Addy's Fight With Leukemia

Addy's Fight With Leukemia On July 3rd 2024, Addy was diagnosed with B-Cell Acute Lymphoblastic Leukemia or ALL and has since relapsed in February 2026.

This page has been created for her prayer warriors to stay updated on her fight!

Had a few hours away today! Jon came to the hospital this morning and I went home to wash clothes and hang with Joey. We...
06/04/2026

Had a few hours away today!

Jon came to the hospital this morning and I went home to wash clothes and hang with Joey. We had some lunch and then watched a movie.

As for Addy, her bilirubin numbers are finally dropping!! Hemoglobin and platelets have dropped and ANC is still at zero. We’re continuing to work on nausea and eating. Hopeful that this is an upward trend 🤞🏻

Not a terrible day…Last night went well. Addy and I both slept pretty good. Bilirubin is still up and increasing, leavin...
06/04/2026

Not a terrible day…

Last night went well. Addy and I both slept pretty good. Bilirubin is still up and increasing, leaving her body very yellow. Her a ANC is still at zero, and hemoglobin and platelets have both dropped again. Based on the trend, she will likely need a transfusion tomorrow.

Addy had a few bouts of throwing up today. She’s now on almost every nausea medication available, and still has breakthrough episodes. She ate a croissant and drank a pink drink from Starbucks this afternoon, but 3hrs later it all came up. Proud of her for making the attempt to eat, just wish it would stay down.

Last dose of oral chemo tonight!! Then nothing until next week. Now we can work on getting her feeling better! 🩷

We tried, to no avail.Addy was taken off NPO yesterday afternoon. We ordered her a baked potato, though she didn’t reall...
06/02/2026

We tried, to no avail.

Addy was taken off NPO yesterday afternoon. We ordered her a baked potato, though she didn’t really care for it. She did eat the pickle spear that came with my sandwich.

She woke up looking very yellow today. She’s jaundice from her bilirubin being so high. She is currently receiving a medication to help break that up. Today she was supposed to receive 2 chemo meds, Vincristine and Calaspargase. Because of her counts/numbers, she’s only receiving Vincristine at 1/2 the normal dose. She will receive the CalPeg once her bilirubin numbers come down. Other than that, no more chemo this week.

Praying for a restful night, that her counts come and her bilirubin goes down. 🩷

Addy had a great day yesterday!!Addy required no nausea meds or Tylenol yesterday, and her stomach pain level went from ...
06/01/2026

Addy had a great day yesterday!!

Addy required no nausea meds or Tylenol yesterday, and her stomach pain level went from 10 to 3. She sat up in the chair without her heating pad for hours. She was talkative, cracking jokes and even asked about food (she’s still on bowel rest).

More findings from her CT were released this morning. She has some enlarged lymph nodes, her right kidney, liver and gallbladder are all enlarged as well. This concerns me, as she’s getting 2 doses of strong chemo tomorrow (Vincristine and CalPEG). Tomorrow is also her last day of oral chemo. Today’s bloodwork showed all of her number have declined again. ANC is still at zero, and her hemoglobin and platelets have dropped also.

Just taking this day by day. It’s all we can do at this point. 🩷

I knew it was going to change, but seeing it is rough!!Addy’s original estimated discharge date was supposed to be today...
05/31/2026

I knew it was going to change, but seeing it is rough!!

Addy’s original estimated discharge date was supposed to be today. Seeing that date change is hard to handle. Of course it’s not a surprise, but it’s still disappointing.

We had a restful night for the most part. Our night nurse Jenna ALWAYS stays on top of that pump, so we never hear it go off. It definitely makes our stay more bearable when she’s here.

Addy’s ANC is still at zero of course. Her platelets and hemoglobin have also dropped. Her bilirubin has dropped slightly, but a new test for Gamma GT (you’ll have to google it), has increased. I’m really concerned about these numbers being so high, as it could mean liver damage.

She continues to be on bowel rest, and receives nutrition through her port. Her days now are mostly spent sleeping, and if not she’s in pain. I’m also worried that she’s becoming deconditioned again. She worked so hard in PT to get where she was, but all this time in bed is bound to set her back.

