05/31/2026
I knew it was going to change, but seeing it is rough!!
Addy’s original estimated discharge date was supposed to be today. Seeing that date change is hard to handle. Of course it’s not a surprise, but it’s still disappointing.
We had a restful night for the most part. Our night nurse Jenna ALWAYS stays on top of that pump, so we never hear it go off. It definitely makes our stay more bearable when she’s here.
Addy’s ANC is still at zero of course. Her platelets and hemoglobin have also dropped. Her bilirubin has dropped slightly, but a new test for Gamma GT (you’ll have to google it), has increased. I’m really concerned about these numbers being so high, as it could mean liver damage.
She continues to be on bowel rest, and receives nutrition through her port. Her days now are mostly spent sleeping, and if not she’s in pain. I’m also worried that she’s becoming deconditioned again. She worked so hard in PT to get where she was, but all this time in bed is bound to set her back.
Praying today is a better day, and I’ll update again once I speak with her doctors. 🩷