Team Maddie Strong - Fighting together

Team Maddie Strong - Fighting together Contact information, map and directions, contact form, opening hours, services, ratings, photos, videos and announcements from Team Maddie Strong - Fighting together, Medical and health, Grand Rapids, MI.

NEW ACCOUNT.HER OLD ACCT WAS HACKED.Maddie was diagnosed with a rare form of brain/spine cancer.She also has a rare genetic mutation they can’t diagnois along with LiFraumeni.Her sister Avah was also diagnoised with LiFraumeni and one they can’t diagnois.

Lots of appointments and it’s only Tuesday tomorrow is another one for this girl . Brain tumor clinic tomorrow afternoon...
09/16/2026

Lots of appointments and it’s only Tuesday tomorrow is another one for this girl . Brain tumor clinic tomorrow afternoon at 1pm. This mama scheduled her next surgery and still waiting on making Madison’s appointment for her scope that she needs to have . Mott’s children’s hospital to meet with her neurosurgeon to discuss surgery .Avah has her sedated MRI next week on the 22nd . Praying nothing is found and her results are clear . Lifraumeni Syndrome sucks and it’s so unfair .. so many unknowns and always watching them. I hate this life for them but they are both very strong and brave . Got the kids school pictures back and they turned out good . Avah isn’t 💯 on board with hers but she doesn’t want to retake either . Which I gave her the option but I think they turned out good . They are all 3 growing up so fast 🥹 but they will always be my babies . Hunter finally lost the other half of his tooth last night so the tooth fairy made another visit to his room . The tooth fairy is broke lol Bills never stop when we don’t have the money to pay . Things are very tough and I’m barely getting by . With all the appointments, surgeries and procedures that I have and have coming up. It’s so hard . I’m so behind and trying to catch up isn’t happening.Then you add field trips and everything in between. Life is hard but we can get through it . Barely pushing through . But staying positive, praying and crossing all my fingers and toes .Trying to enjoy the little things but that’s even getting harder. I wish I could take away all that my kids have to go through . Madison endures so much pain daily and her anxiety has been bad. School is a struggle right now , trying to get her IEP set for her . It’s def hard when you have to transfer 10 years of going to the same school to a brand new staff and whole new school. Things are different but trying to get her the help she needs .So we will have a meeting coming up next week with her teachers . I will never stop fighting for my kids . NOT EVER!! I would love to plan a vacation for us one day to have some family time and just enjoy being a family, without appointments, without all the daily struggles and stress. Wishful Thinking🤞

Happy Saturday to everyone!! I’m going to try and take Madison to this event today and see if I can get her a homecoming...
09/12/2026

Happy Saturday to everyone!!
I’m going to try and take Madison to this event today and see if I can get her a homecoming dress 🤞 I’m still so happy that she wants to go . She’s so strong and brave and this makes my mamas heart to happy . Homecoming is September 25 so not much time to find a dress but I hope we can . Yesterday Avah had a field trip with her class (whole middle school) to Camp. She has fun with friends and lots of fun activities. Her friend sister sent me a couple pics and I’m Grateful for that . I’m sad I missed it . But Hunter needed me ❤️ Thank you for all the continued love and prayers . We love you all. ❤️

It’s been a very stressful and busy week … lots of appointments and sports ⚽️ 🏐Then today I was suppose to drop Avah and...
09/11/2026

It’s been a very stressful and busy week … lots of appointments and sports ⚽️ 🏐
Then today I was suppose to drop Avah and Hunter off to Camp with their classes for the day. But unfortunately Hunter woke up with pain in his abdominal area. So been having him ice and going to watch him today. Called the dr and doing what they said to do. It’s never a easy day here at this house . So he had to miss the day with his class but I managed to get Avah a last minute ride . I really hope it’s nothing 😭 this mama can’t take much more .
But.. I was just informed by Madison last night that she wants to go to Homecoming with her friend . I am so excited for her . Her first ever high school dance and even more excited that she wants to go !! My baby is growing up !! But now we have to find a dress . So many things going on but this makes my mamas heart so happy 🥹❤️ She has made a couple friends so far in school and this is huge for her . It took her 4 years to make friends before . I’m so happy that she’s getting better with taking to people . I’m so very proud of her and the young lady she has become . My baby is so brave and strong . She continues to inspire me each and everyday . Team Maddie Strong

