06/06/2026
Yesterday, Maverick completed another exercise study at University of Michigan Children’s Hospital. While we are still waiting for the official results to be released to his portal, the physician shared that the testing showed further decline, and those findings will also be sent to Cleveland for review.
At home, Maverick’s oxygen levels are often between 85–88%. When he sleeps, they drop into the 70s.
Simple daily activities that most people don’t think twice about can be exhausting. The other day, he and his sister Emme rode their bikes to the high school, less than a quarter mile from home. What should have been a simple ride ended with Maverick needing to turn around and come right back because he was so fatigued. Exercise is important, but with heart failure there is a fine line between staying active and pushing too hard.
These days, our walks are usually just to the stop sign and back. If you see Maverick using a scooter at the store, please know he isn’t being lazy or goofing around. He simply does not have the energy reserves that most of us take for granted.
Not all illnesses are visible. Sometimes the strongest people are fighting battles you can’t see.
Thank you for continuing to support Maverick’s journey and keeping him in your thoughts as we wait.
❤️
