Jamiebug: Life After Transplant

Jamiebug: Life After Transplant Life breathing with someone else's lungs since 2007. Cystic Fibrosis, Cepacia, Double Lung Transpla

05/28/2026

Transplant Check up and a family church history experience. Four Generational Family trip. Grandma, Mom and dad, Nikki and me ) our spouses and great grandchildren Bodi & MJ. What a blessing and miracle to be together still. God is good. :5 UPMC Joseph Pilewski

Just one day before we go see my Dr Pilewski! I'm lucky I have such a brilliant doctor. I'm praying good test results an...
05/19/2026

Just one day before we go see my Dr Pilewski! I'm lucky I have such a brilliant doctor. I'm praying good test results and no signs of rejection.

Also a lip cancer updates photo…i can't believe believe how great it's healing…👄 can you even see it.

Warning ⚠️ Before and after pic is tough to look at. Progression of my lip.

Quick cancer in my lip update: surgery day! This picture Is a little graphic but it’s the reality of what our immune sup...
04/21/2026

Quick cancer in my lip update: surgery day! This picture Is a little graphic but it’s the reality of what our immune suppression can do to our bodies. I’m grateful my meds are working to keep my lungs happy and cancer process their doing this job as well. . I’m waiting on a plastic surgeon to fix it all up. I’ll post another update as it heals.

04/01/2026

UPMC

We are having a beautiful early spring. I’ve been able to go out and play with my horses a few times. * my lip cancer is...
04/01/2026

We are having a beautiful early spring. I’ve been able to go out and play with my horses a few times.

* my lip cancer is scheduled for MOHS surgery on April 21st and the plastic surgeon will get it closed up (and looking beautiful) that same day.

*We will be in Pittsburgh in May for my annual follow up. I will be 18 years 6 months post transplant. Hopefully my lip will be healed up by the time we have to travel.

Enjoy some pics of my little pug and my fat horse Stardust 😊 I can’t believe she’s 4 this year. She is taller than me and is standing at 15hh and could still grow 😭 anyone know how to train her to lay down so I can get on her? 🤪

My PFT’s are steady and I’ve been feeling great.

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Idaho Falls, ID

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