05/17/2026
May is EDS Awareness Month 🖤🤍
Ehlers-Danlos Syndromes (EDS) are a group of connective tissue disorders that affect so much more than just joints. It’s complex, often invisible, and for many people… deeply misunderstood.
EDS was first brought to my attention during my first year of grad school. Looking back, the signs were there before that, but they really started showing up when I had a medical school-induced sedentary lifestyle.
I remember sleeping on my side and feeling my shoulders literally pop in and out of place.
And my SI joint would shift every single time I got in and out of my car.
And the fatigue… the kind that doesn’t really go away no matter how much you sleep.
My sister used to get so frustrated because every time she asked how I was, my answer was always the same:
“I’m tired.”
At the time, I didn’t have the language for it.

I just knew my body felt… off. Constantly sore. Unpredictable. Exhausting to live in.
What’s changed (and what I’m so grateful for) is the growing awareness around EDS.
We’re finally starting to recognize that this isn’t just about being “flexible.”
It’s about connective tissue that impacts the entire body and patterns that don’t always show up clearly on labs.

It’s about people learning to navigate bodies that don’t always cooperate.
And most importantly—it’s about being seen and understood.
Awareness really does change things.

It leads to better conversations, better care, and a whole lot more compassion.
And for those navigating it day to day, support matters. For many people (including myself), that can look like:
đź–¤Prioritizing rest (without guilt)
đź–¤Staying well hydrated
đź–¤And strength training (in a safe, supportive way)
Not as a "fix," but as a way to better support a body that needs a little more care.
To anyone living with EDS—you’re not alone 🤍
MoreThanFlexible
