01/28/2026
https://www.facebook.com/share/p/1AndktKTSZ/?mibextid=wwXIfr
“It was awful, but good.”
When you have a disease as rare as the one Mark Moore has, you wouldn't think he'd be smiling. But thanks to a dream team of specialists, including ophthalmologist Dr. Rao Chundury, Mark is hiking, traveling and sending photos to his doctors from Yosemite National Park.
Mark has a rare blood cancer called Erdheim-Chester Disease. It's so rare, only around 1000 cases have been diagnosed since its discovery in 1930. But providers in oncology, hematology, ophthalmology, cardiology, otolaryngology, pathology and cardiac electrophysiology worked together to help him.
Today, he takes targeted therapy in the form of a pill that lets him travel and live his life without being tethered to a clinic.
Read more and watch a video about this extraordinary collaboration between specialties that could only happen here: https://bit.ly/4k6ktRA