08/19/2026
Well guys, when Weston Thomas does something, he does it BIG! 😅💙
This definitely isn’t the 10-month update I was hoping to give you, but I promise it has a very happy ending. 🫶🏼
Sunday morning, Weston was having breakfast when he suddenly started having what looked like seizure activity. We immediately packed up and headed to the ER at USA Women’s & Children’s because this had never happened before.
Thankfully, I was able to catch a video of his movements while they were happening. That video ended up being incredibly important for the doctors as they tried to figure out exactly what was going on.
Weston was admitted and placed on a 24-hour EEG so they could watch his brain waves and determine whether he was actually having seizures or if something else was causing the movements.
Unfortunately, the EEG confirmed that he was having seizures—specifically a type of epilepsy called infantile spasms.
Those were the quick, jerky movements we noticed during breakfast. But what we didn’t realize was that Weston was also having other seizure activity throughout the day and night that we weren’t seeing.
The neurologists believe we caught this VERY early, which is such a blessing. 🙏🏼
Weston was started on Keppra, and after just ONE dose, the spasms stopped. 🥹 We’re now adding another daily medication to help keep his seizures under control, but seeing such a noticeable difference in him after just one day was an absolute eye-opener.
And here’s the part that really gets me…
Over the last several weeks, Weston had started losing skills he had already learned. He stopped clapping as much, smiling as much, rolling over, mimicking us, and doing some of the other little things that had become part of who he was. As his mama, I knew something wasn’t right, and it scared me.
It turns out that regression can be a sign of infantile spasms.
BUT—there is HOPE. ❤️
As we get his seizures under control and his brain gets the chance to heal and develop, there is a very real possibility that he can regain those skills.
And we are already seeing it.
While this certainly wasn’t the 33rd birthday I had planned, I got to see Weston SMILE and CLAP for the first time in weeks. 🥹😭
And honestly? That was the best birthday gift I could have ever received.
My baby is still fighting. And so are we. 💙
PRAISE GOD for early detection, incredible doctors, medication that is already working, and the sweetest little boy who continues to show us just how strong he is. 🙌🏼
Thank you to everyone who has prayed for Weston, checked on us, loved on us, and continues to walk this journey with our family. We have felt every single prayer. 🫶🏼
Here’s to 10.5 months, a whole lot of unexpected plot twists, and hopefully MANY more smiles and claps to come. 💙
