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10/22/2026

The neurologist called and Ellie’s MRI came back normal !!
That is amazing 🤩 There’s no other explanation to this BUT GOD !
Thank you for the prayers .. 🙌🏻

They gave Ellie the lowest dose of anesthesia as possible to prevent her from having a bad reaction and it worked ! She ...
10/19/2026

They gave Ellie the lowest dose of anesthesia as possible to prevent her from having a bad reaction and it worked !
She woke up happy and ready to go !
🙌🏻 Thank God we did not have to be admitted now we are headed home to nap !
Thanks for the prayers ❤️

10/19/2026

Ellie is in recovery ! It did not take as long as they expected. They said she did great !
Hopefully I can go back and see her soon ❤️

Relaxing before going back ! It could take up to 2 hours to complete the brain MRI. I’ll update everyone when she is in ...
10/19/2026

Relaxing before going back !
It could take up to 2 hours to complete the brain MRI.
I’ll update everyone when she is in recovery . ❤️‍🩹

Tomorrow morning Ellie is being put to sleep for a brain MRI. Say a prayer for her tonight !
10/19/2026

Tomorrow morning Ellie is being put to sleep for a brain MRI.
Say a prayer for her tonight !

We are home 🙌🏻It may be awhile before she back to her baseline but she is so much better than what she was at arrival ! ...
10/10/2026

We are home 🙌🏻
It may be awhile before she back to her baseline but she is so much better than what she was at arrival !
I’m keeping a wet diaper count and how many cups she drinks log .
Additionally to my already seizure and vital signs log I already keep daily .
Since they unhooked her from the IV and she would drink and have a wet diaper they said I could take her home .
Thanks for the prayers ❤️
Shoutout to CHOG 4C for taking good care of us
we love all of you and so glad we got to reunite with some of you !

Ellie has Ecoli & Adenovirus.They have unhooked her from IV fluids to see if she will eat and drink .She didn’t eat much...
10/10/2026

Ellie has Ecoli & Adenovirus.
They have unhooked her from IV fluids to see if she will eat and drink .
She didn’t eat much but something is better than nothing: baby steps ❤️

It’s late but here’s an update .Ellie -Ann has an intestinal infection due to Ecoli. 😞 thankfully the IV fluids have bee...
10/09/2026

It’s late but here’s an update .
Ellie -Ann has an intestinal infection due to Ecoli. 😞 thankfully the IV fluids have been helping make her feel better and keeping her hydrated. She had a good couple of hours today where she was herself and playful .
Now she’s very fussy, and shaky. They also upped her seizure medicine tonight and added in an extra medication to take as needed when she is sick.
She’s had 5 now since being here.

Fingers crossed we get some kind of sleep tonight ….. goodnight

04/12/2026

The girls fell asleep while watching a movie the other night and felt Ellie starting to twitch . This is is a short seizure after I put her in the bed she was having convulsions and I could feel the bed shake .

What it looks like after having a seizure . At one time her oxygen got down into the 80s and her heart rate 60. These ar...
04/12/2026

What it looks like after having a seizure .
At one time her oxygen got down into the 80s and her heart rate 60.
These are all from last night and she was finally having steady regular sats around 5am.
So for the ones that ask me . Yes Ellie is still having issues. Some you can’t see and some I take care of at home.
It’s so frustrating I wish I could fix my baby .

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