Living With Ataxia

Living With Ataxia LWA is committed to transforming the lives of individuals affected by ALL neurological disorders through innovative exercise and health programs.

https://lwastrong.com/ LWA is committed to transforming the lives of individuals affected by neurological disorders through innovative exercise and health programs. By intertwining physical therapy, exercise, and nutritional guidance, our approach is meticulous and tailored to support individuals at every stage of their recovery journey. Through continuous access to healthcare professionals and a

robust community platform, LWA strives to foster resilience, confidence, and a better quality of life for clients navigating these complex conditions. Mission
Our mission is to improve the quality of life for individuals living with a neurological condition. We are dedicated to providing personalized care that empowers clients through comprehensive rehabilitation, expert support, and a nurturing community, enabling them to actively participate in their own recovery. Problem
Individuals with neurological disorders face numerous challenges, including loss of motor control, coordination difficulties, and social isolation. Traditional rehabilitation methods often lack personalization and ongoing support and most of the focus as far as Ataxia is concerned is centered around research and development of a cure, which doesn't really address the real world concerns of affected individuals in the here and now. This leads to disengagement and unmet health goals. Moreover, many individuals experience barriers to accessing specialized rehabilitation programs in large part because at present there simply aren't very many available if at all, restricting their ability to achieve meaningful recovery. Solution
LWA addresses these challenges by offering our unique combination of personalized exercise regimens and nutritional counseling ensuring clients receive holistic care, as well as tailored pre and post stem cell treatment rehabilitation programs that cater to individual needs. Additionally, our continuous support model allows clients to reach out to our team whenever they face challenges, fostering an environment of trust and empowerment. LWA empowers recovery through personalized care, community support, and a commitment to quality of life. Primary Products & Services
LWA provides a range of products and services designed to support individuals with any neurological condition. Our offerings include:
- Personalized exercise regimens tailored to each client's unique challenges.
- Nutritional counseling to enhance overall health and recovery.
- Ongoing access to expert support via telehealth and community forums.
- Rehabilitation workshops and seminars for education and skill-building.

Saturday. Floor's open.Most of you are sitting on a question you've never asked out loud. Maybe because the last time yo...
08/22/2026

Saturday. Floor's open.

Most of you are sitting on a question you've never asked out loud. Maybe because the last time you asked a doctor, you got a shrug and a referral. Maybe because it feels too small to bother anyone with.

Ask it here.

Balance. Falls. Fatigue that shows up out of nowhere. What to eat. Whether a drill is safe with your condition. What to do when the insurance-approved rehab sessions run out and nobody has a plan for what comes next.

I'm not a doctor and I won't pretend to be one. What I've got is a wheelchair I don't sit in anymore, and years of figuring out what actually moves the needle after being told there was nothing left to try.

Doesn't matter if it's ataxia, MS, Parkinson's, stroke, TBI, neuropathy, CP. Broken signals are broken signals. Signals can be rebuilt.

What's the one question nobody's given you a straight answer to?

β€” Ataxia Alley

πŸ’™ **Your Style. Your Choice. Your Impact.**For a limited time, enjoy **20% OFF EVERYTHING** and discover products you ca...
08/21/2026

πŸ’™ **Your Style. Your Choice. Your Impact.**

For a limited time, enjoy **20% OFF EVERYTHING** and discover products you can customize to match your personality and message. πŸ‘•βœ¨

Choose from **T-shirts, hoodies, mugs, caps, tote bags, phone cases, pillows, and more**β€”pick your favorite design, color, size, or add your own personal touch.

πŸ“… **August 19–23**

πŸ›οΈ **Shop link in the first comment.**

Wear your message. Support Ataxia awareness. Make an impact. πŸ’œ

Someone in our group messaged me this week: "I made it to my mailbox and back without the wall."That's it. That's the wh...
08/21/2026

Someone in our group messaged me this week: "I made it to my mailbox and back without the wall."

That's it. That's the whole win. No fireworks, no finish line tape.

We don't do participation trophies here, but we don't ignore real wins either β€” and that IS one. A rebuilt signal shows up in inches before it shows up in miles. Every one of those inches is proof the nervous system is listening again.

So tell me: what did YOUR body do this week that it couldn't do last week? Doesn't matter how small. Post it below β€” I want to see this thread full.

