Sweet William's Way with Krabbe

Sweet William's Way with Krabbe William is an 12 year old with early infantile Krabbe Leukodystrophy. He had a stem cell transplant at 5 months old to slow the progression of the disease.

William is the son of Robert and Abbey (Glasgow) Branch. He was diagnosed with Krabbe Leukodystrophy at the age of 5 months old. Krabbe is a tragic, progressive terminal genetic disorder. The only treatment at this time is a stem cell transplant that needs to be caught at birth, but most do not know until its too late for treatment. Learn more about Newborn Screening at www.huntershope.org. We are here to educate and share our story.

Haven't posted much lately, but wanted to let all know William is doing well, and here he is part of the Bacon Buddies a...
08/08/2026

Haven't posted much lately, but wanted to let all know William is doing well, and here he is part of the Bacon Buddies at the Mississippi Valley Fair today! He got to show a pig with his 4H mentors. 🐷 They all did a great job!


πŸ§‘πŸ’™12 more sleeps with this big soft cast.  Then new X-rays, and hopefully can begin PROM (passive range of motion).He al...
07/06/2026

πŸ§‘πŸ’™

12 more sleeps with this big soft cast. Then new X-rays, and hopefully can begin PROM (passive range of motion).

He also gets another Zometa infusion the day he gets his new X-rays. This will be his third infusion and we are hopeful his bone health will continue to improve. Every little bit helps.

Such a gorgeous day in Iowa today. β˜€οΈ

Thankful for my family and our followers today (and every day!). ❀️

Photo dump from the past few weeks!Some of these are from the United Leukodystrophy Foundation Family and Scientific Sym...
07/03/2026

Photo dump from the past few weeks!

Some of these are from the United Leukodystrophy Foundation Family and Scientific Symposium that we attend every year. πŸ’™ I didn't take nearly enough pictures!

Hope you all had a Happy Father's Day weekend!  πŸ’™We went bowling, played baseball and ended it with a trip to see family...
06/22/2026

Hope you all had a Happy Father's Day weekend! πŸ’™

We went bowling, played baseball and ended it with a trip to see family. ☺️

Tuesday, he gets his cast removed for new X-rays. Hopefully he can keep it off, and is healing well! Or, he may need another replaced. TBD!

Saturday morning baseball!  ⚾ 🌞 Thank you to all that came out to cheer on the Davenport Challenger League!
06/13/2026

Saturday morning baseball! ⚾ 🌞

Thank you to all that came out to cheer on the Davenport Challenger League!

πŸ₯³ William had a wonderful birthday weekend!  First, thank you to all that have sent him cards and gifts!  We have one fr...
06/08/2026

πŸ₯³ William had a wonderful birthday weekend!

First, thank you to all that have sent him cards and gifts! We have one from almost every single state and that's pretty amazing! He will be sending everyone a little something in return... at some point ☺️.

πŸ₯ We started the weekend off with visiting his Ortho surgeon for a healing check-in. Everything is healing as expected and he will have his cast removed in 2.5 weeks with new X-rays, then a reassessment.

That night, he attended Unified Bowling 🎳 where we saw a lot of familiar friendly faces, then Challenger Baseball ⚾ the next morning where he again had a group of fans πŸ₯ΉπŸŒŸπŸ‘πŸ½, then a small birthday party at our home 🏑, and finally opening up all of the cards, presents and packages and blowing out candles on his Monster Truck birthday cake. πŸŽ‰

We even had a friend "Card My Yard" (pic below) and got lots of Happy Birthdays from our amazing neighbors! πŸ˜„

🏫 He starts summer school tomorrow just a few hours a day, and we will continue trying to have some relaxing fun time doing some other things he loves to do. 🌞

Thank you for making his weekend so special, despite being in a big fat uncomfortable cast!! πŸ’ͺ🏽

If you would still like to send him a card, please feel free to do so! We celebrate at some level almost all month! Please see previous posts for wishlist and address. πŸ’™

I'm pretty emotional at every birthday and holiday for that matter. William makes things better and we are so blessed to be his parents. ☺️

Few updates on our guy!πŸŽ‚ There are just a few days left to check out William's birthday Wish List (and other random medi...
05/31/2026

Few updates on our guy!

πŸŽ‚ There are just a few days left to check out William's birthday Wish List (and other random medical supplies not covered by insurance):

https://www.amazon.com/hz/wishlist/ls/148PXOH9RZ40L?ref_=wl_share

πŸ’Œ Birthday cards can also be mailed to:
William Branch
PO Box 62
Davenport, IA 52805

πŸ’š Monetary donations sent directly to William:
https://www.paypal.me/sweetwilliamsway

He is turning 12! πŸ₯³

πŸ₯ Last week, William's pediatric orthopedic surgeon manipulated his leg in clinic and placed a hard cast. We go back end of this week to see how he is healing.

William chose the cast color. Go Cubs, Go! πŸ’™ He's so tough...

πŸŽ’ Thank you for thinking of our kiddo! He is officially now a 7TH GRADER. He will start summer school next week! πŸ₯Ή

⚾ Picture below is William at his Challenger Baseball game! He loves to play! Thankful for the opportunities we have in the QCA.

William has a fractured leg.  ☹️ And a few weeks before his 12th birthday.....Will you help us make this birthday extra ...
05/28/2026

William has a fractured leg. ☹️ And a few weeks before his 12th birthday.....

Will you help us make this birthday extra special? He loves receiving cards. πŸ’Œ

William Branch
PO BOX 62
Davenport, IA 52805

He has had to miss the last week of 6th grade and a baseball game, so some cheering up is in order.

We go to his Ortho tomorrow to make sure all is healing well. He is comfortable but just bummed. ☹️

πŸ₯Ή Proud parent moment.  He did well at his school recognition assembly earning of 1st honors, then we headed straight ou...
05/23/2026

πŸ₯Ή Proud parent moment. He did well at his school recognition assembly earning of 1st honors, then we headed straight out the door for physical and occupational therapy (enter his disgruntled look...its hard work!)

He is one of the most inspirational people I've ever met.

Nine more sleeps and we have a 7th grader.

Promise we have fun sometimes πŸ˜†. Challenger Baseball game tomorrow morning! Hooray for 3-day weekends and summer time!!! 🌞



Address

PO BOX 62
Davenport, IA
52805

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