Praying today is a better day, and I’ll update again once I speak with her doctors. 🩷

As hard as it was to do, I took the day off today.Jon came to relieve me around 9:30 and I was back home by 11. Joey and...
05/31/2026

As hard as it was to do, I took the day off today.

Jon came to relieve me around 9:30 and I was back home by 11. Joey and I did some shopping, washed some clothes then went to a family dinner at Superior Grill for the 3 May birthday’s. Back to the hospital at 7.

Today was the last day of IV chemo until next week. She still has a lot of discomfort in her stomach and she’s extremely nauseous. Planning on trying some new meds tonight that will hopefully help. We hope everyone had a wonder Saturday!! 🩷

*Our last Superior Grill dinner with Addy

We have some answers!!The results from Addy’s CT scan showed that she has early signs of Typhlitis. Typhlitis (also know...
05/29/2026

We have some answers!!

The results from Addy’s CT scan showed that she has early signs of Typhlitis.
Typhlitis (also known as neutropenic enterocolitis) is a life-threatening, necrotizing inflammation of the cecum and nearby intestines. It primarily affects immunocompromised or severely neutropenic patients—most commonly individuals undergoing chemotherapy for blood cancers or receiving bone marrow transplants.

Thankfully, it is early stages and minor/minimal. This is why they have put her on NPO (nothing to eat or drink by mouth or feeds). They have her on a targeted medication now for that, and she will be on bowel rest. She will have to start TPN (Total Parenteral Nutrition), via IV until it resolves. This isn’t something she can go home with like the NG pump. It’s not believed to resolve until her ANC comes up (still at zero today), which isn’t expected until chemo is done and that won’t be until 6/9. Looks like we’ll be here for 2-3 more weeks. She has her next biopsy on 6/16, which will determine next steps based on the results.
MRD- (no detectable disease) = transplant
MRD+ = more chemo

I’m hoping my girl can get a break at home between whatever next steps are, but we will do what we need to do to keep her healthy. Keep those prayers coming!! 🩷

*Addy and I about 2 months before her diagnosis in 2024, after her very last softball game.

I’ve been awake since 2:30 this morning….Addy woke up to use the restroom and it brought on some nausea. We had to stop ...
05/28/2026

I’ve been awake since 2:30 this morning….

Addy woke up to use the restroom and it brought on some nausea. We had to stop her Pedialyte. She also has a slight cough. Her stomach pain isn’t letting up, and Ativan is the only thing that helps her nausea. At one point today, she threw up what looked like blood clots.

She received some platelets, had a CT scan and chest x-ray, and now we’re waiting on results. Our biggest hurdle is getting something in her stomach. We’re going back to Pedialyte tonight and we aren’t going to titrate up at all. Just want to see if she can tolerate 5ml per hour and go from there. Chemo is done for the day, and we’re just going to rest. Praying for a smooth night and better day tomorrow, with higher numbers (her ANC is still at zero).

*Baby Addy, with her big brothers Joey and Cameron - May 2013.

Today is World Blood Cancer Day. A day I wish my family and I weren’t a part of. Blood and platelets play a crucial part...
05/28/2026

Today is World Blood Cancer Day. A day I wish my family and I weren’t a part of. Blood and platelets play a crucial part in Addy’s treatment, and the treatment of many others battling various blood cancers. Yesterday she received 2 units of blood, and today she will receive platelets. If you are willing and able, please visit any Blood Center site to donate. As always, “replacement for Adalyn Jensen” when doing so. Find a list of available locations at this link 🔗 below ⬇️

https://www.tbcdonors.org/donor/schedules/centers

Addy Update!! 🩷Nothing too surprising today. Her counts have dropped to the bottom, with her ANC at zero, hemoglobin 6.4...
05/27/2026

Addy Update!! 🩷

Nothing too surprising today. Her counts have dropped to the bottom, with her ANC at zero, hemoglobin 6.4 (transfusion planned this afternoon), and platelets are at 15.

We are going to start with some pedialyte this evening very SLOW! She is still having stomach pain, so we will increase as tolerated, in hopes that she can either move on to the pediasure or eat more by mouth. She requested a bag of cheese puffs last night, and of course I obliged.

Her chemo infusion will start in about 30 minutes with a blood transfusion to follow. Other than that, we are just hanging out, sending each other funny cat TikTok’s from across the room.

Address

Madisonville
Madisonville, LA

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