β€” Ataxia Alley

πŸ’œ **20% OFF EVERYTHING β€” LIMITED TIME!**From T-shirts and hoodies to mugs, caps, tote bags, phone cases, pillows & more ...
08/21/2026

πŸ’œ **20% OFF EVERYTHING β€” LIMITED TIME!**

From T-shirts and hoodies to mugs, caps, tote bags, phone cases, pillows & more β€” choose your favorite product and make it your own. ✨

🎨 **Customize your product your way:** choose your design, colors, size, text, name, or message and create something truly personal.

πŸ“… **August 19–23 only!**

πŸ›οΈ **Shop link in the first comment.**

Wear it. Share it. Support Ataxia awareness. πŸ’™

Website has our new chat. Enjoy!
08/21/2026

Website has our new chat. Enjoy!

Coming SOON!!! The LWA app.
08/20/2026

Coming SOON!!! The LWA app.

I Took a Month Off From Exercise β€” Here’s My First Workout Back | Neurological Disorderhttps://youtu.be/VObFu0PsgZ8Life ...
08/20/2026

I Took a Month Off From Exercise β€” Here’s My First Workout Back | Neurological Disorder

https://youtu.be/VObFu0PsgZ8

Life got busy and I took a full month off from exercising. No workouts, no circuit, nothing. This video is what happened when I came back β€” the exact circuit I ran on day one, what still worked, and what I lost.

Here's the truth nobody tells you: time off isn't a moral failure. It happens. What matters is what you do the day you come back. Most people with a neurological disorder never come back β€” they take a month off, feel worse, and decide the disorder won. That's how "progressive" becomes a self-fulfilling prophecy.

Ataxia isn't weakness. It's a broken signal between your brain and your body. Broken signals can be rebuilt β€” but only if you keep sending them. Exercise is the signal. Nutrition is the material your brain uses to act on it. Neither one works alone.

This applies to every neurological disorder, not just Ataxia β€” MS, Parkinson's, TBI, stroke, transverse myelitis, cerebral palsy, and more.

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LWA PARTNERS β€” brands I actually use

I don't take money to recommend things I don't use. Every one of these is something I personally use and would put in front of someone rebuilding their brain and body. You pay the same or less β€” and it helps keep LWA running.

πŸ”— Full partner page: https://lwastrong.com/partners

R3 STEM CELL β€” LWA's official advisor. I was the first person with Ataxia to undergo stem cell treatment through R3, and I filmed every moment of it. They treat most neurological disorders. No code needed β€” just tell them LWA or Art Thomas sent you. β†’ https://r3stemcell.com

SALTR β€” Salt & Electrolytes. Third-party tested, zero junk. Carnivore and low-carb protocols flush sodium fast, and most neuro patients are depleted without knowing that's why they feel awful. β†’ https://livesaltr.com/LWA10 β€” Code LWA10 for 10% off

SALTT β€” Neurological-safe electrolytes. Hydration matters more than people realize when your nervous system is already under stress. No code needed, discount applies through the link. β†’ https://get.aspr.app/SHv6y β€” 5% off automatically

THE CARNIVORE BAR β€” Real carnivore fuel you can throw in a bag. No fillers, no seed oils, no sugar-bomb "protein bar" nonsense. This is what I eat on the road. β†’ https://carnivorebar.com β€” Code LWASTRONG for 10% off

GRAZLY β€” The clean snack. Easy to grab and it won't wreck the nutrition protocol you're working so hard on. β†’ https://www.grazly.co/LWA β€” Code LWA for 10% off (working on new link)

EQUIP FOODS β€” Not strictly carnivore, but solid clean protein without the junk. Good option if you're easing into the protocol. β†’ https://www.equipfoods.com/LWA β€” Code LWA for 15% off

LWA earns a commission on some purchases made through these links and codes, at no extra cost to you.

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WORK WITH LWA

Every package includes a FREE 30-minute Zoom consultation, custom workouts built around your condition and goals, video demos of every exercise, and nutritional guidance.

🌐 https://lwastrong.com
πŸ“… Free consultation: https://lwastrong.com/contact
πŸ“§ [email protected]
πŸ“± +1 (301) 653-0941 (call or WhatsApp)
πŸ‘• https://lwastrong.myspreadshop.com

Get Comfortable With Being Uncomfortable. LWA β€” Helping People With ALL Disabilities. INDEPENDENCE GUARANTEED.