Another busy week … filled with appointments for Maddie and I and sports for Avah and Hunter . Found out today I have to...
09/10/2026

Another busy week … filled with appointments for Maddie and I and sports for Avah and Hunter . Found out today I have to have another surgery . But it’s ok , pretty minor I guess . But not thrilled about it. Maddie had her first Mary free Bed PT appointment. It went well . Just did an evaluation today next week will be the start of a 12 week course . Praying and hoping this helps her leg. She’s in pain all the time with it . But she got some mail that definitely helped her smile today. Thanks Mandy for the bday gifts . She is loving her weighted highland cow so much , hoping it will help with her anxiety. Thanks so much for thinking of her . She loved all the gifts . Yesterday she received a bday card in the mail , this girl loves getting mail. She goes to the mailbox everyday hoping for something. It helps her smile and definitely makes her day. Thanks for all the love for Maddie . She deserves to be celebrated and loved each and everyday . She is a true warrior and inspiration to so many. We are Team Maddie Strong.

It’s been a Avery busy week celebrating this sweet girl Turning Sweet 16 🎀🤠🐮 From appts to celebrating her 16th birthday...
09/08/2026

It’s been a Avery busy week celebrating this sweet girl Turning Sweet 16 🎀🤠🐮 From appts to celebrating her 16th birthday Friday with more appts and some lunch with her siblings and grandma . Then it was Trying to get the final touches and things done for her Sweet 16 surprise party on Sunday . It was a lot but I managed to pull It off without her even knowing . She was surprised and I think it turned out pretty good . I will be posting more pics but it only allows me to post 20 at a time so keep watching for more pics . Madison also got a couple more cards and another gift as well. I want to say a huge Thank You to everyone who has sent Happy Birthday message /comments, cards and gifts . Thank you so much for thinking of Maddie and making her birthday so special . Thank you to everyone that came to her surprise party and helped make her day so very special . She has to endure so much and on Sunday she was able to just enjoy being 16. No appointments, no thinking about the hospital, she was just able to enjoy friends and family !! Thanks again for all your continued love prayers and support . You all mean so much to us. We love you all.

Madison had a great day I think well except having to be at the hospital for two appts . Talk more about those later . I...
09/05/2026

Madison had a great day I think well except having to be at the hospital for two appts . Talk more about those later . I just wanted to say a huge Thank you to everyone who wished Maddie a Happy Sweet 16 , Sent her a card or a gift . It definitely made her day and week. So thank you so very much for putting a smile on her face . We are so thankful for all the kind words and support . It means so much to us . This girl continues to fight each and everyday just to live . It seems like it’s always something unfortunately but she manages to get through it with a smile even through the tears . Which has be been a lot of those lately 😭 But with all of you it helps us get through even the darkest days . So thank you so very much . Please keep the prayers and positive vibes coming . If you still would like to send a card or gift let me know . We will be celebrating this girl all weekend and honestly she’s celebrated every single day . As we approach her Surprise Sweet 16 party on Sunday . I’m needing some help with things . If you would like to help in any way let me know . I’m really trying to make this happen and make it the best surprise ever. She deserves to forget about her medical stuff for one day . One day she can just be a “normal” teenager !! If you would like to donate /contribute anything we have Vemno, cashapp and PayPal . They are all linked in her bio/ about me section on IG and Facebook. Thank you so much . Please continue to like , follow and share . Let’s fight together and show Madison the best sweet 16 birthday ever !!

https://www.paypal.me/TeamMaddieStrong

https://cash.app/$TracyPagel42

https://venmo.com/u/Tracy-HovingaPagel

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Grand Rapids, MI
49508

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