09/08/2026
This month, our team wore shirts in honor of one of our amazing patients and their family. We are so grateful to be part of this child’s journey and to have the opportunity to celebrate their strength, resilience, and unique abilities.
Aicardi-Goutières Syndrome (AGS) is a rare genetic condition that can affect the brain, immune system, development, movement, communication, and more. Every child’s journey with AGS is different.
We’re proud to stand alongside our very special friend to help spread awareness for this rare disease. 💜 If you’d like to rock your own Harrison’s Thunder shirt, please see the following link! Proceeds go towards rare disease research at the Children’s Hospital of Philadelphia!
https://www.bonfire.com/harrisons-thunder/?utm_source=copy_link&utm_medium=campaign_page_share&utm_campaign=harrisons-thunder&utm_content=default
Rare diseases may be rare, but the children who live with them are truly extraordinary.
