International Ovarian & Testicular Stromal Tumor (OTST) Registry

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International Ovarian & Testicular Stromal Tumor (OTST) Registry

Welcome to the International Ovarian and Testicular Stromal Tumor Registry.

The Registry collects clinical and biological information about ovarian and testicular stromal tumors in an effort to learn more about treatment of these rare tumors. The International Ovarian and Testicular Tumor Registry was founded in 2011 to advance research and treatment of ovarian and testicular stromal tumors in children and adults to benefit patients and further the understanding of these

rare tumors. This research is a collaboration between Children’s Hospitals and Clinics of Minnesota in Minneapolis, Children’s National Medical Center in Washington, DC, and the Dana Farber Cancer Institute in Boston.

07/29/2026

Registry team member Brenya presented our latest research at the poster session of the 2026 AACR Breaking Barriers in the Fight Against Rare Cancers Conference, held this year in Vancouver, BC!

06/26/2026

Fun Fact! The International PPB/DICER1 Registry is based in Minneapolis, Minnesota. Check out the view from our office window!

06/16/2026

Honoring this sweet girl's memory on her birthday with little acts of kindness in our communities. Happy birthday!

05/20/2026

May is National Cancer Research Month. Our mission is to improve outcomes for children and adults with ovarian and testicular stromal tumors. In honor of National Cancer Research Month, please consider joining the OTST Registry in this mission. Find out more about OTST Registry eligibility and how to enroll here: https://www.otstregistry.org/who-is-eligible/enrolling-in-the-registry/

05/07/2026

The PPB/DICER1 and OTST Registries team had a great time at ! We had the opportunity to connected with many wonderful oncologists located both nationally and internationally, learned more about current research in related fields of study and more.

04/09/2026

The event is live! Join us today over Zoom for the 2026 DICER1 Symposium & Family Meeting. If you have any questions, please email [email protected].

04/08/2026

Join us virtually over Zoom tomorrow for the 2026 DICER1 Symposium & Family Meeting. To register for the event and view the agenda, please visit our website here: https://www.ppbregistry.org/eventsandcommunications/ #

04/02/2026

We are just one week out from the 2026 DICER1 Symposium & Family Meeting, which will be held from 9:00am to 1:00pm CT over Zoom on Thursday, April 9th. To register for the event and view the agenda, please visit our website here: https://www.ppbregistry.org/eventsandcommunications/ #

03/26/2026

The 2026 DICER1 Symposium & Family Meeting is quickly approaching. We look forward to gathering with you virtually over Zoom on Thursday, April 9th from 9:00am to 1:00pm CT. To register for the event and view the agenda, please visit our website here: https://www.ppbregistry.org/eventsandcommunications/ #

03/09/2026

Register today! Our DICER1 Symposium and Family Meeting will be happening on Thursday, April 9, 2026. We invite everyone - patients, families, health care professionals and researchers - to join us as we discuss the latest updates to our DICER1 surveillance guidelines.

General Registration: https://us06web.zoom.us/webinar/register/WN_a-_OveNrRtaBAxFYDZqa2A

Continuing Education Registration (CME [AMA PRA], ANCC, and NSGC CEUs): https://cmn.education.childrensmn.org/clinician-education/L040926DICER1SymposiumandFamilyMeeting

Address

Minneapolis, MN

Website

http://www.otstregistry.org/

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