A Cure For Everett

06/06/2026

It did take 45 minutes. 🫠 Mom was nervous and literally sweating with the scissors. ✂️ There are not any videos or content, bc cutting his hair took undivided attention so he didn’t end up with micro bangs!

P.S. Send me tips for home haircuts to help with the little hairs going everywhere bc the cleanup was the hardest part!

If you’d like to support Everett and our journey to a cure you can:
💙 Make a tax-deductible donation, find our GoFundMe, and shop our merch at ACureForEverett.org
💙 Donate via Venmo at ACureForEverett.

Thank you! 🙏

06/05/2026

Getting those reps in!

If you feel called to support Everett:
💙 Make a tax-deductible donation, find our GoFundMe, and shop our merch at ACureForEverett.org
💙 Donate via Venmo at ACureForEverett.

Thank you! 🙏

06/04/2026

Everett’s story is featured on KXAN NBC in Austin! We are deeply grateful to Eric Henrikson for helping share our story and raise awareness of the life-changing work Rare Labs is doing.

Please check out the article and watch the video that so thoughtfully tell E’s story, and how we are trying to change the trajectory of our sweet little boy’s life.

If you feel called to support Everett directly:
💙 Make a tax-deductible donation, find our GoFundMe, and shop our merch at ACureForEverett.org
💙 Donate via Venmo at ACureForEverett.

Thank you!

https://www.kxan.com/news/science/austin-family-races-to-save-baby-with-ultra-rare-disease-as-scientists-work-on-cure/

A Travis County family is racing to raise $3 million to develop a one-of-a-kind treatment for their baby, who has an ultra-rare genetic disease affecting fewer than 50 people worldwide. Scientists …

06/03/2026

If you’re looking for additional ways to support Everett, please DM me and can send you this printable PDF that you can share with your work, local businesses or anywhere you think would help spread awareness.

Help us turn hope into action. You never know who might see this and it could change the trajectory of our sweet boy’s life.

Support Everett Directly:
💙 You can make tax-deductible donations, find our GoFundMe, and shop our merch at ACureForEverett.org
💙 Donate via Venmo at ACureForEverett.

Thank you!

05/30/2026

Join Team Everett and help change the trajectory of my sweet boy’s life.

We are working to raise $3 million to fund the research and treatment for his ultra-rare genetic condition, which has a heartbreakingly high mortality rate.

💙 You can make a tax-deductible donation, find our GoFundMe, and shop our merch at ACureForEverett.org
💙 Donate directly via Venmo at ACureForEverett.

Please follow, like, and share Everett’s story so we can reach the supporters who can make his future brighter.

Every action helps.

Thank you. 💙
time

05/28/2026

This week has been some work…E is keeping Mom on her tippy toes, but thankfully we’ve been managing at home and have avoided a trip to the hospital.

Help us keep fighting for Everett’s future where he can be anything he wants to be. Donate at acureforeverett.org
Or Venmo:

Donate. Share. Follow.

Thank you. 🩵

05/26/2026

Donate. Share. Follow. Like.
Turn hope into action.
Everything helps.

Speaking it into existence that we will fund and develop a cure for my sweet boy. We are making progress!

Donate at ACureForEverett.org or Venmo

Thank you 🙏 💙

05/25/2026

Help E live his best life possible. We’re raising $3 million to fund a cure for his ultra-rare genetic condition.

Join Team Everett and donate at ACureForEverett.org or Venmo directly .

Every donation, follow, like, share helps move the research and development forward.

Thank you. 💙

05/25/2026

Everett has an ultra-rare genetic condition, and we’re racing to fund the research that could change his future.

We’re fighting for more ordinary little moments like this one.

We can’t do it alone.

Donate at ACureForEverett.org or directly Venmo

Thank you. 💙

05/24/2026

He’s delicious. Chubby thighs and cheeks we can’t stop squishing.

Help us keep pushing forward to keep E healthy and growing. You can support our fight at acureforeverett.org or donate directly via Venmo

Donate. Share. Follow.
Join Team Everett.

Every action helps.

Thank you. 💙
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