GBS-CIDP Foundation International

06/08/2026

Thank you, Philadelphia, for another unforgettable Walk & Roll this past Saturday! 💙💚

A special shoutout to our Walk & Roll Manager, Zach, whose passion, dedication, and heart helped make this event so meaningful—especially here in the Foundation’s hometown of Philly.

And thank you to our incredible staff, volunteers, sponsors, and everyone who showed up, walked, rolled, supported, and raised awareness with us. Because of you, this event continues to grow and bring our community together in such a powerful way.

Philadelphia—we can’t wait to do it again next year! Stay tuned for more photos!

06/07/2026

You have the power to shape the future of care for CIDP patients across Europe!
Part of the Principles of Care for CIDP initiative, we invite you to share your experiences as a CIDP patient, caregiver, or health care professional through a virtual discussion. Your insights can help improve care standards, advocacy efforts, and inform health policy discussions. To learn more and register, visit bit.ly/499837h

06/04/2026

Individuals with late-onset neuromuscular diseases (LONDs) often wait years for a diagnosis. The new LOND Clinical Decision Tool supports earlier recognition by helping first‑line healthcare providers recognize key symptoms sooner and guide appropriate and timely referrals.

Learn more and download the tool: WhyBehindWeakness.org

06/04/2026

We’d like to extend a note of gratitude to Nancy Di Salvo, Director of International Affairs, for representing the foundation at this year's ECRD conference.

Nancy met with our Allied partners from Germany and Romania and presented our Principles of Care for CIDP poster. The poster was created in collaboration with Epodin and Patvocates to depict a 4-year-long project aimed at co-developing a patient-centered European framework to guide advocacy, clinical practice, and policy.

06/03/2026

This , we’re celebrating Miles for GBS and honoring his GBS journey as he takes on Mount Ventoux in France around August 24, 2026—an “epic” 26 km (16.2-mile) climb to raise awareness for GBS and support the GBS Patient Assistance Fund.

Like so many living with GBS, Miles knows recovery is rarely a straight path.

“You can only do it one day at a time,” he said. “And some days, you need to stop and rest.”

Support Miles & find out more: https://go.gbs-cidp.org/gbs26

06/03/2026

Our International Affairs Director, Nancy DiSalvo, is attending the European Conference of Rare Diseases in Prague.

If you’re attending, stop by her booth to say hello and learn more about the CIDP Principles of Care — a multiyear initiative the Foundation is proud to lead to improve treatment and care standards for CIDP patients across Europe.

06/02/2026

Palermo, Italy joined the global movement for GBS|CIDP Awareness Month! 💙💚

The historic Teatro Massimo lit up in blue and green, helping raise awareness for GBS and CIDP. Seeing landmarks around the world shine in our colors reminds us that awareness is growing and our community is stronger than ever.

06/02/2026

There is still time to register for our Philadephia Walk and Roll this Saturday! https://p2p.onecause.com/walkandroll26/event/philadelphia-walk-and-roll

Every year, our Walk & Roll community comes together to raise funds and awareness for individuals and families affected by GBS, CIDP, MMN, and related conditions.

Today, we're excited to share that every donation made to the Philadelphia Walk & Roll between now and June 6th will be matched dollar for dollar, up to $1,500, thanks to the generosity of the National Public Safety Alliance for Individuals with Disabilities (AID).

If you've been considering making a donation, now is the perfect time! Your gift will go twice as far in helping fund research for our community

Join us as we continue to make an impact together!

Double your donation through the link below:

https://p2p.onecause.com/walkandroll26/event/philadelphia-walk-and-roll

05/31/2026

Philadelphia shines green for GBS, CIDP & MMN Awareness Month 💚

This is just one of the many cities that lit up in support this month, and we’re proud to share just a few of them throughout May. If your city joined in, share your photos with us in the comments below!