09/04/2026
Faces of IBD: Real people. Real stories. Real impact.
Faces of IBD is a Crohn’s & Colitis Foundation Nebraska/Iowa Chapter awareness project that shares the experiences of people living with Crohn’s disease and ulcerative colitis. Through portraits and personal stories, we are putting real faces to IBD, increasing understanding, reducing stigma, and reminding our community that no one has to face IBD alone.
My IBD Journey-Stephanie Williamson
I was diagnosed with Crohn's disease 24 years ago after a long and frustrating search for answers. I had become very ill, and my primary care physicians exhausted every option they could think of to determine what was wrong. At the time, Crohn's disease was not as commonly recognized as it is today. Eventually, I was referred to a gastroenterologist, and after further evaluation, I finally received my diagnosis. While it was difficult news to hear, it also brought relief to finally have an explanation for what I had been experiencing.
Living with IBD has been a rollercoaster. There are good days and bad days, and the physical and emotional challenges can be unpredictable. Some days I feel well and energized, while other days I struggle with symptoms, fatigue, and the realities of managing a chronic disease. Through it all, I continue to hold on to hope for better treatments and, someday, a cure.
IBD has affected every part of my life, including my family and my work. My children have learned to understand that when I'm not feeling well, I sometimes just need time to rest and get back on my feet. I am incredibly grateful for the love, patience, and support I receive from both my family and my work family. Their understanding has helped me navigate the challenges that come with living with Crohn's disease.
What I wish others understood is that the fatigue that comes with IBD is different. People often try to relate by saying they're tired too, but IBD-related exhaustion can feel overwhelming because our bodies are constantly fighting an invisible battle. We don't want pity; we want understanding and grace. To anyone newly diagnosed, know that you are not alone. Lean on your care team, connect with the IBD community, and don't give up. There is support, strength, and hope waiting for you every step of the way.