08/20/2026

Someone commented, and I cannot find who commented it, but they said the following:

"My dad has been diagnosed with cerebellar stroke a year ago from last one month he is having chocking fit ( sometimes while eating or drinking & sometimes normally ) average 4-5 times a day , doctor has prescribed the telecast L (montelucast + levocritizine ) but have not got much relief from that. Can you guys give some suggestions as to what the problem actually is and what are its treatment and precautions?"

My reply:

I'm going to be straight with you because this one matters.

What you're describing sounds like dysphagia β€” swallowing dysfunction. It's one of the most common consequences of a cerebellar or brainstem stroke, and it's not rare. Swallowing is a coordinated motor sequence. The stroke damaged the signal that coordinates it. Food and liquid are going toward the airway instead of the stomach, and the choking is his body trying to protect him.

Montelukast + levocetirizine is an asthma and allergy combination. If the problem is a broken swallow signal, that medication isn't aimed at the problem β€” which would explain why a month of it hasn't helped.

What to ask for, and ask this week: a formal swallow evaluation by a speech and swallowing therapist. The tests are a Modified Barium Swallow Study (videofluoroscopy) or a FEES (fiberoptic endoscopic evaluation of swallowing). These actually show where the breakdown is β€” and whether he's aspirating silently, which is the part that scares me. Some people aspirate without coughing at all.

Why the urgency: food or liquid going into the lungs leads to aspiration pneumonia. That's one of the leading causes of death after stroke, and it's preventable. Four to five episodes a day is not a "wait and see" situation.

Precautions starting today, until he's evaluated:

Fully upright, 90 degrees, for every meal and drink. No reclining, no eating in bed.
Chin slightly tucked toward the chest when swallowing.
Small bites, small sips. One at a time. No stacking.
No talking while food is in his mouth.
No straws for thin liquids β€” thin liquids move too fast to control. Water is often the hardest thing to swallow, not the easiest.
Stay upright 30 minutes after eating.
Keep his mouth and teeth clean. Oral bacteria plus aspiration is what turns into pneumonia.

Go to emergency if you see: fever, a wet or gurgly voice after eating or drinking, coughing that won't settle, or weight loss.

Now the part most people won't tell you. A broken swallow signal is still a signal β€” and signals can be retrained. Swallowing is a motor function, same as walking or reaching. It responds to targeted work. But you need the evaluation first so the work is aimed at the right thing instead of guessed at.

Get the swallow study. Then if you want to talk about the rehab side and what rebuilding looks like for him, we do a free 30-minute Zoom consult β€” no cost, no obligation. [email protected] or +1 (301) 653-0941.

I'm not his doctor and this isn't a diagnosis. But I've been on the wrong end of doctors treating the wrong problem for 18 months, and I'm not going to watch it happen to your dad quietly.

About 60% of your brain is fat. A big chunk of your body's cholesterol lives in your head, holding your nerve cells toge...
08/20/2026

About 60% of your brain is fat. A big chunk of your body's cholesterol lives in your head, holding your nerve cells together.

Then somebody hands a neuro patient a drug built to drive that number down, and nobody in the room asks what it's doing to their balance.

I eat carnivore. Meat, eggs, fish, butter. Ataxia is MS on steroids β€” it's a broken signal, not weak muscles. Exercise sends the signal. Food is the raw material your nervous system uses to rebuild the line. Bad fuel, no rebuild. Same goes for MS, Parkinson's, TBI, stroke, neuropathy.

Straight with you: this will NOT lower your cholesterol. It'll probably raise it. I'm fine with that, because cholesterol is what the brain is built from.

I'm not telling you to touch a prescription. I'm telling you to ask your doctor what it's doing to your balance.

What did you eat today, and did you move steadier or foggier after it?

β€” Ataxia Alley

"You've plateaued."Two words that shut down more recoveries than any diagnosis.Here's what "plateau" usually means in pr...
08/19/2026

"You've plateaued."

Two words that shut down more recoveries than any diagnosis.

Here's what "plateau" usually means in practice: your insurance approved 12 sessions and you used 11. Your nervous system didn't stop adapting. The billing cycle did.

Ataxia β€” MS on steroids β€” damages the cerebellum. So does a stroke. So does a TBI. So does MS itself. That's a broken signal, not dead weakness. Broken signals get rebuilt through repetition, over months and years. Not six weeks in a clinic and a handshake at the door.

But nobody gets paid to sit with you for two years. So they hand you a discharge sheet and call it a ceiling.

You didn't plateau. You got discharged. There's a difference, and it matters.

β€” Ataxia Alley

What did they tell you the day your therapy ended?

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