Briggs & Brody’s battle with Batten Disease CLN2

Briggs & Brody’s battle with Batten Disease CLN2 Determined to find a cure for Batten Disease CLN2. Help us spread awareness and fight for a cure! ❤️‍🩹 Follow our story as we navigate our new ‘normal’.
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Venmo: ashley-gray-222

08/20/2026

HAPPY INFUSION THURSDAY 💉

A brief look at the process. Every. Time. Brody and Briggs are in separate rooms, and obviously they require an adult in each room.

We aren’t all here because we’re a “tight knit family”. We have no choice. Both of us have to be with one of the boys, PLUS our other 2 children who roam between rooms.

4th floor. Infusion clinic. ❤️

Brody is SO happy to be back at school, my heart is just as happy for him! 🥲😭❤️‍🩹Briggs….he looks unhappy, but he’s been...
08/13/2026

Brody is SO happy to be back at school, my heart is just as happy for him! 🥲😭❤️‍🩹

Briggs….he looks unhappy, but he’s been excited too! 🤣🫶🏽

🥹😭🫶🏽
08/12/2026

🥹😭🫶🏽

08/11/2026

He caught his balance at the end.

I just love him 🥲😭💔

If there’s one thing about Brody…..He doesn’t discriminate when it comes to water! His face WILL be in water, even as a ...
08/11/2026

If there’s one thing about Brody…..

He doesn’t discriminate when it comes to water! His face WILL be in water, even as a puddle…..because, welllll, he can’t see to know better! 😭🥲❤️‍🩹

A swim after school with friends, what could be better?! 🫶🏽

BACK TO SCHOOL 🤩🥹🫶🏽
08/10/2026

BACK TO SCHOOL 🤩🥹🫶🏽

They made him very upset today 😭🥲
08/04/2026

They made him very upset today 😭🥲

08/04/2026

Briggs is mostly non-verbal, so most of his communication is touching, or pointing.

For obvious reasons, the hospital makes him anxious & you can really see it here as we waited in the waiting room for his checkup.

Check-up. Or post-op surgery. Always the following day. They check for inflammation, infection, etc. then we get to take...
08/04/2026

Check-up. Or post-op surgery.

Always the following day. They check for inflammation, infection, etc. then we get to take the 3 hour drive home!!

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Franklin, IN
46131

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