer.

The day Palmer underwent open-heart surgery was one of the hardest days of our lives. We placed complete trust in his surgeon, Dr. Morales, and the entire cardiac team caring for him. The hours spent waiting for updates felt endless, and when we finally heard the words that the surgery had been successful, it brought a level of relief and gratitude we will never forget.

Throughout every step of Palmer’s journey, Cincinnati Children’s has been extraordinary. Their cardiology team provided not only exceptional medical care, but also reassurance, compassion, and confidence. They cared for our family as a whole, helping us move forward with hope instead of fear.

Today, Palmer continues to receive annual cardiology care at Cincinnati Children’s. We know that as he grows, he will eventually need a pulmonary valve replacement. Yet because of the remarkable advances in congenital heart care and the incredible team overseeing his health, we face the future with confidence and gratitude rather than uncertainty.

Now eight years old, Palmer is thriving. This summer, he was selected to play on an All-Star baseball team and currently plays club soccer for Fall City in Louisville, Kentucky. Lately, he has become especially focused on kicking field goals. Almost every day, you can find him in our backyard lining up kick after kick, simply because he loves it and believes he can do it. Right now, he says he wants to be an NFL kicker, and we encourage him to dream big.

Palmer’s heart condition is part of his story, but it does not define him. Because of the care he has received at Cincinnati Children’s, and because of the example set by others who have walked a similar path before him, he is growing up with the confidence to pursue his goals without limits. He knows that his heart has made him strong, not fragile.

We will always be grateful for the role Cincinnati Children’s has played in Palmer’s life. Their expertise, compassion, and unwavering support have given us the confidence to raise him with hope, resilience, and the belief that anything is possible."

"We found out when I was 22 weeks pregnant that Sawyer would be born with Hypoplastic Left Heart Syndrome (HLHS). Basica...
07/22/2026

"We found out when I was 22 weeks pregnant that Sawyer would be born with Hypoplastic Left Heart Syndrome (HLHS). Basically, he doesn't have a left ventricle.

He had his first open-heart surgery, the Norwood procedure, when he was just 5 days old and remained inpatient for 31 days. During that stay, his left lung collapsed while he was recovering, but his medical team was able to resolve it after a couple of days.

We also learned that he has a genetic blood-clotting disorder called Factor V Leiden. After his first heart catheterization, he developed a blood clot. His entire leg turned purple, and there was no pulse in his foot for nearly two weeks.

He was 5 months old when he had his second heart surgery, the Glenn procedure. Around that time, while recovering from another catheterization, he went into SVT. I've never been more impressed with how quickly the medical team reacted. I was terrified, but they were fast, calm, and knew exactly what to do.

He was 3 years old when he underwent his third surgery, the Fontan procedure. The surgeon also attempted to repair his leaky tricuspid valve but wasn't satisfied with the results and ultimately reversed the repair. The valve is still leaking today, but it has remained stable over the years and is currently only being monitored.

Since then, he's completed occupational therapy, speech therapy, and physical therapy, endured countless pokes and procedures, undergone multiple heart catheterizations, and participated in several research programs at Cincinnati Children's.

He turned 10 this past summer and is growing into an incredibly resilient, smart, funny, kind, and thoughtful young man. He consistently earns a spot on his school's Principal's List for straight A's and tests above his grade level. He plays baseball and was able to serve as a team manager for the football team for the first time this year. He also loves cheering on his younger twin sisters and is the best big brother.

He's fascinated by space and science and loves Legos, swimming, fishing, trivia, and puzzles. And he ALWAYS has a joke to tell!

P.S. Mr. Moose has been by his side since the day he was born and has probably had just as many pokes as Sawyer! šŸ˜†"

All transplant patients and their families are invited to our annual Heart Transplant Family Picnic! Transplant patients...
07/15/2026

All transplant patients and their families are invited to our annual Heart Transplant Family Picnic!

Transplant patients will receive a free picnic t-shirt. Additional t-shirts are available for purchase for $10.00. Shirt orders must be placed by September 4.

We are accepting suggestions for picnic t-shirts this year. Please submit phrasing, a design idea, or a link to [email protected]

07/15/2026

Caring for infants to adolescents, Cincinnati Children's Hospital Medical Center is an international leader in pediatric medicine, research and education.

The 7th Annual Greater Cincinnati Chess Tournament Fundraiser is 30 days away! This event is raising money for our Bette...
07/10/2026

The 7th Annual Greater Cincinnati Chess Tournament Fundraiser is 30 days away! This event is raising money for our Better Health and Nutrition clinic.

You can register at GCCTFUNDRAISER.ORG or using the link, located in the comments!

A heartfelt thank you to the Jared Ryder Foundation for generously sharing a beautiful book cart with our patients!Readi...
07/08/2026

A heartfelt thank you to the Jared Ryder Foundation for generously sharing a beautiful book cart with our patients!

Reading can bring comfort, inspiration, and a welcome distraction during difficult times, and this thoughtful gift will help brighten the days of many patients and families. We are grateful for the Jared Ryder Foundation's impact through their kindness and generosity. Thank you for helping us create meaningful moments and support healing, one book at a time. šŸ“–āœØ

We're still reminiscing about Camp Joyful Hearts 2026! Our Cincinnati Children's photographer was able to capture the ab...
07/06/2026

We're still reminiscing about Camp Joyful Hearts 2026! Our Cincinnati Children's photographer was able to capture the absolute magic we experienced at Camp Joy ā¤ļøāœØ

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3333 Burnet Avenue
Cincinnati, OH
45229

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