IBDevoted

02/10/2025

Just a couple weeks away from IBD Family Education Day!!! Register today!!!

IBD Patient & Caregiver Education Conference

Sunday, February 23, 2025
Time: 10:30 a.m. – 4 p.m. ET
Location: Manor House
7440 Mason Montgomery Road | Mason, OH 45040

A day of learning and connecting IBD patients and caregivers of all ages with the latest information and resources on Crohn's disease and ulcerative colitis. Presentations intend for both pediatric and adult patients.

10:30 a.m. - 12 p.m. ET - Registration & Networking
11 a.m. ET - Pre-Conference Session: IBD 101 for Newly Diagnosed

12 p.m. – 4 p.m. ET (main sessions for those not wanting to attend the newly diagnosed session)
General Session & Breakouts on topics ranging from
new medications, nutrition, mental health, research, and more!

1 – 4 p.m. ET
Kids & Teens only sessions including games, prizes, and more!

Mark your calendar and visit website below for more details and to register today!

https://www.crohnscolitisfoundation.org/myibdlearning/cincinnati

Questions? Feel free to contact Renee Etter at [email protected] or Kelly Fitzgerald at [email protected]

Our MyIBD Learning Patient & Caregiver Education Conferences bring you the very latest inflammatory bowel disease (IBD) research, treatments, and therapies to share resources and improve your quality of life, at any stage of your IBD journey.

02/08/2025

I received this email from the Crohns and Colitis Foundation. When you click the link, enter your info and it will populate the appropriate representative for you to advocate on your child's behalf.

I know how passionate you are about supporting IBD patients.

Now we need to identify which members of Congress share your passion and are willing to do even more to pass legislation that benefits people with Crohn’s disease and ulcerative colitis.

With all that’s happening in Washington, D.C., right now, recruiting members of Congress to champion our issues has never been more important.

Ask your member of Congress to join the Congressional Crohn’s & Colitis Caucus and proclaim their support for helping IBD patients. It takes less than a minute to do using our easy action form.

Caucus members will play a leading role in convincing their colleagues and the Administration to support our legislation and bring greater visibility to our issues.

As a small advocacy team, it’s impossible for us to personally reach out to all 435 members of the U.S. House of Representatives. Even more importantly, the request coming from you, their constituent, is far more powerful.

Our easy action form allows you to send your message with just two clicks (or taps on your phone) so please complete this quick action.

We have a robust list of policy priorities and will need a strong Caucus to help move them forward. We’ll be fighting to reduce the cost of IBD treatment, help patients get insurance coverage for the treatment their doctor recommends and so much more.

Thank you for taking this first advocacy action of the year. We can’t be successful without you.

https://action.crohnscolitisfoundation.org/a/2025-caucus?contactdata=DdRvjh1zmUiw7xOiIN17qjGy+%2fJOO0RuP0FDy9o3OGLx7s8OtfAZHdT99exiZZa2s1qE97+77XBbjvvtbY3K0f3wJMAcCOOMFahIsOfCjPvMEtT58JftVtBCS375qEPJurkK4bb8I4FvmYZX28VcYXu%2fDuDApE8ufhHUhUmdS5dSOVYi5FXcTRhl%2fS8zylZa7gX2PcfXP20EKmKS6u3TVFJ3LPxdt42dkpjI3o%2fL75Q%3d&emci=9d255cb6-f6e4-ef11-90cb-0022482a94f4&emdi=6b251496-6ce5-ef11-90cb-0022482a94f4&ceid=3550685

Kerry Donohue
Director, Grassroots Advocacy

The Crohn's & Colitis Foundation is a 501(c)(3) non-profit organization dedicated to finding cures for Crohn's disease and ulcerative colitis and improving the quality of life of children and adults affected by these diseases.

12/28/2023

Looking for ways to support IBD patients, families, and caregivers? Consider partnering with the Crohns and Colitis Foundation to advocate for the needs of patients. It typically takes a couple of minutes to send an email when they reach out to you every once in a while.

One of the best ways to make during is to take action.

The U.S. Department of Health & Human Services is appealing the federal court decision on co-pay accumulators that could have saved IBD patients thousands of dollars per year. We need YOU to sign-up as an advocacy volunteer and help us fight for IBD patients. You don’t need any knowledge of advocacy, policy, or IBD issues to participate.

Take action here: https://bit.ly/3N8YTwr

03/01/2020

Medical Ma*****na for IBD: Hope or Hype? And interesting perspective on current state.

03/01/2020

A snippet from the session by Dr Michael W Mellon during IBD Education Day.

03/01/2020

Future therapies for Inflammatory Bowel Disease presented at IBD Education Day. @ Manor House Event Center

03/01/2020

Chris Emmons, IBD parent and president of the local Crohns and Colitis Foundation of America’s Southwest Ohio chapter welcoming us to the 14th IBD Education Day.

02/26/2020

Something 🚽 think 🤔 on.

Japan rethought the bathroom. Why hasn't America?

09/25/2019

Welcome! We're conducting a study that is designed to help us understand your motivation to engage in the ImproveCareNow Network through Cincinnati Children’s Hospital Medical Center. This local study includes patients, parents, clinicians, and researchers. You're receiving this personal invitation to participate because of your involvement in ICN activities or because you use ICN resources.

Participate in person or online!
Email me at [email protected], if you'd like to share your perspectives through an in-person meeting, over the telephone, or via web conferencing.
If you participate online, here’s what you can expect. You will:
Be asked to create an account. With an account, the system remembers you, avoiding the need to sign consent forms when you re-enter an activity.
Click a link to complete the informed consent documents
Reflect and then contribute your ideas to the study.

This activity takes less than 10 to 15 minutes to complete and closes on October 8th.

Click on the link below to participate in this study.