07/05/2026
THIS IS A RE-POST, of my response to a request by a P.T. in developing a treatment plan for folks who might or might not be genetically tested to have confirmation of their symptoms:
Hello , i'm an OT with forty years experience , and I wish that people would understand that it (Ehlers Danlos Syndrome and all its shades of joint laxity and hypermobility) is a breakdown of the connective tissue , so lots of supplementation in terms of collagen and minerals and avoiding inflammatory foods is number one , and number two is that their hypermobility is a detriment , but that does not mean they can't capitalize on stability. There's lots of posts here about subscap and shoulder-neck pain , and to me , that is so common for every person who does not use their back body , which happens when people sit all the time!!! Walking backwards is a start! Look at seating position! I am constantly seeing the same kind of symptomatic reports in people without this diagnosis and it seems apparent to me that this is not part of the educational presentation on how to live with this unbelievable laxity. I just saw a You Tube circus soleil presentation of a woman who balanced 13 huge ribs by hardly moving, but her range of motion and never wobbling is superhuman. I would swear she has this condition, but she has built co-contraction so well, that she is almost superhuman in strength, with hips, feet, legs...I would bet anything that she is one who has learned the secret of stabilizing with contracting. Also I wish they knew the power of compression clothing, sacral bands, rock tape and use these tools (like from jellyband to where they're a special weave of lykra ) very supportive and gives their brain some information about where they are in space against gravity, here on earth....
