09/12/2026
Day +3 Evening Update!
Ugh… what a day. Today was definitely one of those days where it felt like we were taking one step forward and two steps back.
Addy received 2 more bags of platelets today. We also increased her feeds, but unfortunately that brought on some pretty significant stomach pain. That led to a full abdominal ultrasound, which is never an easy thing for Addy. She ended up needing a dose of morphine just to make it through the hour-long ultrasound. We’re still waiting on those results and praying it’s nothing serious.
The good news is that she did get up and work with OT and PT today, and respiratory has also been coming in to work with her. Even on the days when she feels absolutely awful, she continues to push through. I’m so proud of her!
This evening, though, she really started feeling rough. Her tummy was hurting, she developed a headache, and… cue more morphine. Then her oxygen dropped, so she’s back on oxygen again, and her temperature is running a little elevated.
We’re also trying to figure out which medication is causing her to become so blotchy. Unfortunately, whatever medication it is, they’re all too important to simply stop or change right now. So, unless it starts causing any breathing issues, we’re going to stay the course and keep a close eye on her.
There is just so much happening to her little body right now. We’re only at Day +3, and we know there are still plenty of hard days ahead. But we’re taking it hour by hour and continuing to fight.
Tonight, we’re really hoping for a quiet, restful night. Both of us could REALLY use it.
Please keep those prayers coming for Addy — for her pain to ease, her oxygen to stabilize, her stomach to settle, and for these new cells to keep doing exactly what they’re supposed to do. 🩷