09/19/2026
Today is Usher Syndrome Awareness Day! ♡
In recognition of this day, we are pleased to announce the launch of CHC’s Usher Syndrome Family Center (USFC), providing coordinated care, trusted guidance, and compassionate support for children, teens, adults, and families living with Usher syndrome.
Did you know Usher syndrome is a rare genetic condition that affects hearing and vision and may also impact balance? Individuals with Usher syndrome are born with or develop hearing loss and experience progressive vision loss over time.
Every family has a unique journey, but they should not have to navigate it alone. If you are living with Usher syndrome, have a family member, or know someone who is, we encourage you to contact the Usher Syndrome Family Center at CHC. Visit our website at the link in bio or email Amy Reiss, Program Lead of the Usher Syndrome Family Center and Hearing Education Specialist, at [email protected] to learn more.