Erdheim-Chester Disease Global Alliance

Erdheim-Chester Disease Global Alliance Erdheim-Chester Disease Global Alliance | Dedicated to awareness, support, education, and research for the rare disease ECD worldwide.

Hydration matters, especially with ECD. Keep water handy, snack on watermelon & cucumber, and build small habits that su...
07/15/2026

Hydration matters, especially with ECD. Keep water handy, snack on watermelon & cucumber, and build small habits that support your well-being.

Living with Erdheim-Chester Disease (ECD) often means paying close attention to your health. Between appointments, treatments, and the many demands of daily ...

You went above and beyond and because of you, hope goes further. Thank you for your generosity, dedication, and unwaveri...
07/01/2026

You went above and beyond and because of you, hope goes further. Thank you for your generosity, dedication, and unwavering support of the ECD community. Together, we’re making a lasting difference.

Our hearts are full. Because of your incredible generosity, enthusiasm, and support, the ECDGA Virtual Fun Run, Walk, or Roll raised an amazing $23,626.00! ...

Today’s the last day! There’s still time to support the ECDGA Virtual Fun Run, Walk or Roll. Every donation helps advanc...
06/30/2026

Today’s the last day! There’s still time to support the ECDGA Virtual Fun Run, Walk or Roll. Every donation helps advance research, education, and support for the ECD community. Finish strong with us!

As our ECDGA Virtual Fun Run, Walk, or Roll comes to a close, we invite you to be part of something bigger than a fundraiser. You can be part of a community ...

Only 48 hours left! Every donation is still being matched, doubling your impact for the ECD community. Don’t wait help u...
06/29/2026

Only 48 hours left! Every donation is still being matched, doubling your impact for the ECD community. Don’t wait help us unlock the full match before time runs out.

Time is running out! There are just 2 days remaining to take advantage of our $10,000 Matching Challenge, which means every dollar you give will be matched ...

Because of you, hope keeps growing. Every donation, every mile, every shared story strengthens the ECD community. Thank ...
06/27/2026

Because of you, hope keeps growing. Every donation, every mile, every shared story strengthens the ECD community. Thank you for standing with us and making a difference together.

Give a huge round of applause to Team Rocky Mountain High Captains, (Bob and Janet Froetscher), who completed an incredible 10-mile bike ride as part of the ...

Every step, every donation, every shared story you make this community stronger. Thank you for standing with ECDGA and h...
06/26/2026

Every step, every donation, every shared story you make this community stronger. Thank you for standing with ECDGA and helping bring hope, support, and awareness to families around the world.

For many people, sunshine means outdoor activities, vacations, and time spent with family and friends. For individuals living with Erdheim-Chester Disease ( ...

Every step, every donation, every shared story you make this community stronger. Thank you for standing with ECDGA and h...
06/25/2026

Every step, every donation, every shared story you make this community stronger. Thank you for standing with ECDGA and helping bring hope, support, and awareness to families around the world.

When someone hears the words "You have Erdheim-Chester Disease," they often have more questions than answers. Where do I find information? Who can ...

We’ve raised $6,545 toward our $10,000 match goal—and every donation is still being doubled. Help us unlock the full mat...
06/24/2026

We’ve raised $6,545 toward our $10,000 match goal—and every donation is still being doubled. Help us unlock the full match and create an even greater impact for the ECD community.

Did you know? A gift made today goes twice as far because of our Final Week $10,000 Matching Challenge. Every dollar helps ECDGA provide patient support, ed ...

The finish line is in sight! This is your final chance to rally your team, boost your fundraising, and make every mile c...
06/23/2026

The finish line is in sight! This is your final chance to rally your team, boost your fundraising, and make every mile count for the ECD community. Let’s finish strong together.

We have an incredible opportunity. A generous donor has offered $10,000 in matching funds for the final days of our ECDGA Virtual Fun Run, Walk. and Roll.. ...

The clock is ticking. There are only a few days left to double your impact and help fund research, education, and suppor...
06/20/2026

The clock is ticking. There are only a few days left to double your impact and help fund research, education, and support for the ECD community. Don’t miss the chance to make every dollar go twice as far.

A generous donor is matching all donations made during Week 3 up to $10,000. Don't miss this opportunity to DOUBLE your impact. If you've been wai ...

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Deridder, LA

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Monday 9am - 5pm
Tuesday 8am - 5pm
Wednesday 9am - 5pm
Thursday 8am - 5pm
Friday 9am - 5pm

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