Mavryck Strong-Mavs Journey with Cerebral ALD

08/02/2026

My favorite sound, man it’s the best sound hearing your baby laugh.

08/02/2026

Doing what he does best, continuing to amaze us all! 💙

08/02/2026

08/02/2026

A year ago today 😭😭 Man I wish we could go back in time.

08/01/2026

We are so thankful for each and every one of you.

Hi friends!! Please share this!! We’re going to try to hit our goal today for Mavs new stroller they have an open box one again online so we just need around $300 more towards his goal on his new wheels fund! If you can please help us share this so we can try to hit the goal why it’s still in stock. That’s just $5 from 60 of our 1600 friends. This is going to be a tremendous help for us and Mavryck!! 💙💙

Mav’s new wheels fund!!⬇️

https://www.amazon.com/registries/gl/guest-view/2HZ125EHRSG82?ref_=cm_sw_r_apin_ggr-subnav-share_2VDVQAPVSZ0J8W246C77&language=en-US

Cashapp- $mavryckstrong
Venmo-
Apple Pay/ Zelle 8703218621

Thank you guys truly so much for everything you do to help our Mav. 💙

Update: Thank you all so much for helping us reach our goal it truly means more to us then you know!! I’ll leave his list tagged incase anyone would like to send things he and sister need and want.

07/31/2026

Hi friends!! Please share this!! We’re going to try to hit our goal today for Mavs new stroller they have an open box one again online so we just need around $300 more towards his goal on his new wheels fund! If you can please help us share this so we can try to hit the goal why it’s still in stock. That’s just $5 from 60 of our 1600 friends. This is going to be a tremendous help for us and Mavryck!! 💙💙

Mav’s new wheels fund!!⬇️

https://www.amazon.com/registries/gl/guest-view/2HZ125EHRSG82?ref_=cm_sw_r_apin_ggr-subnav-share_2VDVQAPVSZ0J8W246C77&language=en-US

Cashapp- $mavryckstrong
Venmo-
Apple Pay/ Zelle 8703218621

Thank you guys truly so much for everything you do to help our Mav. 💙

Update: Thank you all so much for helping us reach our goal it truly means more to us then you know!! I’ll leave his list tagged incase anyone would like to send things he and sister need and want.

07/31/2026

Check out this little cutie pie, we’ve had a good day!!

Mavryck is 9 followers away from having 1600 people following his journey. We are so thankful for each and every one of you guys being here.

Right now if you want to help just keep on engaging with his posts, and helping us share his story to make this disease more known of. If you want to help us to reach his new stroller find you can donate to his new wheels fund on his Amazon wishlist, or shop his wishlist. We are still a little over half way to our goal and we appreciate it more than you guys know.

Overall keep praying for big improvements in our little man. 💙

Check out this Gift List I just created. https://www.amazon.com/registries/gl/guest-view/2HZ125EHRSG82?ref_=cm_sw_r_apin_ggr-subnav-share_MN4A6W173NVYKWYC35VS_1&language=en-US

07/30/2026

Good day in Little Rock for the most part for our Mav man.

Some of our labs are off but we’re already on top of doing what needs to be done to make sure they get leveled out. He was not a fan of his port access today, I’m so thankful it’s coming out soon.

We had our visit with complex care this morning, everyone is so amazed by the things God is doing in our boy. He’s going to work with rehab on getting Mavs new safe bed for him.

We took Vee too get a few things for school, it’s not the same school shopping with one of your babies and not both.

Overall good report for the day and our little man is napping away.

Please continue to pray over Mav, that his levels even out, and that he continues to do big things. ❤️

We are a little over halfway to our goal for Mavs new wagon. If you can help in anyway, we appreciate it more than we could ever tell you. If not please share this! 💙

Check out this Gift List I just created. https://www.amazon.com/registries/gl/guest-view/2HZ125EHRSG82?ref_=cm_sw_r_apin_ggr-subnav-share_2QDSB92GRCJ6H96NJRMA&language=en-US

07/30/2026

40 followers away from 1.6k all in a day, man are we thankful for each and everyone of you following our journey and already awareness of what ALD is. ♥️